{"id":222,"date":"2024-09-13T08:59:00","date_gmt":"2024-09-13T06:59:00","guid":{"rendered":"https:\/\/remeds.org\/?page_id=222"},"modified":"2025-07-02T15:06:51","modified_gmt":"2025-07-02T13:06:51","slug":"about-remeds","status":"publish","type":"page","link":"https:\/\/remeds.org\/pt\/about-remeds\/","title":{"rendered":"Sobre a REMEDS"},"content":{"rendered":"<div data-elementor-type=\"wp-page\" data-elementor-id=\"222\" class=\"elementor elementor-222\" data-elementor-post-type=\"page\">\n\t\t\t\t<div class=\"elementor-element elementor-element-49a3fe8 e-flex e-con-boxed e-con e-parent\" data-id=\"49a3fe8\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-cd5d78b e-con-full e-flex e-con e-child\" data-id=\"cd5d78b\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-6529737 elementor-widget elementor-widget-heading\" data-id=\"6529737\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h1 class=\"elementor-heading-title elementor-size-default\">Quem \u00e9 a REMEDS?<\/h1>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-2517e79 elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"2517e79\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-b1d8a1f e-con-full e-flex e-con e-child\" data-id=\"b1d8a1f\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-b40b553 elementor-widget__width-initial elementor-widget elementor-widget-text-editor\" data-id=\"b40b553\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p>A REMEDS \u00e9 uma iniciativa da DupMECP2 - Lasst uns MDS heilen, uma organiza\u00e7\u00e3o europeia sem fins lucrativos, dedicada a apoiar a comunidade global da S\u00edndrome de Duplica\u00e7\u00e3o MECP2 (MDS). A nossa equipa REMEDS inclui uma m\u00e9dica dedicada, a Dr.\u00aa Gr\u00f6ppel, e outros especialistas em MDS empenhados em fazer avan\u00e7ar a investiga\u00e7\u00e3o e os cuidados aos indiv\u00edduos com a s\u00edndrome de duplica\u00e7\u00e3o MECP2.<\/p><p>Com a REMEDS, pretendemos criar uma plataforma abrangente, interativa e multilingue, onde os dados s\u00e3o tratados segundo os mais elevados padr\u00f5es de seguran\u00e7a e privacidade, com armazenamento em conformidade com o RGPD num servidor localizado na Europa. \u00a0<\/p><p>O nosso objetivo \u00e9 otimizar a comunica\u00e7\u00e3o e a troca de informa\u00e7\u00f5es para aprofundar a compreens\u00e3o da doen\u00e7a, apoiar a investiga\u00e7\u00e3o sobre o tratamento e prestar um apoio crucial \u00e0s fam\u00edlias afetadas pela MDS. Ao reunir pacientes, cuidadores, empresas da \u00e1rea da sa\u00fade e investigadores numa \u00fanica plataforma, promovemos um ambiente colaborativo que aprofunda a compreens\u00e3o e melhora a gest\u00e3o da MDS.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-64626b1 elementor-widget-tablet__width-initial elementor-widget elementor-widget-image\" data-id=\"64626b1\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t\t\t\t\t\t\t\t\t<figure class=\"wp-caption\">\n\t\t\t\t\t\t\t\t\t\t<img fetchpriority=\"high\" decoding=\"async\" width=\"800\" height=\"534\" src=\"https:\/\/remeds.org\/wp-content\/uploads\/2025\/02\/REMEDS_Who-we-are-1024x683.jpg\" class=\"attachment-large size-large wp-image-1480\" alt=\"Caroline Covini David Covini e Dr. Gudrun Gr\u00f6ppel\" srcset=\"https:\/\/remeds.org\/wp-content\/uploads\/2025\/02\/REMEDS_Who-we-are-1024x683.jpg 1024w, https:\/\/remeds.org\/wp-content\/uploads\/2025\/02\/REMEDS_Who-we-are-300x200.jpg 300w, https:\/\/remeds.org\/wp-content\/uploads\/2025\/02\/REMEDS_Who-we-are-768x512.jpg 768w, https:\/\/remeds.org\/wp-content\/uploads\/2025\/02\/REMEDS_Who-we-are-1536x1024.jpg 1536w, https:\/\/remeds.org\/wp-content\/uploads\/2025\/02\/REMEDS_Who-we-are-2048x1365.jpg 2048w\" sizes=\"(max-width: 800px) 100vw, 800px\" \/>\t\t\t\t\t\t\t\t\t\t\t<figcaption class=\"widget-image-caption wp-caption-text\">Caroline Covini, David Covini e Dr.