{"id":3343,"date":"2025-06-28T06:17:41","date_gmt":"2025-06-28T04:17:41","guid":{"rendered":"https:\/\/remeds.org\/?page_id=3343"},"modified":"2025-07-19T18:22:22","modified_gmt":"2025-07-19T16:22:22","slug":"imprint","status":"publish","type":"page","link":"https:\/\/remeds.org\/ja\/imprint\/","title":{"rendered":"\u904b\u55b6\u8005\u60c5\u5831"},"content":{"rendered":"
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\u904b\u55b6\u8005\u60c5\u5831<\/h1>\t\t\t\t<\/div>\n\t\t\t\t
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MeCP2\u91cd\u8907\u75c7\u5019\u7fa4\u306e\u5b50\u4f9b\u3092\u652f\u63f4\u3059\u308b\u4f1a\uff08Verein zur Unterst\u00fctzung von MeCP2 Duplication Syndrom, kurz\uff1a\u30aa\u30fc\u30b9\u30c8\u30ea\u30a2\u6cd5\u306b\u57fa\u3065\u304f\u975e\u55b6\u5229\u56e3\u4f53\u300cLasst uns MDS heilen (DupMECP2 \u2013 Lasst uns MDS heilen),<\/strong>\u3001 ZVR 1165516180\uff08\u30aa\u30fc\u30b9\u30c8\u30ea\u30a2\u4e2d\u592e\u5354\u4f1a\u767b\u9332\u756a\u53f7\uff09<\/p>

\u4f4f\u6240\uff1a<\/strong><\/h2>

\u30d7\u30ec\u30e0\u30e9\u30a4\u30ca\u30fc\u30ac\u30c3\u30bb13<\/p>

1130 \u30a6\u30a3\u30fc\u30f3<\/p>

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\u9023\u7d61\u5148\uff1a<\/strong><\/h2>

E\u30e1\u30fc\u30eb\uff1aoffice@remeds.org<\/p>

\u96fb\u8a71\u756a\u53f7\uff1a0043 678 121 5839<\/p>

\u30a6\u30a7\u30d6\u30b5\u30a4\u30c8\uff1awww.remeds.org<\/p>

\u6cd5\u5b9a\u4ee3\u7406\u4eba\uff1a<\/h2>

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\u3053\u306e\u30a6\u30a7\u30d6\u30b5\u30a4\u30c8\u306f MECP2\u91cd\u8907\u75c7\u5019\u7fa4\u306e\u767b\u9332\u7c3f\u304a\u3088\u3073\u533b\u7642\u8abf\u67fb\u30d7\u30e9\u30c3\u30c8\u30d5\u30a9\u30fc\u30e0\uff08REMEDS\u30d7\u30e9\u30c3\u30c8\u30d5\u30a9\u30fc\u30e0\uff09<\/strong>\u306e\u516c\u5f0f\u30b5\u30a4\u30c8\u3067\u3059\u3002\u5f53\u30a6\u30a7\u30d6\u30b5\u30a4\u30c8\u306e\u4e3b\u306a\u76ee\u7684\u306f\u3001\u81e8\u5e8a\u30c7\u30fc\u30bf\u3068\u907a\u4f1d\u5b50\u30c7\u30fc\u30bf\u3092\u53ce\u96c6\u3001\u4fdd\u7ba1\u3001\u5206\u6790\u3059\u308b\u3053\u3068\u3067\u3001\u7814\u7a76\u3092\u4fc3\u9032\u3057\u3001MECP2\u91cd\u8907\u75c7\u5019\u7fa4\u306e\u7406\u89e3\u3092\u6df1\u3081\u3001\u79d1\u5b66\u7814\u7a76\u3092\u652f\u63f4\u3059\u308b\u3053\u3068\u3067\u3059\u3002<\/p>

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\u514d\u8cac\u4e8b\u9805\uff1a<\/strong><\/h2>

