{"id":3343,"date":"2025-06-28T06:17:41","date_gmt":"2025-06-28T04:17:41","guid":{"rendered":"https:\/\/remeds.org\/?page_id=3343"},"modified":"2025-07-19T18:22:22","modified_gmt":"2025-07-19T16:22:22","slug":"imprint","status":"publish","type":"page","link":"https:\/\/remeds.org\/tr\/imprint\/","title":{"rendered":"K\u00fcnye"},"content":{"rendered":"<div data-elementor-type=\"wp-page\" data-elementor-id=\"3343\" class=\"elementor elementor-3343\" data-elementor-post-type=\"page\">\n\t\t\t\t<div class=\"elementor-element elementor-element-3564d6d7 e-flex e-con-boxed e-con e-parent\" data-id=\"3564d6d7\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-f21e229 elementor-widget elementor-widget-heading\" data-id=\"f21e229\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h1 class=\"elementor-heading-title elementor-size-default\">K\u00fcnye<\/h1>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-7f5af928 elementor-widget elementor-widget-text-editor\" data-id=\"7f5af928\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p class=\"translation-block\">Verein zur Unterst\u00fctzung von Kindern mit MeCP2 Duplication Syndrom, k\u0131saca: Lasst uns MDS heilen, Avusturya yasalar\u0131na g\u00f6re kurulmu\u015f k\u00e2r amac\u0131 g\u00fctmeyen bir dernektir (<strong> (DupMECP2 \u2013 Lasst uns MDS heilen),<\/strong>), ZVR 1165516180 (Avusturya merkezi dernek sicilindeki kay\u0131t numaras\u0131).<\/p><h2><strong>Adres:<\/strong><\/h2><p>Premreinergasse 13<\/p><p>1130 Viyana<\/p><p>Avusturya<\/p><h2><strong>\u0130leti\u015fim Bilgileri:<\/strong><\/h2><p>E-posta: office@remeds.org<\/p><p>Telefon: 0043 678 121 5837<\/p><p>Web sitesi: www.remeds.org<\/p><h2>Yasal Temsilciler:<\/h2><p>David Covini, Ba\u015fkan<\/p><p>Dr. Caroline Covini, Ba\u015fkan Yard\u0131mc\u0131s\u0131<\/p><h2><strong>Web Sitesinin Amac\u0131:<\/strong><\/h2><p class=\"translation-block\">Bu web sitesi, <strong>MECP2 Duplikasyon Sendromu i\u00e7in Kay\u0131t ve t\u0131bbi anket platformunun<\/strong> (REMEDS Platformu) resmi ortam\u0131 olarak hizmet vermektedir. Temel amac\u0131, ara\u015ft\u0131rmalar\u0131 geli\u015ftirmek, <strong>MECP2 Duplikasyon Sendromu'nun<\/strong> anla\u015f\u0131lmas\u0131n\u0131 ilerletmek ve bilimsel \u00e7al\u0131\u015fmalar\u0131 desteklemek i\u00e7in klinik ve genetik verileri toplamak, saklamak ve analiz etmektir.<\/p><h2><strong>Veri Koruma ve GDPR Uyumlulu\u011fu:<\/strong><\/h2><p class=\"translation-block\">Bu web sitesi ve t\u00fcm veri i\u015fleme faaliyetleri <strong>Genel Veri Koruma Y\u00f6netmeli\u011fi'ne (GDPR)<\/strong> uygun olarak y\u00fcr\u00fct\u00fclmektedir. Ki\u015fisel veriler, yaln\u0131zca ilgili ki\u015finin a\u00e7\u0131k r\u0131zas\u0131yla toplan\u0131r, saklan\u0131r ve i\u015flenir.<\/p><h2><strong>Sorumluluk Reddi:<\/strong><\/h2><p class=\"translation-block\">Bu web sitesinde sunulan t\u00fcm i\u00e7erik yaln\u0131zca bilgilendirme ama\u00e7l\u0131d\u0131r. <strong>DupMECP2 \u2013 Lasst uns MDS heilen <\/strong>, bilgilerin do\u011frulu\u011fu, eksiksizli\u011fi veya g\u00fcncelli\u011fi konusunda hi\u00e7bir sorumluluk \u00fcstlenmez. Harici ba\u011flant\u0131lar\u0131n kullan\u0131m\u0131 onay anlam\u0131na gelmez ve <strong>DupMECP2 \u2013 Lasst uns MDS heilen <\/strong>, \u00fc\u00e7\u00fcnc\u00fc taraf i\u00e7eriklerinden sorumlu de\u011fildir.<\/p><h2><strong>Telif Hakk\u0131 ve Fikri M\u00fclkiyet:<\/strong><\/h2><p class=\"translation-block\">Bu web sitesinin i\u00e7eri\u011fi, yap\u0131s\u0131 ve tasar\u0131m\u0131 telif hakk\u0131 yasalar\u0131yla korunmaktad\u0131r. Web sitesinin i\u00e7eri\u011finin \u00e7o\u011falt\u0131lmas\u0131, de\u011fi\u015ftirilmesi, da\u011f\u0131t\u0131lmas\u0131 veya ticari ama\u00e7la kullan\u0131lmas\u0131, <strong>DupMECP2 \u2013 Lasst uns MDS heilen <\/strong>\u2019in \u00f6nceden yaz\u0131l\u0131 onay\u0131n\u0131 gerektirir.<\/p><p><!-- \/wp:paragraph --><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>","protected":false},"excerpt":{"rendered":"<p>Imprint Verein zur Unterst\u00fctzung von Kindern mit MeCP2 Duplication Syndrom, kurz: Lasst uns MDS heilen, a not-for-profit association under Austrian law (DupMECP2 \u2013 Lasst uns MDS heilen), ZVR 1165516180 (Registration number with the Austrian central association registry) Address: Premreinergasse 13 1130 Wien Austria Contact Information: Email: office@remeds.org Phone: 0043 678\u00a0121 5837 Website: www.remeds.org Legal Representatives: [&hellip;]<\/p>\n","protected":false},"author":114,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_jf_save_progress":"","footnotes":""},"class_list":["post-3343","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/remeds.org\/tr\/wp-json\/wp\/v2\/pages\/3343","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/remeds.org\/tr\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/remeds.org\/tr\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/remeds.org\/tr\/wp-json\/wp\/v2\/users\/114"}],"replies":[{"embeddable":true,"href":"https:\/\/remeds.org\/tr\/wp-json\/wp\/v2\/comments?post=3343"}],"version-history":[{"count":11,"href":"https:\/\/remeds.org\/tr\/wp-json\/wp\/v2\/pages\/3343\/revisions"}],"predecessor-version":[{"id":3466,"href":"https:\/\/remeds.org\/tr\/wp-json\/wp\/v2\/pages\/3343\/revisions\/3466"}],"wp:attachment":[{"href":"https:\/\/remeds.org\/tr\/wp-json\/wp\/v2\/media?parent=3343"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}