{"id":13,"date":"2024-08-08T11:41:37","date_gmt":"2024-08-08T09:41:37","guid":{"rendered":"https:\/\/remeds.org\/?page_id=13"},"modified":"2025-12-01T14:52:58","modified_gmt":"2025-12-01T13:52:58","slug":"home","status":"publish","type":"page","link":"https:\/\/remeds.org\/nl\/","title":{"rendered":"Home"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-page\" data-elementor-id=\"13\" class=\"elementor elementor-13\" data-elementor-post-type=\"page\">\n\t\t\t\t<div class=\"elementor-element elementor-element-4821ca9 e-flex e-con-boxed e-con e-parent\" data-id=\"4821ca9\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-9a14cea elementor-widget elementor-widget-heading\" data-id=\"9a14cea\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h1 class=\"elementor-heading-title elementor-size-default\">REMEDS<\/h1>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-4fb24c2 elementor-widget-mobile__width-initial elementor-widget elementor-widget-heading\" data-id=\"4fb24c2\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Register and Medical Surveys platform for <br>MECP2 duplication syndrome<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-573ac70 elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"573ac70\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-9bf57c6 elementor-widget-mobile__width-auto 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data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Register a patient<\/h2>\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-c0331a6 e-con-full e-flex e-con e-child\" data-id=\"c0331a6\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-150af24 elementor-absolute icon-btn-bg elementor-view-default elementor-widget elementor-widget-icon\" data-id=\"150af24\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;_position&quot;:&quot;absolute&quot;}\" data-widget_type=\"icon.default\">\n\t\t\t\t\t\t\t<div class=\"elementor-icon-wrapper\">\n\t\t\t<div class=\"elementor-icon\">\n\t\t\t<svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" xmlns:xlink=\"http:\/\/www.w3.org\/1999\/xlink\" xmlns:serif=\"http:\/\/www.serif.com\/\" width=\"100%\" height=\"100%\" viewBox=\"0 0 29 28\" 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stop-opacity=\"100%\"\/>\r\n<\/linearGradient>\r\n<\/defs>\r\n<\/svg>\r\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-3ff7b1a e-flex e-con-boxed e-con e-parent\" data-id=\"3ff7b1a\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-2043bf7 e-con-full e-flex e-con e-child\" data-id=\"2043bf7\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-ea36735 elementor-widget-mobile__width-inherit elementor-widget elementor-widget-heading\" data-id=\"ea36735\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">The MECP2\nDuplication Syndrome<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-f80f6c4 elementor-widget-mobile__width-inherit elementor-widget elementor-widget-text-editor\" data-id=\"f80f6c4\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p>MECP2 Duplication Syndrome is a rare and severe genetic disorder. The syndrome is mainly characterized by intellectual disability, hypotonia, lack of speech and seizures. The symptoms and their intensity vary from child to child.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-7978fec e-con-full e-flex e-con e-child\" data-id=\"7978fec\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-1a218cd elementor-widget-mobile__width-inherit elementor-widget elementor-widget-heading\" data-id=\"1a218cd\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">One syndrome, several names\n<\/h3>\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-64857b5 e-con-full e-flex e-con e-child\" data-id=\"64857b5\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-446e190 elementor-widget__width-auto elementor-widget elementor-widget-heading\" data-id=\"446e190\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h4 class=\"elementor-heading-title elementor-size-default\">MDS<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-287dcc3 elementor-widget__width-auto elementor-widget elementor-widget-heading\" data-id=\"287dcc3\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h4 class=\"elementor-heading-title elementor-size-default\">Lubs syndrome<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-bd67cbf elementor-widget__width-auto elementor-widget elementor-widget-heading\" data-id=\"bd67cbf\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h4 class=\"elementor-heading-title elementor-size-default\">Atypical Rett Syndrome<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-914fcd3 elementor-widget__width-auto elementor-widget elementor-widget-heading\" data-id=\"914fcd3\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h4 class=\"elementor-heading-title elementor-size-default\">OMIM #300260<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-4b63ea4 elementor-widget__width-auto elementor-widget elementor-widget-heading\" data-id=\"4b63ea4\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h4 class=\"elementor-heading-title elementor-size-default\">Xq28-duplication<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-ac8d779 elementor-widget__width-auto elementor-widget elementor-widget-heading\" data-id=\"ac8d779\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h4 class=\"elementor-heading-title elementor-size-default\">MRXSL<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-ff279cf e-con-full e-flex e-con e-child\" data-id=\"ff279cf\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-5e3bdee elementor-widget elementor-widget-heading\" data-id=\"5e3bdee\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h5 class=\"elementor-heading-title elementor-size-default\"><a href=\"https:\/\/remeds.org\/mecp2-duplication-syndrome\/\">Find out more<\/a><\/h5>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-77b007a elementor-view-default elementor-widget elementor-widget-icon\" data-id=\"77b007a\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"icon.default\">\n\t\t\t\t\t\t\t<div class=\"elementor-icon-wrapper\">\n\t\t\t<div