{"id":3451,"date":"2025-07-20T15:20:10","date_gmt":"2025-07-20T13:20:10","guid":{"rendered":"https:\/\/remeds.org\/?page_id=3451"},"modified":"2025-07-24T09:04:05","modified_gmt":"2025-07-24T07:04:05","slug":"faq","status":"publish","type":"page","link":"https:\/\/remeds.org\/ja\/faq\/","title":{"rendered":"\u3088\u304f\u3042\u308b\u3054\u8cea\u554f"},"content":{"rendered":"<div data-elementor-type=\"wp-page\" data-elementor-id=\"3451\" class=\"elementor elementor-3451\" data-elementor-post-type=\"page\">\n\t\t\t\t<div class=\"elementor-element elementor-element-4dc92081 e-flex e-con-boxed e-con e-parent\" data-id=\"4dc92081\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-25e18ef elementor-widget elementor-widget-heading\" data-id=\"25e18ef\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h1 class=\"elementor-heading-title elementor-size-default\">REMEDS \u3088\u304f\u3042\u308b\u8cea\u554f - FAQ<\/h1>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-7dab555a elementor-widget elementor-widget-text-editor\" data-id=\"7dab555a\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<h3>1. <strong>REMEDS\u3068\u306f\uff1f<\/strong><\/h3>\n<p class=\"translation-block\">REMEDS\u306f\u3001\u5b89\u5168\u3001\u591a\u8a00\u8a9e\u3001\u305d\u3057\u3066EU\u4e00\u822c\u30c7\u30fc\u30bf\u4fdd\u8b77\u898f\u5247\u306b\u6e96\u62e0\u3057\u305f\u30d7\u30e9\u30c3\u30c8\u30d5\u30a9\u30fc\u30e0\u3067\u3042\u308a\u3001<strong>MECP2\u91cd\u8907\u75c7\u5019\u7fa4\uff08MDS\uff09<\/strong>\u306e\u8a3a\u65ad\u3092\u53d7\u3051\u305f\u500b\u4eba\u306e\u305f\u3081\u306e\u767b\u9332\u7c3f\u3067\u3059\u3002\u7814\u7a76\u3092\u652f\u63f4\u3057\u3001\u81e8\u5e8a\u7684\u7406\u89e3\u3092\u6df1\u3081\u3001MDS\u306e\u3088\u308a\u826f\u3044\u6cbb\u7642\u3092\u4fc3\u9032\u3059\u308b\u305f\u3081\u306b\u3001\u533b\u7642\u30c7\u30fc\u30bf\u3092\u53ce\u96c6\u3057\u3066\u3044\u307e\u3059\u3002<\/p>\n<h3>2. <strong>\u8ab0\u304cREMEDS\u3092\u5229\u7528\u3067\u304d\u307e\u3059\u304b\uff1f<\/strong><\/h3>\n<p>MDS\u60a3\u8005\u306e\u89aa\u5fa1\u69d8\u3001\u4ecb\u8b77\u8005\u3001\u6cd5\u5b9a\u5f8c\u898b\u4eba\u306f\u30a2\u30ab\u30a6\u30f3\u30c8\u3092\u4f5c\u6210\u3057\u3001\u60a3\u8005\u3055\u3093\u3092\u767b\u9332\u3059\u308b\u3053\u3068\u304c\u3067\u304d\u307e\u3059\u3002\u7814\u7a76\u8005\u3084\u533b\u7642\u5f93\u4e8b\u8005\u306f\u3001\u672c\u75c7\u306b\u3064\u3044\u3066\u3088\u308a\u8a73\u3057\u304f\u77e5\u308b\u305f\u3081\u306e\u627f\u8a8d\u3055\u308c\u305f\u7814\u7a76\u306e\u305f\u3081\u306b\u3001\u533f\u540d\u5316\u307e\u305f\u306f\u4eee\u540d\u5316\u3055\u308c\u305f\u30c7\u30fc\u30bf\u3078\u306e\u30a2\u30af\u30bb\u30b9\u3092\u7533\u8acb\u3059\u308b\u3053\u3068\u304c\u3067\u304d\u307e\u3059\u3002<\/p>\n<h3>3. <strong>\u3059\u3067\u306b\u4ed6\u306e\u767b\u9332\u7c3f\u3084\u7814\u7a76\u306b\u53c2\u52a0\u3057\u3066\u3044\u3066\u3082\u767b\u9332\u3067\u304d\u307e\u3059\u304b\uff1f<\/strong><\/h3>\n<p