\u5f53\u30a6\u30a7\u30d6\u30b5\u30a4\u30c8\u3067\u63d0\u4f9b\u3055\u308c\u308b\u3059\u3079\u3066\u306e\u30b3\u30f3\u30c6\u30f3\u30c4\u306f\u3001\u60c5\u5831\u63d0\u4f9b\u306e\u307f\u3092\u76ee\u7684\u3068\u3057\u3066\u3044\u307e\u3059\u3002\u300c DupMECP2 \u2013 Lasst uns MDS heilen<\/strong>\u300d\u306f\u3001\u60c5\u5831\u306e\u6b63\u78ba\u6027\u3001\u5b8c\u5168\u6027\u3001\u9069\u6642\u6027\u306b\u3064\u3044\u3066\u8cac\u4efb\u3092\u8ca0\u3044\u307e\u305b\u3093\u3002\u5916\u90e8\u30ea\u30f3\u30af\u306e\u4f7f\u7528\u306f\u63a8\u5968\u3092\u610f\u5473\u3059\u308b\u3082\u306e\u3067\u306f\u3042\u308a\u307e\u305b\u3093\u3002\u300c DupMECP2 \u2013 Lasst uns MDS heilen<\/strong>\u300d\u306f\u3001\u7b2c\u4e09\u8005\u306e\u30b3\u30f3\u30c6\u30f3\u30c4\u306b\u5bfe\u3057\u3066\u8cac\u4efb\u3092\u8ca0\u3044\u307e\u305b\u3093\u3002<\/p>

\u8457\u4f5c\u6a29\u3068\u77e5\u7684\u8ca1\u7523<\/strong><\/h2>

\u5f53\u30a6\u30a7\u30d6\u30b5\u30a4\u30c8\u306e\u30b3\u30f3\u30c6\u30f3\u30c4\u3001\u69cb\u9020\u3001\u30c7\u30b6\u30a4\u30f3\u306f\u8457\u4f5c\u6a29\u6cd5\u306b\u3088\u308a\u4fdd\u8b77\u3055\u308c\u3066\u3044\u307e\u3059\u3002\u5f53\u30a6\u30a7\u30d6\u30b5\u30a4\u30c8\u306e\u30b3\u30f3\u30c6\u30f3\u30c4\u306e\u8907\u88fd\u3001\u5909\u66f4\u3001\u914d\u5e03\u3001\u5546\u696d\u7684\u5229\u7528\u306b\u306f\u3001\u300cDupMECP2 \u2013 Lasst uns MDS heilen<\/strong>\u300d\u306e\u4e8b\u524d\u306e\u66f8\u9762\u306b\u3088\u308b\u8a31\u53ef\u304c\u5fc5\u8981\u3067\u3059\u3002<\/p>

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Imprint Verein zur Unterst\u00fctzung von Kindern mit MeCP2 Duplication Syndrom, kurz: Lasst uns MDS heilen, a not-for-profit association under Austrian law (DupMECP2 \u2013 Lasst uns MDS heilen), ZVR 1165516180 (Registration number with the Austrian central association registry) Address: Premreinergasse 13 1130 Wien Austria Contact Information: Email: office@remeds.org Phone: 0043 678\u00a0121 5837 Website: www.remeds.org Legal Representatives: David Covini, president Dr. Caroline Covini, vice-president Purpose of the Website: This website serves as the official platform for the Register and medical survey platform for MECP2 Duplication Syndrome (REMEDS Platform). Its primary purpose is to collect, store, and analyze clinical and genetic data to enhance research, improve understanding of MECP2 Duplication Syndrome, and support […]<\/p>\n","protected":false},"author":114,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_jf_save_progress":"","footnotes":""},"class_list":["post-3343","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/remeds.org\/ja\/wp-json\/wp\/v2\/pages\/3343","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/remeds.org\/ja\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/remeds.org\/ja\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/remeds.org\/ja\/wp-json\/wp\/v2\/users\/114"}],"replies":[{"embeddable":true,"href":"https:\/\/remeds.org\/ja\/wp-json\/wp\/v2\/comments?post=3343"}],"version-history":[{"count":11,"href":"https:\/\/remeds.org\/ja\/wp-json\/wp\/v2\/pages\/3343\/revisions"}],"predecessor-version":[{"id":3466,"href":"https:\/\/remeds.org\/ja\/wp-json\/wp\/v2\/pages\/3343\/revisions\/3466"}],"wp:attachment":[{"href":"https:\/\/remeds.org\/ja\/wp-json\/wp\/v2\/media?parent=3343"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}