class=\"elementor-icon\">\n\t\t\t<svg aria-hidden=\"true\" class=\"e-font-icon-svg e-fas-arrow-right\" viewBox=\"0 0 448 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M190.5 66.9l22.2-22.2c9.4-9.4 24.6-9.4 33.9 0L441 239c9.4 9.4 9.4 24.6 0 33.9L246.6 467.3c-9.4 9.4-24.6 9.4-33.9 0l-22.2-22.2c-9.5-9.5-9.3-25 .4-34.3L311.4 296H24c-13.3 0-24-10.7-24-24v-32c0-13.3 10.7-24 24-24h287.4L190.9 101.2c-9.8-9.3-10-24.8-.4-34.3z\"><\/path><\/svg>\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-4ac71c7 e-flex e-con-boxed e-con e-parent\" data-id=\"4ac71c7\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-1496581 elementor-widget elementor-widget-heading\" data-id=\"1496581\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Hardfacts<\/h2>\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-290a6c5 e-con-full e-grid e-con e-child\" data-id=\"290a6c5\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t<div class=\"elementor-element elementor-element-d51d644 e-con-full e-flex e-con e-child\" data-id=\"d51d644\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-e614ab5 elementor-widget elementor-widget-heading\" data-id=\"e614ab5\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">Over 6000<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-9355414 elementor-widget elementor-widget-heading\" data-id=\"9355414\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h4 class=\"elementor-heading-title elementor-size-default\">known rare diseases<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-a89e67b elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"a89e67b\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-2c505a2 elementor-widget elementor-widget-text-editor\" data-id=\"2c505a2\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p>MECP2 Duplication Syndrome is one of these rare diseases.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-c9be69e elementor-widget elementor-widget-heading\" data-id=\"c9be69e\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<p class=\"elementor-heading-title elementor-size-default\">WHO<\/p>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-7a26c52 e-con-full e-flex e-con e-child\" data-id=\"7a26c52\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-8ef7c41 elementor-widget elementor-widget-heading\" data-id=\"8ef7c41\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">1 in 100 000<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-26cd57a elementor-widget elementor-widget-heading\" data-id=\"26cd57a\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h4 class=\"elementor-heading-title elementor-size-default\">males born with MDS<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-64d34f9 elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"64d34f9\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-27fbfec elementor-widget elementor-widget-text-editor\" data-id=\"27fbfec\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p>MECP2 Duplication Syndrome is caused by the duplication of genetic material on the X-chromosome. Although there are some cases in females, MDS commonly affects males.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-d46c932 elementor-widget elementor-widget-heading\" data-id=\"d46c932\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<p class=\"elementor-heading-title elementor-size-default\"><a href=\"https:\/\/pmc.ncbi.nlm.nih.gov\/articles\/PMC8939085\/\">A brief history of MECP2 duplication syndrome: 20 years of clinical understanding, Daniel Ta et al., Orphanet J Rare Dis 17, 131 (2022)<\/a><\/p>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-9784008 e-con-full e-flex e-con e-child\" data-id=\"9784008\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-7d74b3b elementor-widget elementor-widget-heading\" data-id=\"7d74b3b\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">2005<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-2b09c58 elementor-widget elementor-widget-heading\" data-id=\"2b09c58\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h4 class=\"elementor-heading-title elementor-size-default\">Discovery of  MECP2 duplication<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-6695fc6 elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"6695fc6\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-f927cf6 elementor-widget elementor-widget-text-editor\" data-id=\"f927cf6\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p>Dr. Van Esch made the correlation between MECP2 gene duplication and intellectual disability in 2005.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-88d9057 elementor-widget elementor-widget-heading\" data-id=\"88d9057\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<p class=\"elementor-heading-title elementor-size-default\"><a href=\"https:\/\/pubmed.ncbi.nlm.nih.gov\/22679399\/\">MECP2 duplication syndrome, Hilde Van Esch, \n Mol. Syndromol. 2, 128-136 (2011)<\/a><\/p>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-4e35516 e-con-full e-flex e-con e-child\" data-id=\"4e35516\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-4a8ca5a elementor-widget elementor-widget-heading\" data-id=\"4a8ca5a\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">4<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-2dfd8c5 elementor-widget elementor-widget-heading\" data-id=\"2dfd8c5\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h4 class=\"elementor-heading-title elementor-size-default\">Research projects<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-5942247 elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"5942247\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-9b108bd elementor-widget elementor-widget-text-editor\" data-id=\"9b108bd\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p>Researchers around the world are working hard to find innovative technologies to cure MECP2 duplication syndrome.