{"id":3,"date":"2024-06-26T16:01:10","date_gmt":"2024-06-26T16:01:10","guid":{"rendered":"http:\/\/remeds.org\/?page_id=3"},"modified":"2025-07-09T11:18:15","modified_gmt":"2025-07-09T09:18:15","slug":"privacy-policy","status":"publish","type":"page","link":"https:\/\/remeds.org\/ja\/privacy-policy\/","title":{"rendered":"\u30d7\u30e9\u30a4\u30d0\u30b7\u30fc\u30dd\u30ea\u30b7\u30fc"},"content":{"rendered":"<div data-elementor-type=\"wp-page\" data-elementor-id=\"3\" class=\"elementor elementor-3\" data-elementor-post-type=\"page\">\n\t\t\t\t<div class=\"elementor-element elementor-element-53b44b08 e-flex e-con-boxed e-con e-parent\" data-id=\"53b44b08\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-1c206a4 elementor-widget elementor-widget-heading\" data-id=\"1c206a4\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h1 class=\"elementor-heading-title elementor-size-default\">\u30d7\u30e9\u30a4\u30d0\u30b7\u30fc\u30dd\u30ea\u30b7\u30fc<\/h1>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-74479f5 elementor-widget__width-initial elementor-widget elementor-widget-text-editor\" data-id=\"74479f5\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p><strong>MDS\u60a3\u8005\u306e\u4fdd\u8b77\u8005\u5411\u3051\u60c5\u5831 <\/strong><strong>MECP2\u91cd\u8907\u75c7\u5019\u7fa4\u60a3\u8005\u767b\u9332\u30fb\u8abf\u67fb\u30d7\u30e9\u30c3\u30c8\u30d5\u30a9\u30fc\u30e0\uff08REMEDS\u30d7\u30e9\u30c3\u30c8\u30d5\u30a9\u30fc\u30e0\uff09<\/strong>\u00a0<strong>\u30d7\u30e9\u30a4\u30d0\u30b7\u30fc\u30dd\u30ea\u30b7\u30fc<\/strong><br \/><strong>\u767a\u52b9\u65e5\uff1a2025\u5e744\u670830\u65e5<\/strong>\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>\u4fdd\u8b77\u8005\u306e\u7686\u69d8\u3001MDS\u60a3\u8005\u306e\u7686\u69d8\u3078\u3001\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>\u3042\u306a\u305f\u306e\u304a\u5b50\u69d8\u3001\u307e\u305f\u306f\u88ab\u5f8c\u898b\u4eba\uff08\u4ee5\u4e0b\u300c\u304a\u5b50\u69d8\u300d\u3068\u8868\u8a18\uff09\u306f\u3001MECP2\u91cd\u8907\u75c7\u5019\u7fa4\uff08MDS\uff09\u3068\u8a3a\u65ad\u3055\u308c\u307e\u3057\u305f\u3002MDS\u306f\u975e\u5e38\u306b\u307e\u308c\u306a\u75be\u60a3\u3067\u3001\u60a3\u8005\u3055\u3093\u306b\u3088\u3063\u3066\u7570\u306a\u308b\u81e8\u5e8a\u75c7\u72b6\u3092\u793a\u3059\u3053\u3068\u304c\u3042\u308a\u307e\u3059\u3002\u3053\u306e\u3088\u3046\u306b\u75c7\u72b6\u306b\u3070\u3089\u3064\u304d\u304c\u3042\u308b\u7406\u7531\u306f\u4e0d\u660e\u3067\u3042\u308a\u3001\u4e3b\u306b\u907a\u4f1d\u5b66\u7684\u6240\u898b\u306e\u9055\u3044\u306b\u3064\u3044\u3066\u3055\u3089\u306a\u308b\u7814\u7a76\u304c\u5fc5\u8981\u3067\u3059\u3002\u00a0<\/p>\n<p><!