class=\"translation-block\">\u306f\u3044\uff01<strong>MECP2\u91cd\u8907\u75c7\u5019\u7fa4<\/strong>\u3068\u78ba\u5b9a\u8a3a\u65ad\u3055\u308c\u305f\u65b9\u3067\u3042\u308c\u3070\u3001\u5c45\u4f4f\u5730\u3084\u3001\u3059\u3067\u306b\u4ed6\u306e\u767b\u9332\u7c3f\u3084\u7814\u7a76\u306b\u53c2\u52a0\u3057\u3066\u3044\u308b\u304b\u5426\u304b\u306b\u304b\u304b\u308f\u3089\u305a\u3001\u3069\u306a\u305f\u3067\u3082REMEDS\u306b\u767b\u9332\u3067\u304d\u307e\u3059\u3002REMEDS\u3078\u306e\u53c2\u52a0\u306f\u4efb\u610f\u3067\u3059\u3002\u4ed6\u306e\u7814\u7a76\u3092\u59a8\u3052\u308b\u3082\u306e\u3067\u306f\u306a\u304f\u3001\u88dc\u5b8c\u3057\u5408\u3046\u3053\u3068\u3092\u76ee\u7684\u3068\u3057\u3066\u3044\u307e\u3059\u3002<\/p>\n<h3><strong>4.\u4ea1\u304f\u306a\u3063\u305f\u60a3\u8005\u3092\u767b\u9332\u3067\u304d\u307e\u3059\u304b\uff1f<\/strong><o:p><\/o:p><\/h3>\n\n<p data-start=\"386\" data-end=\"610\" class=\"translation-block\">\u306f\u3044\u3001\u53ef\u80fd\u3067\u3059\u3002\u305d\u3057\u3066\u3001\u63a8\u5968\u3044\u305f\u3057\u307e\u3059\u3002REMEDS\u306f\u3001MECP2\u91cd\u8907\u75c7\u5019\u7fa4\u306e\u5168\u4f53\u50cf\u3001\u4f8b\u3048\u3070\u3001\u4f55\u4eba\u306e\u4eba\u304c\u3053\u306e\u75c5\u6c17\u3068\u5171\u306b\u751f\u304d\u3066\u304d\u305f\u306e\u304b\u3001\u305d\u3057\u3066\u75c5\u6c17\u304c\u6642\u9593\u3068\u3068\u3082\u306b\u3069\u306e\u3088\u3046\u306b\u9032\u884c\u3057\u3066\u304d\u305f\u306e\u304b\u3092\u3088\u308a\u6df1\u304f\u7406\u89e3\u3059\u308b\u305f\u3081\u306b\u4f5c\u6210\u3055\u308c\u307e\u3057\u305f\u3002<\/p>\n\n<p data-start=\"612\" data-end=\"820\">\u3059\u3067\u306b\u4ea1\u304f\u306a\u3063\u305f\u60a3\u8005\u3055\u3093\u3092\u767b\u9332\u3059\u308b\u3053\u3068\u3067\u3001\u91cd\u8981\u306a\u81e8\u5e8a\u30c7\u30fc\u30bf\u3084\u907a\u4f1d\u30c7\u30fc\u30bf\u3092\u542b\u3081\u308b\u3053\u3068\u304c\u3067\u304d\u307e\u3059\u3002\u7814\u7a76\u8005\u304c\u5c06\u6765\u306e\u4e16\u4ee3\u306e\u305f\u3081\u306b\u3001\u50be\u5411\u3084\u5371\u967a\u56e0\u5b50\u3001\u305d\u3057\u3066\u6f5c\u5728\u7684\u306a\u6cbb\u7642\u6cd5\u3092\u898b\u3064\u3051\u308b\u624b\u52a9\u3051\u3068\u306a\u308a\u307e\u3059\u3002<o:p><\/o:p><\/p>\n\n<h3><span style=\"font-size: 