\u00a0<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-6876526 elementor-widget elementor-widget-heading\" data-id=\"6876526\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<p class=\"elementor-heading-title elementor-size-default\"><a href=\"https:\/\/dupmecp2.eu\/\">www.dupmecp2.eu<\/a><\/p>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-5ad00bb e-con-full e-flex e-con e-child\" data-id=\"5ad00bb\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-765c66a elementor-widget elementor-widget-heading\" data-id=\"765c66a\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">2<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-56cd9ef elementor-widget elementor-widget-heading\" data-id=\"56cd9ef\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h4 class=\"elementor-heading-title elementor-size-default\">Innovative technologies in clinical trials<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-db470df elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"db470df\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-9b15082 elementor-widget elementor-widget-text-editor\" data-id=\"9b15082\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p><span class=\"TextRun MacChromeBold SCXP204514931 BCX0\" lang=\"DE-AT\" xml:lang=\"DE-AT\" data-scheme-color=\"@000000,13,\" data-usefontface=\"true\" data-contrast=\"none\"><span class=\"NormalTextRun SCXP204514931 BCX0\">The <\/span><\/span><span class=\"TextRun MacChromeBold SpellingErrorZoomed SCXP204514931 BCX0\" lang=\"DE-AT\" xml:lang=\"DE-AT\" data-scheme-color=\"@000000,13,\" data-usefontface=\"true\" data-contrast=\"none\"><span class=\"SCXP204514931 BCX0\">first<\/span><\/span> <span class=\"TextRun MacChromeBold SpellingErrorZoomed SCXP204514931 BCX0\" lang=\"DE-AT\" xml:lang=\"DE-AT\" data-scheme-color=\"@000000,13,\" data-usefontface=\"true\" data-contrast=\"none\"><span class=\"SCXP204514931 BCX0\">clinical<\/span><\/span><span class=\"TextRun MacChromeBold SCXP204514931 BCX0\" lang=\"DE-AT\" xml:lang=\"DE-AT\" data-scheme-color=\"@000000,13,\" data-usefontface=\"true\" data-contrast=\"none\"><span class=\"NormalTextRun SCXP204514931 BCX0\"> trial <\/span><\/span><span class=\"TextRun MacChromeBold SpellingErrorZoomed SCXP204514931 BCX0\" lang=\"DE-AT\" xml:lang=\"DE-AT\" data-scheme-color=\"@000000,13,\" data-usefontface=\"true\" data-contrast=\"none\"><span class=\"SCXP204514931 BCX0\">for<\/span><\/span><span class=\"TextRun MacChromeBold SCXP204514931 BCX0\" lang=\"DE-AT\" xml:lang=\"DE-AT\" data-scheme-color=\"@000000,13,\" data-usefontface=\"true\" data-contrast=\"none\"><span class=\"NormalTextRun SCXP204514931 BCX0\"> MECP2 D<\/span><\/span><span class=\"TextRun MacChromeBold SpellingErrorZoomed SCXP204514931 BCX0\" lang=\"DE-AT\" xml:lang=\"DE-AT\" data-scheme-color=\"@000000,13,\" data-usefontface=\"true\" data-contrast=\"none\"><span class=\"SCXP204514931 BCX0\">uplication<\/span><\/span> S<span class=\"TextRun MacChromeBold SpellingErrorZoomed SCXP204514931 BCX0\" lang=\"DE-AT\" xml:lang=\"DE-AT\" data-scheme-color=\"@000000,13,\" data-usefontface=\"true\" data-contrast=\"none\"><span class=\"SCXP204514931 BCX0\">yndrome<\/span><\/span><span class=\"TextRun MacChromeBold SCXP204514931 BCX0\" lang=\"DE-AT\" xml:lang=\"DE-AT\" data-scheme-color=\"@000000,13,\" data-usefontface=\"true\" data-contrast=\"none\"><span class=\"NormalTextRun SCXP204514931 BCX0\"> was <\/span><\/span><span class=\"TextRun MacChromeBold SpellingErrorZoomed SCXP204514931 BCX0\" lang=\"DE-AT\" xml:lang=\"DE-AT\" data-scheme-color=\"@000000,13,\" data-usefontface=\"true\" data-contrast=\"none\"><span class=\"SCXP204514931 BCX0\">launched<\/span><\/span><span class=\"TextRun MacChromeBold SCXP204514931 BCX0\" lang=\"DE-AT\" xml:lang=\"DE-AT\" data-scheme-color=\"@000000,13,\" data-usefontface=\"true\" data-contrast=\"none\"><span class=\"NormalTextRun SCXP204514931 BCX0\"> in 2024 <\/span><\/span><span class=\"TextRun MacChromeBold SpellingErrorZoomed SCXP204514931 BCX0\" lang=\"DE-AT\" xml:lang=\"DE-AT\" data-scheme-color=\"@000000,13,\" data-usefontface=\"true\" data-contrast=\"none\"><span class=\"SCXP204514931 BCX0\">by<\/span><\/span> <span class=\"TextRun MacChromeBold SpellingErrorZoomed SCXP204514931 BCX0\" lang=\"DE-AT\" xml:lang=\"DE-AT\" data-scheme-color=\"@000000,13,\" data-usefontface=\"true\" data-contrast=\"none\"><span class=\"SCXP204514931 BCX0\">HuidaGene<\/span><\/span><span class=\"TextRun MacChromeBold SCXP204514931 BCX0\" lang=\"DE-AT\" xml:lang=\"DE-AT\" data-scheme-color=\"@000000,13,\" data-usefontface=\"true\" data-contrast=\"none\"><span class=\"NormalTextRun SCXP204514931 BCX0\"> in China, <\/span><\/span><span class=\"TextRun MacChromeBold SpellingErrorZoomed SCXP204514931 BCX0\" lang=\"DE-AT\" xml:lang=\"DE-AT\" data-scheme-color=\"@000000,13,\" data-usefontface=\"true\" data-contrast=\"none\"><span class=\"SCXP204514931 BCX0\">using<\/span><\/span><span class=\"TextRun MacChromeBold SCXP204514931 BCX0\" lang=\"DE-AT\" xml:lang=\"DE-AT\" data-scheme-color=\"@000000,13,\" data-usefontface=\"true\" data-contrast=\"none\"><span class=\"NormalTextRun SCXP204514931 BCX0\"> a CRISPR-<\/span><\/span><span class=\"TextRun MacChromeBold SCXP204514931 BCX0\" lang=\"DE-AT\" xml:lang=\"DE-AT\" data-scheme-color=\"@000000,13,\" data-usefontface=\"true\" data-contrast=\"none\"><span class=\"NormalTextRun SCXP204514931 BCX0\">Cas13\u2013<\/span><\/span><span class=\"TextRun MacChromeBold SpellingErrorZoomed SCXP204514931 BCX0\" lang=\"DE-AT\" xml:lang=\"DE-AT\" data-scheme-color=\"@000000,13,\" data-usefontface=\"true\" data-contrast=\"none\"><span class=\"SCXP204514931 BCX0\">derived<\/span><\/span> <span class=\"TextRun MacChromeBold SpellingErrorZoomed SCXP204514931 BCX0\" lang=\"DE-AT\" xml:lang=\"DE-AT\" data-scheme-color=\"@000000,13,\" data-usefontface=\"true\" data-contrast=\"none\"><span class=\"SCXP204514931 BCX0\">drug<\/span><\/span><span class=\"TextRun MacChromeBold SCXP204514931 BCX0\" lang=\"DE-AT\" xml:lang=\"DE-AT\" data-scheme-color=\"@000000,13,\" data-usefontface=\"true\" data-contrast=\"none\"><span class=\"NormalTextRun SCXP204514931 BCX0\">. <\/span><\/span><span class=\"TextRun MacChromeBold SpellingErrorZoomed SCXP204514931 BCX0\" lang=\"DE-AT\" xml:lang=\"DE-AT\" data-scheme-color=\"@000000,13,\" data-usefontface=\"true\" data-contrast=\"none\"><span