-- 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--><\/p>\n<p>\u304a\u5b50\u69d8\u306e\u30c7\u30fc\u30bf\u304cREMEDS\u30d7\u30e9\u30c3\u30c8\u30d5\u30a9\u30fc\u30e0\u306e\u767b\u9332\u7c3f\u306b\u767b\u9332\u3055\u308c\u3066\u3082\u3001\u304a\u5b50\u69d8\u306e\u6cbb\u7642\u3084\u30d5\u30a9\u30ed\u30fc\u30a2\u30c3\u30d7\u306e\u7d4c\u904e\u306b\u5f71\u97ff\u3092\u4e0e\u3048\u308b\u3053\u3068\u306f\u3042\u308a\u307e\u305b\u3093\u3002\u8ffd\u52a0\u306e\u6cbb\u7642\u3001\u6295\u85ac\u3001\u691c\u67fb\u304c\u51e6\u65b9\u3055\u308c\u308b\u3053\u3068\u306f\u3042\u308a\u307e\u305b\u3093\u3002\u79c1\u305f\u3061\u306f\u3001\u3042\u306a\u305f\u3084\u3042\u306a\u305f\u306e\u304a\u5b50\u69d8\u306e\u8eab\u5143\u304c\u8ffd\u8de1\u3067\u304d\u306a\u3044\u3088\u3046\u306b\u914d\u616e\u3057\u3066\u3044\u307e\u3059\u3002\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>\u304a\u5b50\u69d8\u306e\u30c7\u30fc\u30bf\u3092REMEDS\u30d7\u30e9\u30c3\u30c8\u30d5\u30a9\u30fc\u30e0\u306e\u767b\u9332\u7c3f\u306b\u767b\u9332\u3059\u308b\u305f\u3081\u306e\u524d\u63d0\u6761\u4ef6\u306f\u3001\u89aa\u5fa1\u69d8\u307e\u305f\u306f\u6cd5\u7684\u4fdd\u8b77\u8005\u306e\u540c\u610f\u3067\u3059\u3002\u3042\u306a\u305f\u306e\u540c\u610f\u304c\u306a\u3051\u308c\u3070\u3001\u304a\u5b50\u69d8\u306e\u30c7\u30fc\u30bf\u3092\u53ce\u96c6\u3059\u308b\u3053\u3068\u306f\u3067\u304d\u307e\u305b\u3093\u3002\u533b\u7642\u30b1\u30a2\u3084\u6cbb\u7642\u306b\u5f71\u97ff\u3092\u4e0e\u3048\u308b\u3053\u3068\u306a\u304f\u3001\u3044\u3064\u3067\u3082\u540c\u610f\u306f\u64a4\u56de\u3059\u308b\u3053\u3068\u304c\u3067\u304d\u307e\u3059\u3002\u00a0\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>\u304a\u5b50\u69d8\u306e\u6cbb\u7642\u3092\u62c5\u5f53\u3059\u308b\u533b\u5e2b\u3068\u306e\u8a71\u3057\u5408\u3044\u306e\u88dc\u52a9\u3068\u3057\u3066\u3001\u4ee5\u4e0b\u306e\u6587\u7ae0\u3092\u3088\u304f\u304a\u8aad\u307f\u306b\u306a\u308a\u3001\u3054\u9060\u616e\u306a\u304f\u3054\u8cea\u554f\u304f\u3060\u3055\u3044\u3002\u4ee5\u4e0b\u306e\u5834\u5408\u306e\u307f\u3001\u3054\u540c\u610f\u304f\u3060\u3055\u3044\uff1a\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:list --><\/p>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul><!-- wp:list-item --><\/ul>\n<\/li>\n<\/ul>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul>\n<li>\u3059\u3079\u3066\u3092\u5b8c\u5168\u306b\u7406\u89e3\u3057\u307e\u3057\u305f;\u00a0<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<p><!-- \/wp:list-item --><\/p>\n<p><!-- \/wp:list --><!-- wp:list --><\/p>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul><!-- wp:list-item --><\/ul>\n<\/li>\n<\/ul>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul>\n<li>\u5b50\u4f9b\u306e\u53c2\u52a0\u306b\u540c\u610f\u3059\u308b\u610f\u601d\u304c\u3042\u308a\u307e\u3059\u3002\u00a0<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<p><!