\u00aa Gudrun Gr\u00f6ppel<\/figcaption>\n\t\t\t\t\t\t\t\t\t\t<\/figure>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-9940913 elementor-fixed elementor-widget elementor-widget-image\" data-id=\"9940913\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;_position&quot;:&quot;fixed&quot;}\" data-widget_type=\"image.default\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" width=\"800\" height=\"919\" src=\"https:\/\/remeds.org\/wp-content\/uploads\/2024\/10\/Element-1@4x-891x1024.png\" class=\"attachment-large size-large wp-image-484\" alt=\"\" srcset=\"https:\/\/remeds.org\/wp-content\/uploads\/2024\/10\/Element-1@4x-891x1024.png 891w, https:\/\/remeds.org\/wp-content\/uploads\/2024\/10\/Element-1@4x-261x300.png 261w, https:\/\/remeds.org\/wp-content\/uploads\/2024\/10\/Element-1@4x-768x883.png 768w, https:\/\/remeds.org\/wp-content\/uploads\/2024\/10\/Element-1@4x-1336x1536.png 1336w, https:\/\/remeds.org\/wp-content\/uploads\/2024\/10\/Element-1@4x-1781x2048.png 1781w\" sizes=\"(max-width: 800px) 100vw, 800px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-9148461 e-con-full e-flex e-con e-child\" data-id=\"9148461\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t<div class=\"elementor-element elementor-element-f1dc344 e-con-full e-flex e-con e-child\" data-id=\"f1dc344\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t<div class=\"elementor-element elementor-element-b726836 e-con-full e-flex e-con e-child\" data-id=\"b726836\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-e8740cd elementor-widget elementor-widget-image\" data-id=\"e8740cd\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" width=\"500\" height=\"500\" src=\"https:\/\/remeds.org\/wp-content\/uploads\/2025\/05\/3_What_is_Remeds.svg\" class=\"attachment-full size-full wp-image-2881\" alt=\"\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-e87d59f elementor-widget elementor-widget-heading\" data-id=\"e87d59f\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">O que \u00e9 a REMEDS?<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-57a1b68 elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"57a1b68\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-f343b06 elementor-widget elementor-widget-text-editor\" data-id=\"f343b06\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p>REMEDS \u00e9 a sigla de Register and Medical Survey for MECP2 Duplication Syndrome (Registo e Inqu\u00e9rito M\u00e9dico para a S\u00edndrome de Duplica\u00e7\u00e3o MECP2). Trata-se de um registo global concebido para recolher e gerir dados da comunidade MDS. Esta plataforma inovadora permite o registo e o inqu\u00e9rito a pessoas afetadas exclusivamente pela S\u00edndrome de Duplica\u00e7\u00e3o MECP2. Ao recolher informa\u00e7\u00f5es valiosas diretamente dos cuidadores atrav\u00e9s de inqu\u00e9ritos, a REMEDS visa compreender com maior precis\u00e3o a doen\u00e7a, a sua verdadeira incid\u00eancia e progress\u00e3o. Permite tamb\u00e9m o interc\u00e2mbio direto entre pacientes, cuidadores e investigadores, promovendo uma comunidade solid\u00e1ria e informada.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-0e75d6a e-con-full e-flex e-con e-child\" data-id=\"0e75d6a\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t<div class=\"elementor-element elementor-element-0b19773 e-con-full e-flex e-con e-child\" data-id=\"0b19773\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-7fa74ef elementor-widget elementor-widget-image\" data-id=\"7fa74ef\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"500\" height=\"500\" src=\"https:\/\/remeds.org\/wp-content\/uploads\/2025\/05\/2_Surveys_Remeds.svg\" class=\"attachment-full size-full wp-image-2880\" alt=\"\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-9c8b9c3 elementor-widget__width-initial elementor-widget elementor-widget-heading\" data-id=\"9c8b9c3\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default translation-block\">O que s\u00e3o inqu\u00e9ritos e registo de doentes?<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-7cecfdf elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"7cecfdf\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-5e75f4f elementor-widget elementor-widget-text-editor\" data-id=\"5e75f4f\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p>Os inqu\u00e9ritos e o registo de doentes s\u00e3o componentes essenciais da REMEDS.