class=\"SCXP204514931 BCX0\">Shortly<\/span><\/span><span class=\"TextRun MacChromeBold SCXP204514931 BCX0\" lang=\"DE-AT\" xml:lang=\"DE-AT\" data-scheme-color=\"@000000,13,\" data-usefontface=\"true\" data-contrast=\"none\"><span class=\"NormalTextRun SCXP204514931 BCX0\"> after, an antisense <\/span><\/span><span class=\"TextRun MacChromeBold SpellingErrorZoomed SCXP204514931 BCX0\" lang=\"DE-AT\" xml:lang=\"DE-AT\" data-scheme-color=\"@000000,13,\" data-usefontface=\"true\" data-contrast=\"none\"><span class=\"SCXP204514931 BCX0\">oligonucleotide<\/span><\/span> <span class=\"TextRun MacChromeBold SpellingErrorZoomed SCXP204514931 BCX0\" lang=\"DE-AT\" xml:lang=\"DE-AT\" data-scheme-color=\"@000000,13,\" data-usefontface=\"true\" data-contrast=\"none\"><span class=\"SCXP204514931 BCX0\">developed<\/span><\/span> <span class=\"TextRun MacChromeBold SpellingErrorZoomed SCXP204514931 BCX0\" lang=\"DE-AT\" xml:lang=\"DE-AT\" data-scheme-color=\"@000000,13,\" data-usefontface=\"true\" data-contrast=\"none\"><span class=\"SCXP204514931 BCX0\">by<\/span><\/span> <span class=\"TextRun MacChromeBold SpellingErrorZoomed SCXP204514931 BCX0\" lang=\"DE-AT\" xml:lang=\"DE-AT\" data-scheme-color=\"@000000,13,\" data-usefontface=\"true\" data-contrast=\"none\"><span class=\"SCXP204514931 BCX0\">Ionis<\/span><\/span><span class=\"TextRun MacChromeBold SCXP204514931 BCX0\" lang=\"DE-AT\" xml:lang=\"DE-AT\" data-scheme-color=\"@000000,13,\" data-usefontface=\"true\" data-contrast=\"none\"><span class=\"NormalTextRun SCXP204514931 BCX0\"> was <\/span><\/span><span class=\"TextRun MacChromeBold SpellingErrorZoomed SCXP204514931 BCX0\" lang=\"DE-AT\" xml:lang=\"DE-AT\" data-scheme-color=\"@000000,13,\" data-usefontface=\"true\" data-contrast=\"none\"><span class=\"SCXP204514931 BCX0\">administered<\/span><\/span> <span class=\"TextRun MacChromeBold SpellingErrorZoomed SCXP204514931 BCX0\" lang=\"DE-AT\" xml:lang=\"DE-AT\" data-scheme-color=\"@000000,13,\" data-usefontface=\"true\" data-contrast=\"none\"><span class=\"SCXP204514931 BCX0\">to<\/span><\/span> <span class=\"TextRun MacChromeBold SpellingErrorZoomed SCXP204514931 BCX0\" lang=\"DE-AT\" xml:lang=\"DE-AT\" data-scheme-color=\"@000000,13,\" data-usefontface=\"true\" data-contrast=\"none\"><span class=\"SCXP204514931 BCX0\">humans<\/span><\/span> <span class=\"TextRun MacChromeBold SpellingErrorZoomed SCXP204514931 BCX0\" lang=\"DE-AT\" xml:lang=\"DE-AT\" data-scheme-color=\"@000000,13,\" data-usefontface=\"true\" data-contrast=\"none\"><span class=\"SCXP204514931 BCX0\">for<\/span><\/span> <span class=\"TextRun MacChromeBold SpellingErrorZoomed SCXP204514931 BCX0\" lang=\"DE-AT\" xml:lang=\"DE-AT\" data-scheme-color=\"@000000,13,\" data-usefontface=\"true\" data-contrast=\"none\"><span class=\"SCXP204514931 BCX0\">the<\/span><\/span> <span class=\"TextRun MacChromeBold SpellingErrorZoomed SCXP204514931 BCX0\" lang=\"DE-AT\" xml:lang=\"DE-AT\" data-scheme-color=\"@000000,13,\" data-usefontface=\"true\" data-contrast=\"none\"><span class=\"SCXP204514931 BCX0\">first<\/span><\/span><span class=\"TextRun MacChromeBold SCXP204514931 BCX0\" lang=\"DE-AT\" xml:lang=\"DE-AT\" data-scheme-color=\"@000000,13,\" data-usefontface=\"true\" data-contrast=\"none\"><span class=\"NormalTextRun SCXP204514931 BCX0\"> time in <\/span><\/span><span class=\"TextRun MacChromeBold SpellingErrorZoomed SCXP204514931 BCX0\" lang=\"DE-AT\" xml:lang=\"DE-AT\" data-scheme-color=\"@000000,13,\" data-usefontface=\"true\" data-contrast=\"none\"><span class=\"SCXP204514931 BCX0\">the<\/span><\/span><span class=\"TextRun MacChromeBold SCXP204514931 BCX0\" lang=\"DE-AT\" xml:lang=\"DE-AT\" data-scheme-color=\"@000000,13,\" data-usefontface=\"true\" data-contrast=\"none\"><span class=\"NormalTextRun SCXP204514931 BCX0\"> US.<\/span><\/span><span class=\"EOP SCXP204514931 BCX0\">\u200b<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-1c966b4 elementor-widget elementor-widget-heading\" data-id=\"1c966b4\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<p class=\"elementor-heading-title elementor-size-default\"><a href=\"https:\/\/clinicaltrials.gov\/search?cond=Mecp2%20Duplication%20Syndrome\">www.clinicaltrials.gov<\/a><\/p>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-b359917 e-con-full e-flex e-con e-child\" data-id=\"b359917\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-a6ad630 elementor-widget elementor-widget-heading\" data-id=\"a6ad630\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">2015<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-e46e41e elementor-widget elementor-widget-heading\" data-id=\"e46e41e\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h4 class=\"elementor-heading-title elementor-size-default\">First proof of reversibility<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-0424348 elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"0424348\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-6d5fdf1 elementor-widget elementor-widget-text-editor\" data-id=\"6d5fdf1\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p>Dr. Zogbhi proved that the symptoms of MECP2 Duplication Syndrome can be reversed by administration of antisense oligonucleotides in mice.