-- \/wp:list-item --><\/p>\n<p><!-- \/wp:list --><!-- wp:list --><\/p>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul><!-- wp:list-item --><\/ul>\n<\/li>\n<\/ul>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul>\n<li>\u672c\u767b\u9332\u306e\u53c2\u52a0\u8005\u3068\u3057\u3066\u306e\u5b50\u4f9b\u306e\u6a29\u5229\u3092\u8a8d\u8b58\u3057\u3066\u3044\u307e\u3059\u3002\u00a0<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<p><!-- \/wp:list-item --><\/p>\n<p><!-- \/wp:list --><!-- wp:paragraph --><\/p>\n<p><strong>1.REMEDS\u30d7\u30e9\u30c3\u30c8\u30d5\u30a9\u30fc\u30e0\u306e\u76ee\u7684\u306f\u4f55\u3067\u3059\u304b\uff1f<\/strong>\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p class=\"translation-block\">REMEDS\u30d7\u30e9\u30c3\u30c8\u30d5\u30a9\u30fc\u30e0\u306f\u6b21\u306e\u56e3\u4f53\u306b\u3088\u3063\u3066\u904b\u55b6\u3057\u3066\u3044\u307e\u3059\u3002  <strong>Verein zur Unterst\u00fctzung von Kindern mit MeCP2 Duplikation Syndrom, kurz: Lasst uns MDS heilen<\/strong>, \u30aa\u30fc\u30b9\u30c8\u30ea\u30a2\u6cd5\u306b\u57fa\u3065\u304f\u975e\u55b6\u5229\u56e3\u4f53 <strong>(DupMECP2 \u2013 Lasst uns MDS heilen)<\/strong>, and supported by Kepler Universit\u00e4tsklinikum,\u30aa\u30fc\u30b9\u30c8\u30ea\u30a2\u30fb\u30ea\u30f3\u30c4 <strong>(Kepler University Hospital)<\/strong>.<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>REMEDS\u30d7\u30e9\u30c3\u30c8\u30d5\u30a9\u30fc\u30e0\u306f\u3001\u30aa\u30fc\u30b9\u30c8\u30ea\u30a2\u307e\u305f\u306f\u30aa\u30fc\u30b9\u30c8\u30ea\u30a2\u56fd\u5916\u306eMDS\u60a3\u8005\u306e\u81e8\u5e8a\u304a\u3088\u3073\u533b\u7642\u30c7\u30fc\u30bf\u3092\u3001\u907a\u4f1d\u5b66\u7684\u6240\u898b\u3084\u5bb6\u65cf\u7279\u6709\u306e\u554f\u984c\u306b\u95a2\u3059\u308b\u60c5\u5831\u3092\u542b\u3081\u3001\u30b0\u30ed\u30fc\u30d0\u30eb\u306a\u30c7\u30fc\u30bf\u30d9\u30fc\u30b9\u306b\u53ce\u96c6\u3001\u4fdd\u5b58\u3001\u5206\u6790\u3059\u308b\u3053\u3068\u3092\u76ee\u7684\u3068\u3057\u3066\u304a\u308a\u3001MDS\u306e\u79d1\u5b66\u7684\u7814\u7a76\u3092\u652f\u63f4\u3057\u3001\u81e8\u5e8a\u7684\u7406\u89e3\u3092\u6df1\u3081\u3001\u6cbb\u7642\u6cd5\u3092\u6539\u5584\u3059\u308b\u3053\u3068\u3092\u76ee\u7684\u3068\u3057\u3066\u3044\u307e\u3059\u3002\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>REMEDS\u30d7\u30e9\u30c3\u30c8\u30d5\u30a9\u30fc\u30e0\u306bMDS\u60a3\u8005\u3092\u767b\u9332\u3059\u308b\u3053\u3068\u3067\u3001\u95a2\u4fc2\u8005\u306f\u30c7\u30fc\u30bf\u3092\u63d0\u51fa\u3059\u308b\u3053\u3068\u304c\u3067\u304d\u307e\u3059\u3002\u00a0\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p><strong>2.REMEDS\u30d7\u30e9\u30c3\u30c8\u30d5\u30a9\u30fc\u30e0\u3078\u306e\u767b\u9332\u306f\u3069\u306e\u3088\u3046\u306b\u884c\u3046\u306e\u3067\u3059\u304b\uff1