1rem;\">\u3059\u3079\u3066\u306e\u60c5\u5831\u306f\u3001\u7814\u7a76\u30b3\u30df\u30e5\u30cb\u30c6\u30a3\u3084\u4ed6\u306e\u3054\u5bb6\u65cf\u306b\u3068\u3063\u3066\u8cb4\u91cd\u306a\u3082\u306e\u3068\u306a\u308a\u307e\u3059\u3002<\/span><\/h3><h3>5. <strong>\u53c2\u52a0\u8cbb\u306f\u304b\u304b\u308a\u307e\u3059\u304b\uff1f<\/strong><\/h3>\n<p>REMEDS\u3078\u306e\u53c2\u52a0\u306f\u7121\u6599\u3067\u3059\u3002\u3054\u767b\u9332\u3084\u30c7\u30fc\u30bf\u306e\u5165\u529b\u306b\u3001\u304a\u652f\u6255\u3044\u3084\u6255\u3044\u623b\u3057\u304c\u767a\u751f\u3059\u308b\u3053\u3068\u306f\u3042\u308a\u307e\u305b\u3093\u3002<\/p>\n<h3>6. <strong>\u3069\u306e\u3088\u3046\u306a\u30c7\u30fc\u30bf\u304c\u53ce\u96c6\u3055\u308c\u308b\u306e\u3067\u3059\u304b\uff1f<\/strong><\/h3>\n<p>REMEDS\u306f\u3001\u6b21\u306e\u3088\u3046\u306a\u30c7\u30fc\u30bf\u3092\u53ce\u96c6\u3059\u308b\u3053\u3068\u304c\u3042\u308a\u307e\u3059\uff1a<\/p>\n<ul>\n<li>\u57fa\u672c\u60c5\u5831\uff08\u6c0f\u540d\u3001\u751f\u5e74\u6708\u65e5\u3001\u56fd\u7c4d\u3001\u6027\u5225\u306a\u3069\uff09<\/li>\n<li>\u907a\u4f1d\u5b50\u5831\u544a\u66f8\uff08\u767b\u9332\u7528\uff09<\/li>\n<li>\u75c5\u6b74\u3001\u75c7\u72b6\u3001\u6cbb\u7642\uff08\u30a2\u30f3\u30b1\u30fc\u30c8\u3092\u901a\u3057\u3066\uff09<\/li>\n<li>\u3054\u9023\u7d61\u5148\u304a\u3088\u3073\u30a2\u30ab\u30a6\u30f3\u30c8\u60c5\u5831<\/li>\n<\/ul>\n<p>\u79d1\u5b66\u7684\u8abf\u67fb\u3084\u9069\u683c\u6027\u78ba\u8a8d\u306b\u5fc5\u8981\u306a\u6700\u4f4e\u9650\u306e\u30c7\u30fc\u30bf\u306e\u307f\u304c\u53ce\u96c6\u3055\u308c\u307e\u3059\u3002<\/p>\n<h3>7. <strong>\u79c1\u306e\u30c7\u30fc\u30bf\u306f\u3069\u306e\u3088\u3046\u306b\u4fdd\u8b77\u3055\u308c\u3066\u3044\u307e\u3059\u304b\uff1f<\/strong><\/h3>\n<p>REMEDS\u306f\u3001\u53b3\u683c\u306a\u30bb\u30ad\u30e5\u30ea\u30c6\u30a3\u53ca\u3073\u30d7\u30e9\u30a4\u30d0\u30b7\u30fc\u30d7\u30ed\u30c8\u30b3\u30eb\u3092\u9806\u5b88\u3057\u3066\u3044\u307e\u3059\uff1a<\/p>\n<ul>\n<li>\u30c7\u30fc\u30bf\u306f\u3059\u3079\u3066\u6697\u53f7\u5316\u3055\u308c\u3001EU\u570f\u5185\u306e\u30b5\u30fc\u30d0\u30fc\u306b\u5b89\u5168\u306b\u4fdd\u7ba1\u3055\u308c\u307e\u3059\u3002<\/li>\n<li>\u500b\u4eba\u60c5\u5831\u3092\u5206\u96e2\u3057\u3001\u7814\u7a76\u7528\u306b\u4eee\u540d\u5316\u307e\u305f\u306f\u533f\u540d\u5316\u3059\u308b\u3002<\/li>\n<li>REMEDS\u30a2\u30c9\u30d0\u30a4\u30b6\u30ea\u30fc\u30dc\u30fc\u30c9\u306b\u3088\u3063\u3066\u627f\u8a8d\u3055\u308c\u305f\u62c5\u5f53\u8005\u306e\u307f\u304c\u3001\u7279\u5b9a\u53ef\u80fd\u306a\u30c7\u30fc\u30bf\u306b\u30a2\u30af\u30bb\u30b9\u3059\u308b\u3053\u3068\u304c\u3067\u304d\u307e\u3059\u3002<\/li>\n<li