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-7c49185 elementor-widget elementor-widget-heading\" data-id=\"7c49185\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<p class=\"elementor-heading-title elementor-size-default\"><a href=\"https:\/\/www.nature.com\/articles\/nature16159\">Reversal of phenotypes in MECP2 duplication mice using genetic rescue or antisense oligonucleotides, Huda Zoghbi et al., Nature 528, 123\u2013126 (2015)<\/a><\/p>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-0d7a77d e-flex e-con-boxed e-con e-parent\" data-id=\"0d7a77d\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;gradient&quot;}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-c911c60 elementor-widget elementor-widget-heading\" data-id=\"c911c60\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">The register<\/h2>\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-c76f787 e-con-full e-flex e-con e-child\" data-id=\"c76f787\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t<div class=\"elementor-element elementor-element-ec4191c e-con-full e-flex e-con e-child\" data-id=\"ec4191c\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-f854fbd elementor-widget elementor-widget-video\" data-id=\"f854fbd\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;youtube_url&quot;:&quot;https:\\\/\\\/www.youtube.com\\\/watch?v=8Q4Yizjlm6w&quot;,&quot;video_type&quot;:&quot;youtube&quot;,&quot;controls&quot;:&quot;yes&quot;}\" data-widget_type=\"video.default\">\n\t\t\t\t\t\t\t<div class=\"elementor-wrapper elementor-open-inline\">\n\t\t\t<div class=\"elementor-video\"><\/div>\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-76eb5b5 elementor-widget elementor-widget-heading\" data-id=\"76eb5b5\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h5 class=\"elementor-heading-title elementor-size-default\">REMEDS explained by Dr. Gr\u00f6ppel from Kepler university hospital<\/h5>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-ab6655f e-con-full e-flex e-con e-child\" data-id=\"ab6655f\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-0babaa0 elementor-widget elementor-widget-text-editor\" data-id=\"0babaa0\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<h4 class=\"brxe-block\"><strong>What is REMEDS?<\/strong><\/h4><p>REMEDS is a specialised register and medical survey platform focused on MECP2 Duplication Syndrome. It ensures the highest standards of security and privacy for patient data, with GDPR-compliant storage on a European server. All data is anonymized and encrypted.<\/p><div id=\"brxe-wqckfl\" class=\"brxe-block\"><h4><strong>How does REMEDS work?<\/strong><\/h4><p>Each registration is reviewed and validated by a dedicated REMEDS doctor ensuring that all patients have MECP2 Duplication Syndrome.<\/p><p>Once a diagnosis is confirmed by our doctor, caregivers receive notifications about scientific news and are invited to participate in surveys designed by pharmaceutical companies, scientists, and healthcare professionals.<\/p><\/div><h4 id=\"brxe-oqpitd\" class=\"brxe-block\"><strong>Why joining REMEDS?<\/strong><\/h4><p class=\"brxe-block\">By participating, you contribute to improving the understanding and treatment of MECP2 Duplication Syndrome. Your involvement helps to accelerate the development of new therapies and enhances the quality of care for all affected children. Additionally, you gain access to a supportive community and stay informed about the latest scientific advancements and research findings. By sharing your experiences and data, you play a crucial role in shaping the future of medical research and patient care for MECP2 Duplication Syndrome.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-34f12c9 e-con-full e-flex e-con e-child\" data-id=\"34f12c9\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-7baef73 elementor-widget elementor-widget-heading\" data-id=\"7baef73\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h5 class=\"elementor-heading-title elementor-size-default\"><a href=\"https:\/\/remeds.org\/about-remeds\/\">Find out more<\/a><\/h5>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-abe239c elementor-view-default elementor-widget elementor-widget-icon\" data-id=\"abe239c\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"icon.default\">\n\t\t\t\t\t\t\t<div class=\"elementor-icon-wrapper\">\n\t\t\t<a class=\"elementor-icon\" href=\"https:\/\/remeds.org\/about-remeds\/\">\n\t\t\t<svg aria-hidden=\"true\" class=\"e-font-icon-svg e-fas-arrow-right\" viewBox=\"0 0 448 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M190.5 66.9l22.2-22.2c9.4-9.4 24.6-9.4 33.9 0L441 239c9.4 9.4 9.4 24.6 0 33.9L246.6 467.3c-9.4 9.4-24.6 9.4-33.9 0l-22.2-22.2c-9.5-9.5-9.3-25 .4-34.3L311.4 296H24c-13.3 0-24-10.7-24-24v-32c0-13.3 10.7-24 24-24h287.4L190.9 101.2c-9.8-9.3-10-24.8-.4-34.3z\"><\/path><\/svg>\t\t\t<\/a>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-b497bb8 e-con-full e-flex e-con e-child\" data-id=\"b497bb8\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-bb3acf6 elementor-widget elementor-widget-heading\" data-id=\"bb3acf6\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Key steps in REMEDS<\/h2>\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-8ea2a88 e-con-full e-grid e-con e-child\" data-id=\"8ea2a88\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t<div class=\"elementor-element elementor-element-297bd03 e-con-full e-flex e-con e-child\" data-id=\"297bd03\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-46e92bc elementor-widget elementor-widget-heading\" data-id=\"46e92bc\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<p class=\"elementor-heading-title elementor-size-default\">01<\/p>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-78c10c2 elementor-widget elementor-widget-heading\" data-id=\"78c10c2\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">Create an account<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-1f31a04 elementor-widget elementor-widget-text-editor\" data-id=\"1f31a04\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p>Sign in to a private space using multifactor authentication tools.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-fa7cb45 e-con-full e-flex e-con e-child\" data-id=\"fa7cb45\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-cb347c3 elementor-widget elementor-widget-heading\" data-id=\"cb347c3\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<p class=\"elementor-heading-title elementor-size-default\">02<\/p>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-c148b9e elementor-widget elementor-widget-heading\" data-id=\"c148b9e\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">Register a patient\n<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-9c1ced2 elementor-widget elementor-widget-text-editor\" data-id=\"9c1ced2\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<div id=\"brxe-uymlbq\" class=\"brxe-block\"><p>Provide detailed patient information and attach proof of diagnosis, for validation by REMEDS doctor.