f<\/strong>\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>REMEDS\u30d7\u30e9\u30c3\u30c8\u30d5\u30a9\u30fc\u30e0\u306e\u30e6\u30fc\u30b6\u30fc\u30a2\u30ab\u30a6\u30f3\u30c8\u3092\u4f5c\u6210\u3057\u305f\u5f8c\u3001MECP2\u91cd\u8907\u75c7\u5019\u7fa4\u306e\u60a3\u8005\u767b\u9332\u3092\u3059\u308b\u3053\u3068\u304c\u3067\u304d\u307e\u3059\u3002REMEDS\u767b\u9332\u7c3f\u306b\u767b\u9332\u3059\u308b\u8cc7\u683c\u3092\u8a3c\u660e\u3059\u308b\u305f\u3081\u306b\u3001\u60a3\u8005\u3055\u3093\u306b\u95a2\u3059\u308b\u60c5\u5831\uff08\u60a3\u8005\u306e\u540d\u524d\u3001\u751f\u5e74\u6708\u65e5\u3001\u6027\u5225\u3001\u56fd\u7c4d\u3001\u5c45\u4f4f\u56fd\u3001\u60a3\u8005\u306e\u751f\u5b58\u306b\u95a2\u3057\u3066\u3001\u60a3\u8005\u306e\u907a\u4f1d\u5b50\u5831\u544a\u66f8\u306e\u30a2\u30c3\u30d7\u30ed\u30fc\u30c9\u3001\u901a\u77e5\u7528\u30e1\u30fc\u30eb\u30a2\u30c9\u30ec\u30b9\u3001\u767b\u9332\u8005\u306e\u78ba\u8a8d\u3001\u30c7\u30fc\u30bf\u306e\u30a2\u30c3\u30d7\u30ed\u30fc\u30c9\u3092\u8a31\u53ef\u3059\u308b\u4ecb\u8b77\u8005\/\u6cd5\u5b9a\u5f8c\u898b\u4eba\uff09\u3092\u63d0\u4f9b\u3059\u308b\u3088\u3046\u6c42\u3081\u3089\u308c\u307e\u3059\u3002\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>\u60a3\u8005\u767b\u9332\u7533\u8acb\u5f8c\u3001REMEDS\u533b\u5e2b\u306b\u3088\u308b\u627f\u8a8d\u30d7\u30ed\u30bb\u30b9\u304c\u958b\u59cb\u3055\u308c\u307e\u3059\u3002\u627f\u8a8d\u30d7\u30ed\u30bb\u30b9\u306f\u6700\u9577\u3067 90 \u66a6\u65e5\u7d9a\u304d\u307e\u3059\u300290\u65e5\u304c\u7d4c\u904e\u3059\u308b\u3068\u3001\u30b5\u30fc\u30d3\u30b9\u30d7\u30ed\u30d0\u30a4\u30c0\u30fc\u3067\u3042\u308bJotForm\u306e\u30b5\u30dd\u30fc\u30c8\u306b\u3088\u308a\u3001\u53ce\u96c6\u3055\u308c\u305f\u30c7\u30fc\u30bf\u306f\u81ea\u52d5\u7684\u306b\u524a\u9664\u3055\u308c\u307e\u3059\uff08REMEDS\u306e\u533b\u5e2b\u304c\u60a3\u8005\u767b\u9332\u7533\u8acb\u3092\u627f\u8a8d\u307e\u305f\u306f\u62d2\u5426\u3057\u305f\u5f8c\u306b\u624b\u52d5\u3067\u524a\u9664\u3057\u3066\u3044\u306a\u3044\u5834\u5408\uff09\u3002\u5be9\u67fb\u306e\u9593\u3001REMEDS\u306e\u533b\u5e2b\u306f\u63d0\u4f9b\u3055\u308c\u305f\u30c7\u30fc\u30bf\u306b\u5b89\u5168\u306b\u30a2\u30af\u30bb\u30b9\u3059\u308b\u3053\u3068\u304c\u3067\u304d\u307e\u3059\u3002\u60a3\u8005\u627f\u8a8d\u3055\u308c\u308b\u3068\u3001ID\u756a\u53f7\u304c\u4ed8\u4e0e\u3055\u308c\u3001REMEDS\u30d7\u30e9\u30c3\u30c8\u30d5\u30a9\u30fc\u30e0\u3092\u901a\u3058\u3066\u60a3\u8005\u69d8\u304c\u53c2\u52a0\u3059\u308b\u3001\u4eca\u5f8c\u306e\u3059\u3079\u3066\u306e\u7814\u7a76\u306b\u4f7f\u7528\u3055\u308c\u307e\u3059\u3002\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>\u30a2\u30c3\u30d7\u30ed\u30fc\u30c9\u3055\u308c\u305f\u907a\u4f1d\u5b50\u5831\u544a\u66f8\u306f\u3001\u627f\u8a8d\u30d7\u30ed\u30