class=\"translation-block\">\u304a\u5ba2\u69d8\u306e\u500b\u4eba\u30c7\u30fc\u30bf\u304c**\u8ca9\u58f2\u3055\u308c\u308b\u3053\u3068\u306f\u3042\u308a\u307e\u305b\u3093**\u3002\u307e\u305f\u3001\u7814\u7a76\u76ee\u7684\u3067\u306e\u30a2\u30af\u30bb\u30b9\u306f\u975e\u55b6\u5229\u76ee\u7684\u306b\u9650\u5b9a\u3055\u308c\u307e\u3059\u3002<\/li>\n<\/ul>\n<h3>8. <strong>\u8ab0\u304c\u30c7\u30fc\u30bf\u306b\u30a2\u30af\u30bb\u30b9\u3067\u304d\u308b\u306e\u304b\uff1f<\/strong><\/h3>\n<ul>\n<li><strong>REMEDS\u7ba1\u7406\u8005<\/strong>: \u4eee\u540d\u5316\/\u533f\u540d\u5316\u3055\u308c\u305f\u30c7\u30fc\u30bf\u306e\u307f\u5bfe\u8c61<\/li>\n<li><strong>REMEDS\u7ba1\u7406\u8005\uff08IT\u62c5\u5f53\uff09<\/strong>IT\u95a2\u9023\u306e\u307f<\/li>\n<li><strong>JKU\u533b\u7642\u30b9\u30bf\u30c3\u30d5<\/strong>: \u8a3a\u65ad\u306e\u691c\u8a0e\u3068\u53c2\u52a0\u8005\u306e\u9078\u5b9a<\/li>\n<li><strong>\u627f\u8a8d\u3055\u308c\u305f\u7814\u7a76\u8005<\/strong>: \u4eee\u540d\u5316\/\u533f\u540d\u5316\u3055\u308c\u305f\u30c7\u30fc\u30bf\u306e\u307f\u5bfe\u8c61<\/li>\n<li><strong>\u3054\u5bb6\u65cf\u3068\u4e00\u822c\u306e\u65b9<\/strong>\u533f\u540d\u5316\u3055\u308c\u305f\uff08\u500b\u4eba\u3092\u7279\u5b9a\u3067\u304d\u306a\u3044\uff09\u30c7\u30fc\u30bf\u306e\u307f\u5bfe\u8c61<\/li>\n<li><strong>\u5f53\u5c40<\/strong>\u6cd5\u5f8b\u307e\u305f\u306f\u502b\u7406\u59d4\u54e1\u4f1a\u306b\u3088\u3063\u3066\u8981\u6c42\u3055\u308c\u305f\u5834\u5408<\/li>\n<\/ul>\n<h3>9. <strong>\u88fd\u85ac\u4f1a\u793e\u306f\u79c1\u306e\u30c7\u30fc\u30bf\u3092\u898b\u308b\u3053\u3068\u304c\u3067\u304d\u307e\u3059\u304b\uff1f<\/strong><\/h3>\n<p class=\"translation-block\">\u5b8c\u5168\u306b\u533f\u540d\u5316\u3055\u308c\u305f\u30c7\u30fc\u30bf\u306e\u307f\u304c\u3001REMEDS\u30d7\u30e9\u30c3\u30c8\u30d5\u30a9\u30fc\u30e0\u8aee\u554f\u59d4\u54e1\u4f1a\u306e\u627f\u8a8d\u3092\u5f97\u305f\u5834\u5408\u306b\u9650\u308a\u3001\u6c11\u9593\u306e\u7814\u7a76\u8005\u3068\u5171\u6709\u3055\u308c\u308b\u3053\u3068\u304c\u3042\u308a\u307e\u3059\u3002\u3057\u304b\u3057\u3001\u3042\u306a\u305f\u306e\u500b\u4eba\u60c5\u5831\u3084\u9023\u7d61\u5148\u60c5\u5831\u306b\u30a2\u30af\u30bb\u30b9\u3059\u308b\u3053\u3068\u306f\u3067\u304d\u307e\u305b\u3093\u3002Ionis\u306e\u3088\u3046\u306a\u4f01\u696d\u304c\u3001\u3054\u5bb6\u65cf\u306b\u9023\u7d61\u3092\u53d6\u308a\u305f\u3044\u5834\u5408\u3001REMEDS\u304c\u305d\u306e\u9023\u7d61\u5148\u60c5\u5831\u3092\u516c\u958b\u3057\u307e\u3059\u306e\u3067\u3001\u3042\u306a\u305f\u3054\u81ea\u8eab\u306e\u3054\u610f\u5fd7\u3067\u9023\u7d61\u3092\u53d6\u3063\u3066\u3044\u305f\u3060\u304f\u5f62\u306b\u306a\u308a\u307e\u3059\u3002<\/p>\n<h3>10. <strong>\u81ea\u5206\u306e\u30c7\u30fc\u30bf\u306e\u4f7f\u308f\u308c\u65b9\u3092\u7ba1\u7406\u3067\u304d\u307e\u3059\u304b\uff1f<\/strong><\/h3>\n<p