<\/p><\/div>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-8dc51a0 e-con-full e-flex e-con e-child\" data-id=\"8dc51a0\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-c279534 elementor-widget elementor-widget-heading\" data-id=\"c279534\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<p class=\"elementor-heading-title elementor-size-default\">03<\/p>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-e687855 elementor-widget elementor-widget-heading\" data-id=\"e687855\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">Registration successful \u00a0<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-9a6f877 elementor-widget elementor-widget-text-editor\" data-id=\"9a6f877\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<div id=\"brxe-pumhlk\" class=\"brxe-block\"><p>Once validated, access the platform and manage your patient information.<\/p><\/div>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-c0302b7 e-con-full e-flex e-con e-child\" data-id=\"c0302b7\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-3443042 elementor-widget elementor-widget-heading\" data-id=\"3443042\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<p class=\"elementor-heading-title elementor-size-default\">04<\/p>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-0d60ebf elementor-widget elementor-widget-heading\" data-id=\"0d60ebf\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">Get started <\/h3>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-6430ceb elementor-widget elementor-widget-text-editor\" data-id=\"6430ceb\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<section id=\"brxe-ixcyed\" class=\"brxe-section\"><div id=\"brxe-tcderi\" class=\"brxe-container brx-grid\"><div id=\"brxe-sypfqn\" class=\"brxe-block\"><p>Access and participate in open surveys, view the history of actions, and contribute to ongoing research efforts.<\/p><\/div><\/div><\/section>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-ebc6e05 e-flex e-con-boxed e-con e-parent\" data-id=\"ebc6e05\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-21ab9f1 elementor-widget elementor-widget-heading\" data-id=\"21ab9f1\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Do you have a MECP2 Duplication Syndrome diagnosis?<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-6f6cbfd elementor-widget__width-auto elementor-widget elementor-widget-jet-engine-component-400\" data-id=\"6f6cbfd\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"jet-engine-component-400.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<style>.elementor-400 .elementor-element.elementor-element-6b9166f{--display:flex;--flex-direction:row;--container-widget-width:calc( ( 1 - var( --container-widget-flex-grow ) ) * 100% );--container-widget-height:100%;--container-widget-flex-grow:1;--container-widget-align-self:stretch;--flex-wrap-mobile:wrap;--justify-content:flex-start;--align-items:center;--border-radius:36px 36px 36px 36px;--margin-top:0px;--margin-bottom:0px;--margin-left:0px;--margin-right:0px;--padding-top:10px;--padding-bottom:12px;--padding-left:13px;--padding-right:13px;}.elementor-400 .elementor-element.elementor-element-6b9166f:not(.elementor-motion-effects-element-type-background), .elementor-400 .elementor-element.elementor-element-6b9166f > .elementor-motion-effects-container > .elementor-motion-effects-layer{background-color:var( --e-global-color-9b83194 );}.elementor-400 .elementor-element.elementor-element-6b9166f.e-con{--align-self:flex-start;--order:-99999 \/* order start hack *\/;}.elementor-widget-heading .elementor-heading-title{font-family:var( --e-global-typography-primary-font-family ), Sans-serif;font-weight:var( --e-global-typography-primary-font-weight );color:var( --e-global-color-primary );}.elementor-400 .elementor-element.elementor-element-c258b9a .elementor-heading-title{font-family:\"Mulish\", Sans-serif;font-size:1.2rem;font-weight:600;color:var( --e-global-color-primary );}.elementor-400 .elementor-element.elementor-element-c0331a6{--display:flex;--flex-direction:row;--container-widget-width:initial;--container-widget-height:100%;--container-widget-flex-grow:1;--container-widget-align-self:stretch;--flex-wrap-mobile:wrap;--margin-top:-4px;--margin-bottom:0px;--margin-left:0px;--margin-right:0px;}.elementor-widget-icon.elementor-view-stacked .elementor-icon{background-color:var( --e-global-color-primary );}.elementor-widget-icon.elementor-view-framed .elementor-icon, .elementor-widget-icon.elementor-view-default .elementor-icon{color:var( --e-global-color-primary );border-color:var( --e-global-color-primary );}.elementor-widget-icon.elementor-view-framed .elementor-icon, .elementor-widget-icon.elementor-view-default .elementor-icon svg{fill:var( --e-global-color-primary );}.elementor-400 .elementor-element.elementor-element-150af24 .elementor-icon-wrapper{text-align:center;}.elementor-400 .elementor-element.elementor-element-150af24.elementor-view-stacked .elementor-icon{background-color:var( --e-global-color-primary );}.elementor-400 .elementor-element.elementor-element-150af24.elementor-view-framed .elementor-icon, .elementor-400 .elementor-element.elementor-element-150af24.elementor-view-default .elementor-icon{color:var( --e-global-color-primary );border-color:var( --e-global-color-primary );}.elementor-400 .elementor-element.elementor-element-150af24.elementor-view-framed .elementor-icon, .elementor-400 .elementor-element.elementor-element-150af24.elementor-view-default .elementor-icon svg{fill:var( --e-global-color-primary );}.elementor-400 .elementor-element.elementor-element-150af24 .elementor-icon{font-size:30px;}.elementor-400 .elementor-element.elementor-element-150af24 .elementor-icon svg{height:30px;}.elementor-400 .elementor-element.elementor-element-150af24{margin:0px 0px calc(var(--kit-widget-spacing, 0px) + -5px) -5px;top:-1px;}body:not(.rtl) .elementor-400 .elementor-element.elementor-element-150af24{left:0px;}body.rtl .elementor-400 .elementor-element.elementor-element-150af24{right:0px;}.elementor-400 .elementor-element.elementor-element-fd98fa4 .elementor-icon-wrapper{text-align:center;}.elementor-400 .elementor-element.elementor-element-fd98fa4 .elementor-icon{font-size:14px;}.elementor-400 .elementor-element.elementor-element-fd98fa4 .elementor-icon svg{height:14px;}.elementor-400 .elementor-element.elementor-element-fd98fa4{margin:0px 0px calc(var(--kit-widget-spacing, 0px) + 0px) -4px;top:4px;}body:not(.rtl) .elementor-400 .elementor-element.elementor-element-fd98fa4{left:8px;}body.rtl .elementor-400 .elementor-element.elementor-element-fd98fa4{right:8px;}@media(min-width:768px){.elementor-400 .elementor-element.elementor-element-c0331a6{--width:auto;}}@media(max-width:767px){.elementor-400 .elementor-element.elementor-element-6b9166f{--width:auto;--align-items:flex-start;--container-widget-width:calc( ( 1 - var( --container-widget-flex-grow ) ) * 100% );--flex-wrap:nowrap;}.elementor-400 .elementor-element.elementor-element-c258b9a{width:var( --container-widget-width, 439px );max-width:439px;--container-widget-width:439px;--container-widget-flex-grow:0;}.elementor-400 .elementor-element.elementor-element-c0331a6{--width:20px;}}\/* Start custom CSS for container, class: .elementor-element-6b9166f *\/.button-main{rn  rn  transition: transform 0.3s ease;rn  rn}rnrn.button-main:hover .icon-btn-bg {rn        transform: translate( -1px , 0 ) rotate(180deg);rn        transform-origin: center;rn   ttttransition: transform 0.4s ease;rn    }rnrn.button-main:hover .button-main-text{rn  text-decoration: underline #ffffff65;rn  rn}rn.icon-btn-bg {rn  rn  transition: transform 0.6s ease;rn  rn}\/* End custom CSS *\/<\/style>\t\t<div data-elementor-type=\"jet-engine-component\" data-elementor-id=\"400\" class=\"elementor elementor-400 jet-listing-grid--400 jet-component-instance-3705\" data-elementor-post-type=\"jet-engine\" style=\"\">\n\t\t\t\t<a class=\"elementor-element elementor-element-6b9166f e-con-full button-main e-flex e-con e-child\" data-id=\"6b9166f\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\" href=\"https:\/\/remeds.org\/account\/patients\/\">\n\t\t\t\t<div class=\"elementor-element elementor-element-c258b9a elementor-widget-mobile__width-initial elementor-widget elementor-widget-heading\" data-id=\"c258b9a\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Register a patient<\/h2>\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-c0331a6 e-con-full e-flex e-con e-child\" data-id=\"c0331a6\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-150af24 elementor-absolute icon-btn-bg elementor-view-default elementor-widget elementor-widget-icon\" data-id=\"150af24\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;_position&quot;:&quot;absolute&quot;}\" data-widget_type=\"icon.default\">\n\t\t\t\t\t\t\t<div class=\"elementor-icon-wrapper\">\n\t\t\t<div class=\"elementor-icon\">\n\t\t\t<svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" xmlns:xlink=\"http:\/\/www.w3.org\/1999\/xlink\" xmlns:serif=\"http:\/\/www.serif.com\/\" width=\"100%\" height=\"100%\" viewBox=\"0 0 29 28\" xml:space=\"preserve\" style=\"fill-rule:evenodd;clip-rule:evenodd;stroke-linejoin:round;stroke-miterlimit:2;\"> <g transform=\"matrix(1,0,0,1,-946,-526.35)\"> <g transform=\"matrix(1,0,0,1,946,526)\"> <path d=\"M27.756,12.484C28.491,15.695 27.556,19.032 25.053,21.876C22.588,24.691 18.556,27.014 14,27.534C9.444,28.085 5.412,26.631 2.947,23.902C0.444,21.191 -0.491,17.205 0.244,13.092C0.981,8.957 3.094,5.509 5.562,3.293C8.067,1.061 10.926,0.059 14,0.423C17.074,0.793 19.933,2.361 22.438,4.461C24.906,6.59 27.018,9.252 27.756,12.484L27.756,12.484Z\" style=\"fill:white;fill-rule:nonzero;\"><\/path> <\/g> <\/g> <\/svg>\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-fd98fa4 elementor-absolute elementor-view-default elementor-widget elementor-widget-icon\" data-id=\"fd98fa4\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;_position&quot;:&quot;absolute&quot;}\" data-widget_type=\"icon.default\">\n\t\t\t\t\t\t\t<div class=\"elementor-icon-wrapper\">\n\t\t\t<div class=\"elementor-icon\">\n\t\t\t<svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" xmlns:xlink=\"http:\/\/www.w3.org\/1999\/xlink\" xmlns:serif=\"http:\/\/www.serif.com\/\" width=\"100%\" height=\"100%\" viewBox=\"0 0 5 8\" xml:space=\"preserve\" style=\"fill-rule:evenodd;clip-rule:evenodd;stroke-linecap:round;stroke-linejoin:round;\"> <g transform=\"matrix(1,0,0,1,-958.3,-535.85)\"> <g transform=\"matrix(1,0,0,1,946,526)\"> <path d=\"M13.3,10.85L16.1,13.65L13.3,16.45\" style=\"fill:none;fill-rule:nonzero;stroke:rgb(24,37,52);stroke-width:2px;\"><\/path> <\/g> <\/g> <\/svg>\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-be13a5c e-flex e-con-boxed e-con e-parent\" data-id=\"be13a5c\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-159f03a e-con-full e-flex e-con e-child\" data-id=\"159f03a\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-ba5d944 elementor-widget elementor-widget-heading\" data-id=\"ba5d944\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">MECP2 organisations around the globe<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-cb741c9 elementor-widget elementor-widget-jet-engine-maps-listing\" data-id=\"cb741c9\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"jet-engine-maps-listing.default\">\n\t\t\t\t\t<div class=\"jet-map-listing jet-listing-grid--529 leaflet-provider\" data-init=\"{&quot;zoomControl&quot;:true,&quot;fullscreenControl&quot;:true,&quot;streetViewControl&quot;:true,&quot;mapTypeControl&quot;:true}\" 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13.774-29.93 13.773-39.464 0zM192 272c44.183 0 80-35.817 80-80s-35.817-80-80-80-80 35.817-80 80 35.817 80 80 80z\\&quot;&gt;&lt;\\\/path&gt;&lt;\\\/svg&gt;&lt;\\\/div&gt;&quot;},&quot;autoCenter&quot;:true,&quot;maxZoom&quot;:false,&quot;minZoom&quot;:false,&quot;customCenter&quot;:false,&quot;customZoom&quot;:11,&quot;popupPreloader&quot;:false,&quot;querySeparator&quot;:&quot;?