bb\u30b9\u306e\u7d42\u4e86\u5f8c\u306b\u524a\u9664\u3055\u308c\u307e\u3059\u3002\u60a3\u8005\u767b\u9332\u30d7\u30ed\u30bb\u30b9\u3067\u63d0\u4f9b\u3055\u308c\u305f\u500b\u4eba\u30c7\u30fc\u30bf\uff08\u6027\u5225\u3001\u56fd\u7c4d\u3001\u5c45\u4f4f\u56fd\u3001\u751f\u5e74\u6708\u65e5\uff09\u306f\u3001\u7d71\u8a08\u76ee\u7684\u3067\u4f7f\u7528\u3059\u308b\u305f\u3081\u3001REMEDS\u30d7\u30e9\u30c3\u30c8\u30d5\u30a9\u30fc\u30e0\u306b\u3088\u3063\u3066\u81ea\u52d5\u7684\u306b\u533f\u540d\u5316\u3055\u308c\u307e\u3059\u3002\u304a\u5b50\u69d8\u306e\u304a\u540d\u524d\u3068\u767b\u9332\u72b6\u6cc1\u306f\u3001\u3054\u81ea\u8eab\u306e\u30c0\u30c3\u30b7\u30e5\u30dc\u30fc\u30c9\u3068REMEDS\u7ba1\u7406\u8005\u306b\u306e\u307f\u8868\u793a\u3055\u308c\u307e\u3059\u3002\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>\u30c7\u30fc\u30bf\u30b7\u30fc\u30c8\u60a3\u8005\u304c\u627f\u8a8d\u3055\u308c\u308b\u3068\u3001\u30c0\u30c3\u30b7\u30e5\u30dc\u30fc\u30c9\u306b\u73fe\u5728\u9032\u884c\u4e2d\u306e\u7814\u7a76\u306e\u4e00\u89a7\u304c\u8868\u793a\u3055\u308c\u307e\u3059\u3002 <strong>\u305f\u3060\u3057\u3001\u7279\u5b9a\u306e\uff08\u81e8\u5e8a\uff09\u7814\u7a76\u306b\u53c2\u52a0\u3059\u308b\u5834\u5408\u306f\u3001\u5225\u9014\u540c\u610f\u66f8\u3001\u60a3\u8005\u60c5\u5831\u3001\u30d7\u30e9\u30a4\u30d0\u30b7\u30fc\u306b\u95a2\u3059\u308b\u6587\u66f8\u304c\u5fc5\u8981\u3068\u306a\u308a\u307e\u3059\u3002<\/strong>\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p><strong>3.REMEDS\u30d7\u30e9\u30c3\u30c8\u30d5\u30a9\u30fc\u30e0\u306b\u767b\u9332\u3059\u308b\u30e1\u30ea\u30c3\u30c8\u306f\u4f55\u3067\u3059\u304b\uff1f<\/strong>\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>REMEDS\u30d7\u30e9\u30c3\u30c8\u30d5\u30a9\u30fc\u30e0\u3078\u306e\u53c2\u52a0\u306b\u3088\u308a\u3001\u304a\u5b50\u69d8\u304c\u5065\u5eb7\u4e0a\u306e\u76f4\u63a5\u306e\u6069\u6075\u3092\u53d7\u3051\u308b\u3053\u3068\u306f\u671f\u5f85\u306f\u3067\u304d\u307e\u305b\u3093\u3002\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p><strong>4.\u30ea\u30b9\u30af\u3001\u4e0d\u90fd\u5408\u3001\u526f\u4f5c\u7528\u306f\u3042\u308a\u307e\u3059\u304b\uff1f<\/strong>\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>\u30c7\u30fc\u30bf\u3057\u304b\u53ce\u96c6\u3055\u308c\u306a\u3044\u306e\u3067\u3001\u3042\u308a\u307e\u305b\u3093\u3002\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p><strong>5.REMEDS\u30d7\u30e9\u30c3\u30c8\u30d5\u30a9\u30fc\u30e0\u3078\u306e\u767b\u9332\u306e\u53d6\u308a\u6d88\u3057\u306f\uff1f<\/strong>\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>\u7406\u7531\u3092\u793a\u3055\u305a\u306b\u3044\u3064\u3067\u3082\u64a4\u56de\u3067\u304d\u307e\u3059\u3002\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p><strong>6.