class=\"translation-block\">\u306f\u3044\u3002\u5404\u7814\u7a76\u3084\u30a2\u30f3\u30b1\u30fc\u30c8\u3054\u3068\u306b\u500b\u5225\u306e\u540c\u610f\u3092\u3044\u305f\u3060\u304f\u5fc5\u8981\u304c\u3042\u308a\u307e\u3059\u3002\u3042\u306a\u305f\u306e\u30c7\u30fc\u30bf\u304c\u3001\u660e\u793a\u7684\u306a\u8a31\u53ef\u306a\u304f\u5171\u6709\u3055\u308c\u308b\u3053\u3068\u306f\u6c7a\u3057\u3066\u3042\u308a\u307e\u305b\u3093\u3002<\/p>\n<h3>11. <strong>\u540c\u610f\u3092\u64a4\u56de\u3057\u305f\u5834\u5408\u306f\u3069\u3046\u306a\u308a\u307e\u3059\u304b\uff1f<\/strong><\/h3>\n<p class=\"translation-block\">\u3044\u3064\u3067\u3082\u540c\u610f\u3092\u64a4\u56de\u3059\u308b\u3053\u3068\u304c\u3067\u304d\u307e\u3059\u3002\u305d\u306e\u5f8c\u306f\u3001\u65b0\u305f\u306a\u500b\u4eba\u60c5\u5831\u304c\u53ce\u96c6\u3055\u308c\u308b\u3053\u3068\u306f\u306a\u304f\u3001\u500b\u4eba\u3092\u7279\u5b9a\u3067\u304d\u308b\u30c7\u30fc\u30bf\u306f\u3054\u8981\u671b\u306b\u5fdc\u3058\u3066\u524a\u9664\u3055\u308c\u307e\u3059\u3002\u305f\u3060\u3057\u3001\u56de\u53ce\u6e08\u307f\u306e\u4eee\u540d\u5316\u307e\u305f\u306f\u533f\u540d\u5316\u3055\u308c\u305f\u30c7\u30fc\u30bf\u306f\u3001\u6cd5\u7684\u306b\u5236\u9650\u3055\u308c\u3066\u3044\u306a\u3044\u9650\u308a\u3001\u79d1\u5b66\u7684\u76ee\u7684\u306e\u305f\u3081\u306b\u5f15\u304d\u7d9a\u304d\u4f7f\u7528\u3055\u308c\u308b\u5834\u5408\u304c\u3042\u308a\u307e\u3059\u3002<\/p>\n<h3>12. <strong>\u30c7\u30fc\u30bf\u306f\u3044\u3064\u307e\u3067\u4fdd\u7ba1\u3055\u308c\u307e\u3059\u304b\uff1f<\/strong><\/h3>\n<ul>\n<li>\u8b58\u5225\u53ef\u80fd\u306a\u30c7\u30fc\u30bf\uff1a\u3042\u306a\u305f\u306e\u30a2\u30ab\u30a6\u30f3\u30c8\u304c\u6709\u52b9\u3067\u3042\u308b\u9650\u308a\u3001\u307e\u305f\u306f\u524a\u9664\u8981\u6c42\u3055\u308c\u308b\u307e\u3067\u306f\u4fdd\u7ba1\u3055\u308c\u307e\u3059\u3002<\/li>\n<li>\u4eee\u540d\u5316\u3055\u308c\u305f\u30c7\u30fc\u30bf\uff1a\u9032\u884c\u4e2d\u306e\u79d1\u5b66\u7684\u7814\u7a76\u306e\u305f\u3081\u306b\u4fdd\u6301\u3055\u308c\u307e\u3059<\/li>\n<li>\u533f\u540d\u5316\u3055\u308c\u305f\u30c7\u30fc\u30bf\uff1a\u7814\u7a76\u304a\u3088\u3073\u7d71\u8a08\u5206\u6790\u306e\u305f\u3081\u306b\u7121\u671f\u9650\u306b\u4fdd\u7ba1\u3055\u308c\u307e\u3059\u3002<\/li>\n<\/ul>\n<h3>13. <strong>EU\u4e00\u822c\u30c7\u30fc\u30bf\u4fdd\u8b77\u898f\u5247\u306b\u304a\u3051\u308b\u79c1\u306e\u6a29\u5229\u3068\u306f\u4f55\u3067\u3059\u304b\uff1f<\/strong><\/h3>\n<p>\u3042\u306a\u305f\u306b\u306f\u6b21\u