<\/p><p>O registo de doentes \u00e9 uma base de dados segura onde os pacientes com uma doen\u00e7a espec\u00edfica se podem registar e partilhar informa\u00e7\u00f5es detalhadas, tais como dados demogr\u00e1ficos, informa\u00e7\u00f5es gen\u00e9ticas e historial m\u00e9dico. Este registo ajuda a acompanhar a incid\u00eancia e a progress\u00e3o da S\u00edndrome de Duplica\u00e7\u00e3o MECP2 a n\u00edvel mundial, proporcionando assim uma melhor compreens\u00e3o da doen\u00e7a.<\/p><p>Os inqu\u00e9ritos foram concebidos para recolher informa\u00e7\u00f5es detalhadas dos pacientes, cuidadores e profissionais de sa\u00fade sobre as suas experi\u00eancias com a s\u00edndrome de duplica\u00e7\u00e3o MECP2. Os inqu\u00e9ritos ajudam a manter o registo atualizado, ao mesmo tempo que proporcionam aos investigadores e \u00e0s empresas de cuidados de sa\u00fade uma vis\u00e3o geral da doen\u00e7a, conduzindo, em \u00faltima an\u00e1lise, a melhores tratamentos e estrat\u00e9gias de cuidados.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-17762e0 e-con-full e-flex e-con e-child\" data-id=\"17762e0\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t<div class=\"elementor-element elementor-element-542e4ba e-con-full e-flex e-con e-child\" data-id=\"542e4ba\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-22599ac elementor-widget elementor-widget-image\" data-id=\"22599ac\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"500\" height=\"500\" src=\"https:\/\/remeds.org\/wp-content\/uploads\/2025\/05\/1_Why-joining_Remeds.svg\" class=\"attachment-full size-full wp-image-2879\" alt=\"\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-a7e9899 elementor-widget__width-initial elementor-widget elementor-widget-heading\" data-id=\"a7e9899\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Porqu\u00ea aderir \u00e0 REMEDS?<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-07aedfe elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"07aedfe\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-5b044a2 elementor-widget elementor-widget-text-editor\" data-id=\"5b044a2\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p class=\"translation-block\">Ao participar, est\u00e1 a contribuir para melhorar a compreens\u00e3o e o tratamento da <strong>s\u00edndrome de duplica\u00e7\u00e3o MECP2<\/strong>. A sua participa\u00e7\u00e3o ajuda a acelerar o desenvolvimento de novas terapias e a melhorar a qualidade dos cuidados prestados a todas as crian\u00e7as afetadas. Al\u00e9m disso, ter\u00e1 acesso a uma comunidade de apoio e manter-se-\u00e1 informado sobre os mais recentes avan\u00e7os cient\u00edficos e resultados da investiga\u00e7\u00e3o. Ao partilhar as suas experi\u00eancias e dados, desempenha um papel essencial na constru\u00e7\u00e3o do futuro da investiga\u00e7\u00e3o m\u00e9dica e dos cuidados prestados \u00e0s pessoas com a <strong>s\u00edndrome de duplica\u00e7\u00e3o MECP2<\/strong>.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-e1eae78 e-flex e-con-boxed e-con e-parent\" data-id=\"e1eae78\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-ad48623 e-flex e-con-boxed e-con e-child\" data-id=\"ad48623\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-ec56c6e elementor-widget elementor-widget-heading\" data-id=\"ec56c6e\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Como \u00e9 que a REMEDS funciona?<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-40191e4 elementor-widget elementor-widget-text-editor\" data-id=\"40191e4\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p>Cada registo \u00e9 revisto e validado por um m\u00e9dico dedicado \u00e0 REMEDS, garantindo que todas as pessoas t\u00eam a s\u00edndrome de duplica\u00e7\u00e3o MECP2. Ap\u00f3s a confirma\u00e7\u00e3o do diagn\u00f3stico pelo nosso m\u00e9dico, os cuidadores recebem notifica\u00e7\u00f5es sobre not\u00edcias cient\u00edficas e s\u00e3o convidados a participar em inqu\u00e9ritos desenvolvidos por empresas farmac\u00eauticas, cientistas e profissionais de sa\u00fade.