\u53c2\u52a0\u306b\u8cbb\u7528\u306f\u304b\u304b\u308a\u307e\u3059\u304b\uff1f<\/strong>\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>REMEDS\u30d7\u30e9\u30c3\u30c8\u30d5\u30a9\u30fc\u30e0\u3078\u306e\u53c2\u52a0\u306b\u306f\u8ffd\u52a0\u8cbb\u7528\u306e\u767a\u751f\u306f\u3042\u308a\u307e\u305b\u3093\u3002\u307e\u305f\u3001\u30c7\u30fc\u30bf\u5165\u529b\u306b\u5bfe\u3059\u308b\u6255\u3044\u623b\u3057\u306f\u3042\u308a\u307e\u305b\u3093\u3002\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p><strong>7.\u3055\u3089\u306a\u308b\u8cea\u554f\u306e\u6a5f\u4f1a<\/strong>\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>REMEDS\u30d7\u30e9\u30c3\u30c8\u30d5\u30a9\u30fc\u30e0\u306b\u95a2\u3059\u308b\u3054\u8cea\u554f\u306f\u3001\u4e0b\u8a18\u307e\u3067\u304a\u554f\u3044\u5408\u308f\u305b\u304f\u3060\u3055\u3044\uff1a <strong>DupMECP2 -Lasst uns MDS heilen\u306e\u30c7\u30a4\u30d3\u30c3\u30c9\u30fb\u30b3\u30f4\u30a3\u30fc\u30cb\u4f1a\u9577\u3001\u304a\u3088\u3073DupMECP2 -Lasst uns MDS heilen\u306e\u30ad\u30e3\u30ed\u30e9\u30a4\u30f3\u30fb\u30b3\u30f4\u30a3\u30fc\u30cb\u526f\u4f1a\u9577<\/strong>\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>\u30d7\u30ec\u30e0\u30e9\u30a4\u30ca\u30fc\u30ac\u30c3\u30bb13\u00a0\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>1130 \u30aa\u30fc\u30b9\u30c8\u30ea\u30a2\u3001\u30a6\u30a3\u30fc\u30f3\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>E\u30e1\u30fc\u30eb\uff1a <a href=\"mailto:office@remeds.org\" target=\"_blank\" rel=\"noreferrer noopener\">office@remeds.org \u3067\u3054\u9023\u7d61\u304f\u3060\u3055\u3044\u3002<\/a>\u00a0\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p><strong>8.EU\u4e00\u822c\u30c7\u30fc\u30bf\u4fdd\u8b77\u898f\u5247\u7b2c13\u6761\u306b\u57fa\u3065\u304f\u30d7\u30e9\u30a4\u30d0\u30b7\u30fc\u60c5\u5831<\/strong>\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>REMEDS\u30d7\u30e9\u30c3\u30c8\u30d5\u30a9\u30fc\u30e0\u306f\u3001\u30aa\u30fc\u30b9\u30c8\u30ea\u30a2\u304a\u3088\u3073\u4e16\u754c\u5404\u56fd\u306eMDS\u60a3\u8005\u306e\u81e8\u5e8a\u30c7\u30fc\u30bf\u304a\u3088\u3073\u533b\u7642\u30c7\u30fc\u30bf\u3092\u53ce\u96c6\u3001\u4fdd\u5b58\u3001\u5206\u6790\u3059\u308b\u3053\u3068\u3092\u76ee\u7684\u3068\u3057\u3066\u3044\u307e\u3059\u3002\u3053\u308c\u306b\u306f\u3001\u79d1\u5b66\u7684\u7814\u7a76\u3092\u652f\u63f4\u3057\u3001\u81e8\u5e8a\u7684\u7406\u89e3\u3092\u6df1\u3081\u3001MDS\u306e\u6cbb\u7642\u6cd5\u3092\u6539\u5584\u3059\u308b\u3053\u3068\u3092\u76ee\u7684\u3068\u3057\u305f\u3001MDS\u60a3\u8005\u304a\u3088\u3073\u305d\u306e\u5bb6\u65cf\u304b\u3089\u306e\u30c7\u30fc\u30bf\u306e\u53ce\u96c6\u3001\u4eee\u540d\u5316\u3001\u533f\u540d\u5316\u304c\u542b\u307e\u308c\u307e\u3059\u3002\u00a0\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