306e\u6a29\u5229\u304c\u3042\u308a\u307e\u3059\uff1a<\/p>\n<ul>\n<li>\u304a\u5ba2\u69d8\u306e\u30c7\u30fc\u30bf\u3078\u306e\u30a2\u30af\u30bb\u30b9\u3001\u4fee\u6b63\u3001\u524a\u9664<\/li>\n<li>\u30c7\u30fc\u30bf\u306e\u51e6\u7406\u65b9\u6cd5\u3092\u5236\u9650\u3059\u308b<\/li>\n<li>\u3044\u3064\u3067\u3082\u540c\u610f\u3092\u64a4\u56de\u3059\u308b<\/li>\n<li>\u30dd\u30fc\u30bf\u30d6\u30eb\u30d5\u30a9\u30fc\u30de\u30c3\u30c8\u3067\u30c7\u30fc\u30bf\u3092\u30ea\u30af\u30a8\u30b9\u30c8\u3059\u308b<\/li>\n<li>\u306b\u82e6\u60c5\u3092\u7533\u3057\u7acb\u3066\u308b\u3002 <strong>\u30aa\u30fc\u30b9\u30c8\u30ea\u30a2\u30c7\u30fc\u30bf\u4fdd\u8b77\u5c40<\/strong> (<a href=\"http:\/\/www.dsb.gv.at\">dsb.gv.at<\/a>dsb@dsb.gv.at)<\/li>\n<\/ul>\n<p class=\"translation-block\">\u6a29\u5229\u3092\u884c\u4f7f\u3059\u308b\u306b\u306f\u3001<strong>office@remeds.org<\/strong>\u306b\u3054\u9023\u7d61\u304f\u3060\u3055\u3044\u3002<\/p>\n<h3>14. <strong>\u79c1\u306e\u30c7\u30fc\u30bf\u306fEU\uff08\u6b27\u5dde\u9023\u5408\uff09\u57df\u5916\u306b\u8ee2\u9001\u3055\u308c\u307e\u3059\u304b\uff1f<\/strong><\/h3>\n<p>\u53ef\u80fd\u6027\u306f\u3042\u308a\u307e\u3059\u3002\u4eee\u540d\u5316\u307e\u305f\u306f\u533f\u540d\u5316\u3055\u308c\u305f\u30c7\u30fc\u30bf\u306f\u3001EU\uff08\u6b27\u5dde\u9023\u5408\uff09\u57df\u5916\u3067\u5171\u6709\u3055\u308c\u308b\u53ef\u80fd\u6027\u304c\u3042\u308a\u307e\u3059\u304c\u3001\u305d\u306e\u969b\u306f\u3001EU\u4e00\u822c\u30c7\u30fc\u30bf\u4fdd\u8b77\u898f\u5247\u3092\u9075\u5b88\u3059\u308b\u305f\u3081\u306e\u53b3\u683c\u306a\u4fdd\u8b77\u63aa\u7f6e\uff08\u6a19\u6e96\u5951\u7d04\u6761\u9805\u306a\u3069\uff09\u304c\u8b1b\u3058\u3089\u308c\u307e\u3059\u3002<\/p>\n<h3>15. <strong>REMEDS\u306f\u30af\u30c3\u30ad\u30fc\u3092\u4f7f\u7528\u3057\u3066\u3044\u307e\u3059\u304b\uff1f<\/strong><\/h3>\n<p class=\"translation-block\">\u53ef\u80fd\u6027\u306f\u3042\u308a\u307e\u3059\u3002\u4eee\u540d\u5316\u307e\u305f\u306f\u533f\u540d\u5316\u3055\u308c\u305f\u30c7\u30fc\u30bf\u306f\u3001EU\uff08\u6b27\u5dde\u9023\u5408\uff09\u57df\u5916\u3067\u5171\u6709\u3055\u308c\u308b\u53ef\u80fd\u6027\u304c\u3042\u308a\u307e\u3059\u304c\u3001\u305d\u306e\u969b\u306f\u3001EU\u4e00\u822c\u30c7\u30fc\u30bf\u4fdd\u8b77\u898f\u5247\u3092\u9075\u5b88\u3059\u308b\u305f\u3081\u306e\u53b3\u683c\u306a\u4fdd\u8b77\u63aa\u7f6e\uff08\u6a19\u6e96\u5951\u7d04\u6761\u9805\u306a\u3069\uff09\u304c\u8b1b\u3058\u3089\u308c\u307e\u3059\u3002<\/p>\n<h3>16. <strong>\u8ab0\u304cREMEDS\u3092\u904b\u55b6\u3057\u3066\u3044\u307e\u3059\u304b\uff1f<\/strong><\/h3>\n<p