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-b45c0f4 e-con-full e-flex e-con e-child\" data-id=\"b45c0f4\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t<div class=\"elementor-element elementor-element-4f3bffa e-con-full e-grid e-con e-child\" data-id=\"4f3bffa\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t<div class=\"elementor-element elementor-element-dff8bb7 e-con-full e-flex e-con e-child\" data-id=\"dff8bb7\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-8d6e723 elementor-widget elementor-widget-heading\" data-id=\"8d6e723\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<p class=\"elementor-heading-title elementor-size-default\">01<\/p>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-4e0b603 elementor-widget elementor-widget-heading\" data-id=\"4e0b603\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">Criar uma conta<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-2aed89d elementor-widget elementor-widget-text-editor\" data-id=\"2aed89d\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p>Inicie sess\u00e3o num espa\u00e7o privado utilizando ferramentas de autentica\u00e7\u00e3o multifactor.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-7a5ab43 e-con-full e-flex e-con e-child\" data-id=\"7a5ab43\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-4717bc2 elementor-widget elementor-widget-heading\" data-id=\"4717bc2\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<p class=\"elementor-heading-title elementor-size-default\">02<\/p>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-16bcce5 elementor-widget elementor-widget-heading\" data-id=\"16bcce5\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">Registar um paciente\n<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-4fc5d83 elementor-widget elementor-widget-text-editor\" data-id=\"4fc5d83\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<div id=\"brxe-uymlbq\" class=\"brxe-block\">\n<p>Forne\u00e7a informa\u00e7\u00f5es detalhadas sobre o paciente e anexe o comprovativo de diagn\u00f3stico, para valida\u00e7\u00e3o por um m\u00e9dico da REMEDS.<\/p>\n<\/div>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-01bd2ab e-con-full e-flex e-con e-child\" data-id=\"01bd2ab\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-670d4e5 elementor-widget elementor-widget-heading\" data-id=\"670d4e5\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<p class=\"elementor-heading-title elementor-size-default\">03<\/p>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-c8991d5 elementor-widget elementor-widget-heading\" data-id=\"c8991d5\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">Registo bem-sucedido \u00a0<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-5c1d4be elementor-widget elementor-widget-text-editor\" data-id=\"5c1d4be\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<div id=\"brxe-pumhlk\" class=\"brxe-block\"><p>Ap\u00f3s a valida\u00e7\u00e3o, aceda \u00e0 plataforma e gere as informa\u00e7\u00f5es dos seus pacientes.<\/p><\/div>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-635f4be e-con-full e-flex e-con e-child\" data-id=\"635f4be\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-7eb8428 elementor-widget elementor-widget-heading\" data-id=\"7eb8428\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<p class=\"elementor-heading-title elementor-size-default\">04<\/p>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-e1aca5f elementor-widget elementor-widget-heading\" data-id=\"e1aca5f\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">Come\u00e7ar a participar <\/h3>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-2a9df16 elementor-widget elementor-widget-text-editor\" data-id=\"2a9df16\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<section id=\"brxe-ixcyed\" class=\"brxe-section\"><div id=\"brxe-tcderi\" class=\"brxe-container brx-grid\"><div id=\"brxe-sypfqn\" class=\"brxe-block\"><p>Aceda e participe em inqu\u00e9ritos abertos, consulte o historial de a\u00e7\u00f5es e contribuia para os esfor\u00e7os de investiga\u00e7\u00e3o em curso.