>\u79c1\u305f\u3061\u306f\u3001MDS\u60a3\u8005\u3001\u4ecb\u8b77\u8005\u3001\u304a\u3088\u3073\u6cd5\u7684\u4fdd\u8b77\u8005\u304b\u3089\u53ce\u96c6\u3057\u305f\u500b\u4eba\u60c5\u5831\u306e\u30d7\u30e9\u30a4\u30d0\u30b7\u30fc\u3068\u30bb\u30ad\u30e5\u30ea\u30c6\u30a3\u306e\u4fdd\u8b77\u306b\u52aa\u3081\u3066\u3044\u307e\u3059\u3002\u672c\u500b\u4eba\u60c5\u5831\u4fdd\u8b77\u60c5\u5831\u3067\u306f\u3001\u4e00\u822c\u30c7\u30fc\u30bf\u4fdd\u8b77\u898f\u5247\u304a\u3088\u3073\u305d\u306e\u4ed6\u306e\u9069\u7528\u3055\u308c\u308b\u30c7\u30fc\u30bf\u4fdd\u8b77\u6cd5\u306b\u5f93\u3063\u3066\u3001\u500b\u4eba\u30c7\u30fc\u30bf\u304c\u3069\u306e\u3088\u3046\u306b\u53ce\u96c6\u3001\u51e6\u7406\u3001\u4fdd\u7ba1\u3055\u308c\u308b\u304b\u306b\u3064\u3044\u3066\u8aac\u660e\u3057\u307e\u3059\u3002\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>REMEDS\u30d7\u30e9\u30c3\u30c8\u30d5\u30a9\u30fc\u30e0\u306e\u5229\u7528\u8005\u306f\u3001\u53c2\u52a0\u3092\u5e0c\u671b\u3059\u308b\u7814\u7a76\u3054\u3068\u306b\u500b\u5225\u306e\u4e8b\u524d\u306e\u8aac\u660e\u3068\u540c\u610f\u306b\u3088\u308a\u3001\u30c7\u30fc\u30bf\u306e\u53ce\u96c6\u304a\u3088\u3073\u51e6\u7406\u306b\u540c\u610f\u3059\u308b\u5fc5\u8981\u304c\u3042\u308a\u307e\u3059\u3002\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>\u3068\u306f\u533a\u5225\u3057\u306a\u3051\u308c\u3070\u306a\u3089\u306a\u3044\uff1a\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:list {\"ordered\":true,\"start\":1} --><\/p>\n<ol start=\"1\">\n<li style=\"list-style-type: none;\">\n<ol start=\"1\"><!-- wp:list-item --><\/ol>\n<\/li>\n<\/ol>\n<ol start=\"1\">\n<li style=\"list-style-type: none;\">\n<ol start=\"1\">\n<li><strong>\u500b\u4eba\u60c5\u5831<\/strong>\uff08\u540d\u524d\u3001\u751f\u5e74\u6708\u65e5\u3001\u4f4f\u6240\u3001\u793e\u4f1a\u4fdd\u969c\u756a\u53f7\u3001\u5199\u771f\u306a\u3069\uff09\u3002\u00a0<\/li>\n<\/ol>\n<\/li>\n<\/ol>\n<p><!-- \/wp:list-item --><\/p>\n<p><!-- \/wp:list --><!-- wp:list {\"ordered\":true,\"start\":2} --><\/p>\n<ol start=\"2\">\n<li style=\"list-style-type: none;\">\n<ol start=\"2\"><!-- wp:list-item --><\/ol>\n<\/li>\n<\/ol>\n<ol start=\"2\">\n<li style=\"list-style-type: none;\">\n<ol start=\"2\">\n<li><strong>\u4eee\u540d\u5316\u3055\u308c\u305f\u500b\u4eba\u30c7\u30fc\u30bf<\/strong>\u30bf \u672c\u4eba\u3092\u76f4\u63a5\u8b58\u5225\u3067\u304d\u308b\u3059\u3079\u3066\u306e\u60c5\u5831\u304c\u524a\u9664\u3055\u308c\u308b\u304b\u3001\u30b3\u30fc\u30c9\uff08\u756a\u53f7\u306a\u3069\uff09\u306b\u7f6e\u304d\u63db\u3048\u3089\u308c\u308b\u304b\u3001\u307e\u305f\u306f\u4e0d\u660e\u77ad\u306b\u3055\u308c\u307e\u3059\uff08\u5199\u771f\u306e\u307c\u304b\u3057\u306a\u3069\uff09\u3002\u00a0\u00a0<\/li>\n<\/ol>\n<\/li>\n<\/ol>\n<p><!