class=\"translation-block\">REMEDS\u306f\u3001\u975e\u55b6\u5229\u56e3\u4f53\u300c<strong>Verein zur Unterst\u00fctzung von Kindern mit MECP2 Duplikation Syndrom\uff08Lasst uns MDS heilen \u2013 DupMECP2\uff09<\/strong>\u300d\u304c\u3001\u30aa\u30fc\u30b9\u30c8\u30ea\u30a2\u30fb\u30ea\u30f3\u30c4\u306eKepler\u5927\u5b66\u75c5\u9662\u3068\u5171\u540c\u3067\u904b\u55b6\u3057\u3066\u3044\u307e\u3059\u3002<\/p>\n<h3>17. <strong>\u8cea\u554f\u306f\u3069\u3053\u306b\u3059\u308c\u3070\u3044\u3044\u3067\u3059\u304b\uff1f<\/strong><\/h3>\n<p>E\u30e1\u30fc\u30eb\uff1a <strong>office@remeds.org \u3067\u3054\u9023\u7d61\u304f\u3060\u3055\u3044\u3002<\/strong><br>\u4f4f\u6240\u30d7\u30ec\u30e0\u30e9\u30a4\u30ca\u30fc\u30ac\u30c3\u30bb 13, 1130 \u30a6\u30a3\u30fc\u30f3, \u30aa\u30fc\u30b9\u30c8\u30ea\u30a2<br>&nbsp;\u96fb\u8a71\u756a\u53f7+43 678 1215837<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>","protected":false},"excerpt":{"rendered":"<p>REMEDS Frequently Asked Questions &#8211; FAQ 1. What is REMEDS? REMEDS is a secure, multilingual, GDPR-compliant platform and registry for individuals diagnosed with MECP2 Duplication Syndrome (MDS). It collects medical data to support research, improve clinical understanding, and promote better treatments for MDS. 2. Who can use REMEDS? Parents, caregivers, or legal guardians of someone with MDS can create an account and register a patient. Researchers and healthcare professionals can apply for access to anonymized or pseudonymized data for approved studies to learn more about the syndrome. 3. Can I register if I\u2019m already in another registry or study? Yes! REMEDS is open to anyone with a confirmed diagnosis of [&hellip;]<\/p>\n","protected":false},"author":114,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_jf_save_progress":"","footnotes":""},"class_list":["post-3451","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/remeds.org\/ja\/wp-json\/wp\/v2\/pages\/3451","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/remeds.org\/ja\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/remeds.org\/ja\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/remeds.org\/ja\/wp-json\/wp\/v2\/users\/114"}],"replies":[{"embeddable":true,"href":"https:\/\/remeds.org\/ja\/wp-json\/wp\/v2\/comments?post=3451"}],"version-history":[{"count":10,"href":"https:\/\/remeds.org\/ja\/wp-json\/wp\/v2\/pages\/3451\/revisions"}],"predecessor-version":[{"id":3502,"href":"https:\/\/remeds.org\/ja\/wp-json\/wp\/v2\/pages\/3451\/revisions\/3502"}],"wp:attachment":[{"href":"https:\/\/remeds.org\/ja\/wp-json\/wp\/v2\/media?parent=3451"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}