<\/p><\/div><\/div><\/section>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-212fa9e e-con-full e-flex e-con e-parent\" data-id=\"212fa9e\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t<div class=\"elementor-element elementor-element-1400ab0 e-con-full e-flex e-con e-child\" data-id=\"1400ab0\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-2fffc6a elementor-widget elementor-widget-heading\" data-id=\"2fffc6a\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Tem um diagn\u00f3stico de s\u00edndrome de duplica\u00e7\u00e3o MECP2?<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-6b0412a elementor-widget elementor-widget-jet-engine-component-400\" data-id=\"6b0412a\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"jet-engine-component-400.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<style>.elementor-400 .elementor-element.elementor-element-6b9166f{--display:flex;--flex-direction:row;--container-widget-width:calc( ( 1 - var( --container-widget-flex-grow ) ) * 100% );--container-widget-height:100%;--container-widget-flex-grow:1;--container-widget-align-self:stretch;--flex-wrap-mobile:wrap;--justify-content:flex-start;--align-items:center;--border-radius:36px 36px 36px 36px;--margin-top:0px;--margin-bottom:0px;--margin-left:0px;--margin-right:0px;--padding-top:10px;--padding-bottom:12px;--padding-left:13px;--padding-right:13px;}.elementor-400 .elementor-element.elementor-element-6b9166f:not(.elementor-motion-effects-element-type-background), .elementor-400 .elementor-element.elementor-element-6b9166f > .elementor-motion-effects-container > .elementor-motion-effects-layer{background-color:var( --e-global-color-9b83194 );}.elementor-400 .elementor-element.elementor-element-6b9166f.e-con{--align-self:flex-start;--order:-99999 \/* order start hack *\/;}.elementor-widget-heading .elementor-heading-title{font-family:var( --e-global-typography-primary-font-family ), Sans-serif;font-weight:var( --e-global-typography-primary-font-weight );color:var( --e-global-color-primary );}.elementor-400 .elementor-element.elementor-element-c258b9a .elementor-heading-title{font-family:\"Mulish\", Sans-serif;font-size:1.2rem;font-weight:600;color:var( --e-global-color-primary );}.elementor-400 .elementor-element.elementor-element-c0331a6{--display:flex;--flex-direction:row;--container-widget-width:initial;--container-widget-height:100%;--container-widget-flex-grow:1;--container-widget-align-self:stretch;--flex-wrap-mobile:wrap;--margin-top:-4px;--margin-bottom:0px;--margin-left:0px;--margin-right:0px;}.elementor-widget-icon.elementor-view-stacked .elementor-icon{background-color:var( --e-global-color-primary );}.elementor-widget-icon.elementor-view-framed .elementor-icon, .elementor-widget-icon.elementor-view-default .elementor-icon{color:var( --e-global-color-primary );border-color:var( --e-global-color-primary );}.elementor-widget-icon.elementor-view-framed .elementor-icon, .elementor-widget-icon.elementor-view-default .elementor-icon svg{fill:var( --e-global-color-primary );}.elementor-400 .elementor-element.elementor-element-150af24 .elementor-icon-wrapper{text-align:center;}.elementor-400 .elementor-element.elementor-element-150af24.elementor-view-stacked .elementor-icon{background-color:var( --e-global-color-primary );}.elementor-400 .elementor-element.elementor-element-150af24.elementor-view-framed .elementor-icon, .elementor-400 .elementor-element.elementor-element-150af24.elementor-view-default .elementor-icon{color:var( --e-global-color-primary );border-color:var( --e-global-color-primary );}.elementor-400 .elementor-element.elementor-element-150af24.elementor-view-framed .elementor-icon, .elementor-400 .elementor-element.elementor-element-150af24.elementor-view-default .elementor-icon svg{fill:var( --e-global-color-primary );}.elementor-400 .elementor-element.elementor-element-150af24 .elementor-icon{font-size:30px;}.elementor-400 .elementor-element.elementor-element-150af24 .elementor-icon svg{height:30px;}.elementor-400 .elementor-element.elementor-element-150af24{margin:0px 0px calc(var(--kit-widget-spacing, 0px) + -5px) -5px;top:-1px;}body:not(.rtl) .elementor-400 .elementor-element.elementor-element-150af24{left:0px;}body.rtl .elementor-400 .elementor-element.elementor-element-150af24{right:0px;}.elementor-400 .elementor-element.elementor-element-fd98fa4 .elementor-icon-wrapper{text-align:center;}.elementor-400 .elementor-element.elementor-element-fd98fa4 .elementor-icon{font-size:14px;}.elementor-400 .elementor-element.elementor-element-fd98fa4 .elementor-icon svg{height:14px;}.elementor-400 .elementor-element.elementor-element-fd98fa4{margin:0px 0px calc(var(--kit-widget-spacing, 0px) + 0px) -4px;top:4px;}body:not(.rtl) .elementor-400 .elementor-element.elementor-element-fd98fa4{left:8px;}body.rtl .elementor-400 .elementor-element.elementor-element-fd98fa4{right:8px;}@media(min-width:768px){.elementor-400 .elementor-element.elementor-element-c0331a6{--width:auto;}}@media(max-width:767px){.elementor-400 .elementor-element.elementor-element-6b9166f{--width:auto;--align-items:flex-start;--container-widget-width:calc( ( 1 - var( --container-widget-flex-grow ) ) * 100% );--flex-wrap:nowrap;}.elementor-400 .elementor-element.elementor-element-c258b9a{width:var( --container-widget-width, 439px );max-width:439px;--container-widget-width:439px;--container-widget-flex-grow:0;}.elementor-400 .elementor-element.elementor-element-c0331a6{--width:20px;}}\/* Start custom CSS for container, class: .elementor-element-6b9166f *\/.button-main{rn  rn  transition: transform 0.3s ease;rn  rn}rnrn.button-main:hover .icon-btn-bg {rn        transform: translate( -1px , 0 ) rotate(180deg);rn        transform-origin: center;rn   ttttransition: transform 0.4s ease;rn    }rnrn.button-main:hover .button-main-text{rn  text-decoration: underline #ffffff65;rn  rn}rn.icon-btn-bg {rn  rn  transition: transform 0.6s ease;rn  rn}\/* End custom CSS *\/\n\/* Start Custom Fonts CSS *\/@font-face {\n\tfont-family: 'Mulish';\n\tfont-style: normal;\n\tfont-weight: normal;\n\tfont-display: auto;\n\tsrc: url('https:\/\/remeds.org\/wp-content\/uploads\/2024\/08\/mulish-v13-latin-regular.woff2') format('woff2');\n}\n@font-face {\n\tfont-family: 'Mulish';\n\tfont-style: italic;\n\tfont-weight: normal;\n\tfont-display: auto;\n\tsrc: url('https:\/\/remeds.org\/wp-content\/uploads\/2024\/08\/mulish-v13-latin-italic.woff2') format('woff2');\n}\n@font-face {\n\tfont-family: 'Mulish';\n\tfont-style: normal;\n\tfont-weight: 600;\n\tfont-display: auto;\n\tsrc: url('https:\/\/remeds.org\/wp-content\/uploads\/2024\/08\/mulish-v13-latin-600.woff2') format('woff2');\n}\n@font-face {\n\tfont-family: 'Mulish';\n\tfont-style: italic;\n\tfont-weight: 600;\n\tfont-display: auto;\n\tsrc: url('https:\/\/remeds.org\/wp-content\/uploads\/2024\/08\/mulish-v13-latin-600italic.woff2') format('woff2');\n}\n@font-face {\n\tfont-family: 'Mulish';\n\tfont-style: normal;\n\tfont-weight: 700;\n\tfont-display: auto;\n\tsrc: url('https:\/\/remeds.org\/wp-content\/uploads\/2024\/08\/mulish-v13-latin-700.woff2') format('woff2');\n}\n@font-face {\n\tfont-family: 'Mulish';\n\tfont-style: normal;\n\tfont-weight: 500;\n\tfont-display: auto;\n\tsrc: url('https:\/\/remeds.org\/wp-content\/uploads\/2024\/08\/mulish-v13-latin-500.woff2') format('woff2');\n}\n@font-face {\n\tfont-family: 'Mulish';\n\tfont-style: italic;\n\tfont-weight: 700;\n\tfont-display: auto;\n\tsrc: url('https:\/\/remeds.org\/wp-content\/uploads\/2024\/08\/mulish-v13-latin-700italic.woff2') format('woff2');\n}\n\/* End Custom Fonts CSS *\/<\/style>\t\t<div data-elementor-type=\"jet-engine-component\" data-elementor-id=\"400\" class=\"elementor elementor-400 jet-listing-grid--400 jet-component-instance-4196\" data-elementor-post-type=\"jet-engine\" style=\"\">\n\t\t\t\t<a class=\"elementor-element elementor-element-6b9166f e-con-full button-main e-flex e-con