&quot;,&quot;markerClustering&quot;:true,&quot;customClusterImg&quot;:[],&quot;clusterMaxZoom&quot;:&quot;&quot;,&quot;clusterRadius&quot;:&quot;&quot;,&quot;popupOpenOn&quot;:&quot;click&quot;,&quot;centeringOnOpen&quot;:false,&quot;zoomOnOpen&quot;:false,&quot;advanced&quot;:{&quot;zoom_control&quot;:&quot;auto&quot;,&quot;scrollwheel&quot;:true},&quot;user_location_enabled&quot;:false,&quot;user_location_marker&quot;:false,&quot;user_location_label&quot;:&quot;&quot;}\" data-listing-source=\"posts\" data-queried-id=\"13|WP_Post\"><\/div>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-664dae3 elementor-widget elementor-widget-jet-listing-grid\" data-id=\"664dae3\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;columns&quot;:&quot;2&quot;,&quot;columns_mobile&quot;:&quot;1&quot;}\" data-widget_type=\"jet-listing-grid.default\">\n\t\t\t\t\t<div class=\"jet-listing-grid jet-listing-grid--lazy-load jet-listing jet-listing-grid-loading\" data-lazy-load=\"{&quot;offset&quot;:&quot;0px&quot;,&quot;post_id&quot;:13,&quot;queried_id&quot;:&quot;13|WP_Post&quot;}\"><div class=\"jet-listing-grid__loader\"><div class=\"jet-listing-grid__loader-spinner\"><\/div><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-cf8faaa e-flex e-con-boxed e-con e-parent\" data-id=\"cf8faaa\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-bb39ccc elementor-widget elementor-widget-heading\" data-id=\"bb39ccc\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">They make REMEDS possible with us\n<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-110c57f elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"110c57f\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-ad6357b e-con-full e-grid e-con e-child\" data-id=\"ad6357b\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-f31d9dc elementor-widget elementor-widget-image\" data-id=\"f31d9dc\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/dupmecp2.eu\">\n\t\t\t\t\t\t\t<img fetchpriority=\"high\" decoding=\"async\" width=\"1536\" height=\"573\" src=\"https:\/\/remeds.org\/wp-content\/uploads\/2024\/08\/2022_Logo-mecp2_-transparent_avec-textes_ss-titre-lasst-uns_16nov-1536x573-1-1.png\" class=\"attachment-full size-full wp-image-207\" alt=\"\" srcset=\"https:\/\/remeds.org\/wp-content\/uploads\/2024\/08\/2022_Logo-mecp2_-transparent_avec-textes_ss-titre-lasst-uns_16nov-1536x573-1-1.png 1536w, https:\/\/remeds.org\/wp-content\/uploads\/2024\/08\/2022_Logo-mecp2_-transparent_avec-textes_ss-titre-lasst-uns_16nov-1536x573-1-1-300x112.png 300w, https:\/\/remeds.org\/wp-content\/uploads\/2024\/08\/2022_Logo-mecp2_-transparent_avec-textes_ss-titre-lasst-uns_16nov-1536x573-1-1-1024x382.png 1024w, https:\/\/remeds.org\/wp-content\/uploads\/2024\/08\/2022_Logo-mecp2_-transparent_avec-textes_ss-titre-lasst-uns_16nov-1536x573-1-1-768x287.png 768w\" sizes=\"(max-width: 1536px) 100vw, 1536px\" \/>\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-bedea9b elementor-widget elementor-widget-image\" data-id=\"bedea9b\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/www.jku.at\/\">\n\t\t\t\t\t\t\t<img decoding=\"async\" width=\"5230\" height=\"2498\" src=\"https:\/\/remeds.org\/wp-content\/uploads\/2024\/10\/JKU_Logo.svg\" class=\"attachment-full size-full wp-image-389\" alt=\"Johannes Kepler Universit\u00e4t Linz\" \/>\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-5f32a61 elementor-widget elementor-widget-image\" data-id=\"5f32a61\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/www.livanova.com\/en-us\">\n\t\t\t\t\t\t\t<img decoding=\"async\" width=\"1440\" height=\"420\" src=\"https:\/\/remeds.org\/wp-content\/uploads\/2024\/10\/livanova-logo.svg\" class=\"attachment-full size-full wp-image-388\" alt=\"Liva Nova\" \/>\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-6cd7d97 elementor-widget elementor-widget-image\" data-id=\"6cd7d97\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/ionis.com\/\">\n\t\t\t\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"768\" height=\"248\" src=\"https:\/\/remeds.org\/wp-content\/uploads\/2025\/06\/ionis-logo-768x248-1.png\" class=\"attachment-full size-full wp-image-3177\" alt=\"ionis logo\" 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data-widget_type=\"image.default\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/laminarsolutions.eu\">\n\t\t\t\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"666\" height=\"251\" src=\"https:\/\/remeds.org\/wp-content\/uploads\/2025\/05\/laminarsolutions.png\" class=\"attachment-full size-full wp-image-2901\" alt=\"\" srcset=\"https:\/\/remeds.org\/wp-content\/uploads\/2025\/05\/laminarsolutions.png 666w, https:\/\/remeds.org\/wp-content\/uploads\/2025\/05\/laminarsolutions-300x113.png 300w, https:\/\/remeds.org\/wp-content\/uploads\/2025\/05\/laminarsolutions-18x7.png 18w\" sizes=\"(max-width: 666px) 100vw, 666px\" \/>\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>REMEDS Register and Medical Surveys platform for MECP2 duplication syndrome Register a patient The MECP2 Duplication Syndrome MECP2 Duplication Syndrome is a rare and severe genetic disorder. The syndrome is mainly characterized by intellectual disability, hypotonia, lack of speech and seizures. The symptoms and their intensity vary from child to child. One syndrome, several names [&hellip;]<\/p>\n","protected":false},"author":73,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"elementor_header_footer","meta":{"_jf_save_progress":"","footnotes":""},"class_list":["post-13","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/remeds.org\/nl\/wp-json\/wp\/v2\/pages\/13","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/remeds.org\/nl\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/remeds.org\/nl\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/remeds.org\/nl\/wp-json\/wp\/v2\/users\/73"}],"replies":[{"embeddable":true,"href":"https:\/\/remeds.org\/nl\/wp-json\/wp\/v2\/comments?post=13"}],"version-history":[{"count":10,"href":"https:\/\/remeds.org\/nl\/wp-json\/wp\/v2\/pages\/13\/revisions"}],"predecessor-version":[{"id":3506,"href":"https:\/\/remeds.org\/nl\/wp-json\/wp\/v2\/pages\/13\/revisions\/3506"}],"wp:attachment":[{"href":"https:\/\/remeds.org\/nl\/wp-json\/wp\/v2\/media?parent=13"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}