e-child\" data-id=\"6b9166f\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\" href=\"https:\/\/remeds.org\/pt\/account\/patients\/\">\n\t\t\t\t<div class=\"elementor-element elementor-element-c258b9a elementor-widget-mobile__width-initial elementor-widget elementor-widget-heading\" data-id=\"c258b9a\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Registar um paciente<\/h2>\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-c0331a6 e-con-full e-flex e-con e-child\" data-id=\"c0331a6\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-150af24 elementor-absolute icon-btn-bg elementor-view-default elementor-widget elementor-widget-icon\" data-id=\"150af24\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;_position&quot;:&quot;absolute&quot;}\" data-widget_type=\"icon.default\">\n\t\t\t\t\t\t\t<div class=\"elementor-icon-wrapper\">\n\t\t\t<div class=\"elementor-icon\">\n\t\t\t<svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" xmlns:xlink=\"http:\/\/www.w3.org\/1999\/xlink\" xmlns:serif=\"http:\/\/www.serif.com\/\" width=\"100%\" height=\"100%\" viewbox=\"0 0 29 28\" xml:space=\"preserve\" style=\"fill-rule:evenodd;clip-rule:evenodd;stroke-linejoin:round;stroke-miterlimit:2;\"> <g transform=\"matrix(1,0,0,1,-946,-526.35)\"> <g transform=\"matrix(1,0,0,1,946,526)\"> <path d=\"M27.756,12.484C28.491,15.695 27.556,19.032 25.053,21.876C22.588,24.691 18.556,27.014 14,27.534C9.444,28.085 5.412,26.631 2.947,23.902C0.444,21.191 -0.491,17.205 0.244,13.092C0.981,8.957 3.094,5.509 5.562,3.293C8.067,1.061 10.926,0.059 14,0.423C17.074,0.793 19.933,2.361 22.438,4.461C24.906,6.59 27.018,9.252 27.756,12.484L27.756,12.484Z\" style=\"fill:white;fill-rule:nonzero;\"><\/path> <\/g> <\/g> <\/svg>\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-fd98fa4 elementor-absolute elementor-view-default elementor-widget elementor-widget-icon\" data-id=\"fd98fa4\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;_position&quot;:&quot;absolute&quot;}\" data-widget_type=\"icon.default\">\n\t\t\t\t\t\t\t<div class=\"elementor-icon-wrapper\">\n\t\t\t<div class=\"elementor-icon\">\n\t\t\t<svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" xmlns:xlink=\"http:\/\/www.w3.org\/1999\/xlink\" xmlns:serif=\"http:\/\/www.serif.com\/\" width=\"100%\" height=\"100%\" viewbox=\"0 0 5 8\" xml:space=\"preserve\" style=\"fill-rule:evenodd;clip-rule:evenodd;stroke-linecap:round;stroke-linejoin:round;\"> <g transform=\"matrix(1,0,0,1,-958.3,-535.85)\"> <g transform=\"matrix(1,0,0,1,946,526)\"> <path d=\"M13.3,10.85L16.1,13.65L13.3,16.45\" style=\"fill:none;fill-rule:nonzero;stroke:rgb(24,37,52);stroke-width:2px;\"><\/path> <\/g> <\/g> <\/svg>\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>","protected":false},"excerpt":{"rendered":"<p>Who is REMEDS? REMEDS is an initiative by DupMECP2 \u2013 Lasst uns MDS heilen, a European based non-profit organization, dedicated to supporting the global MECP2 Duplication Syndrome (MDS) community. Our REMEDS team includes a dedicated medical doctor, Dr. Gr\u00f6ppel, and other MDS experts committed to advancing research and patient care for MECP2 duplication syndrome. With [&hellip;]<\/p>\n","protected":false},"author":73,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_jf_save_progress":"","footnotes":""},"class_list":["post-222","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/remeds.org\/pt\/wp-json\/wp\/v2\/pages\/222","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/remeds.org\/pt\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/remeds.org\/pt\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/remeds.org\/pt\/wp-json\/wp\/v2\/users\/73"}],"replies":[{"embeddable":true,"href":"https:\/\/remeds.org\/pt\/wp-json\/wp\/v2\/comments?post=222"}],"version-history":[{"count":10,"href":"https:\/\/remeds.org\/pt\/wp-json\/wp\/v2\/pages\/222\/revisions"}],"predecessor-version":[{"id":3364,"href":"https:\/\/remeds.org\/pt\/wp-json\/wp\/v2\/pages\/222\/revisions\/3364"}],"wp:attachment":[{"href":"https:\/\/remeds.org\/pt\/wp-json\/wp\/v2\/media?parent=222"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}