-- \/wp:list-item --><\/p>\n<p><!-- \/wp:list --><!-- wp:list {\"ordered\":true,\"start\":3} --><\/p>\n<ol start=\"3\">\n<li style=\"list-style-type: none;\">\n<ol start=\"3\"><!-- wp:list-item --><\/ol>\n<\/li>\n<\/ol>\n<ol start=\"3\">\n<li style=\"list-style-type: none;\">\n<ol start=\"3\">\n<li><strong>\u533f\u540d\u5316\u3055\u308c\u305f\u30c7\u30fc\u30bf<\/strong>\u30c7\u30fc\u30bf\u3092\u7279\u5b9a\u306e\u500b\u4eba\u3068\u95a2\u9023\u4ed8\u3051\u308b\u53ef\u80fd\u6027\u306f\u5b8c\u5168\u306b\u6392\u9664\u3055\u308c\u307e\u3059\u3002\u00a0<\/li>\n<\/ol>\n<\/li>\n<\/ol>\n<p><!-- \/wp:list-item --><\/p>\n<p><!-- \/wp:list --><!-- wp:paragraph --><\/p>\n<p><strong>8.1.\u8ab0\u304c\u3042\u306a\u305f\u306e\u30c7\u30fc\u30bf\u51e6\u7406\u306b\u8cac\u4efb\u304c\u3042\u308a\u307e\u3059\u304b\uff1f\u00a0<\/strong>\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p><strong>\u30c7\u30fc\u30bf\u7ba1\u7406\u8005<\/strong>\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>MeCP2\u91cd\u8907\u75c7\u5019\u7fa4\u306e\u5b50\u4f9b\u306e\u305f\u3081\u306e\u652f\u63f4\u56e3\u4f53\uff08Verein zur Unterst\u00fctzung von Kinder with MeCP2 Duplikation Syndrom, kurz\uff1aLasst uns MDS heilen, ZVR-Zahl\uff08\u30aa\u30fc\u30b9\u30c8\u30ea\u30a2\u4e2d\u592e\u5354\u4f1a\u767b\u9332\u756a\u53f7\uff09\uff1a1165516180\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p><strong>\u9023\u7d61\u5148\uff1a\u30c7\u30a4\u30d3\u30c3\u30c9\u30fb\u30b3\u30f4\u30a3\u30fc\u30cb\u4f1a\u9577\uff08DupMECP2 -Lasst uns MDS heilen\uff09\u3001\u30ad\u30e3\u30ed\u30e9\u30a4\u30f3\u30fb\u30b3\u30f4\u30a3\u30fc\u30cb\u526f\u4f1a\u9577\uff08DupMECP2 -Lasst uns MDS heilen\uff09<\/strong>\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>\u30d7\u30ec\u30e0\u30e9\u30a4\u30ca\u30fc\u30ac\u30c3\u30bb13\u30011130\u30a6\u30a3\u30fc\u30f3\u3001\u30aa\u30fc\u30b9\u30c8\u30ea\u30a2\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>E\u30e1\u30fc\u30eb\uff1a <a href=\"mailto:office@remeds.org\" target=\"_blank\" rel=\"noreferrer noopener\">office@remeds.org \u3067\u3054\u9023\u7d61\u304f\u3060\u3055\u3044\u3002<\/a>\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p><strong>8.2.\u30c7\u30fc\u30bf\u53ce\u96c6\u306e\u76ee\u7684<\/strong>\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>\u79c1\u305f\u3061\u306f\u3001A)REMEDS\u30d7\u30e9\u30c3\u30c8\u30d5\u30a9\u30fc\u30e0\u306b\u304a\u3051\u308b\u30e6\u30fc\u30b6\u30fc\u30a2\u30ab\u30a6\u30f3\u30c8\u306e\u4f5c\u6210\u306e\u305f\u3081\u3001B)REMEDS\u30d7\u30e9\u30c3\u30c8\u30d5\u30a9\u30fc\u30e0\u306b\u304a\u3051\u308bMDS\u60a3\u8005\u306e\u767b\u9332\u306e\u305f\u3081\u3001C)\u8abf\u67fb\u304a\u3088\u3073\u7814\u7a76\u306e\u305f\u3081\u3001D)\u79d1\u5b66\u7684\u7814\u7a76\u304a\u3088\u3073\u51fa\u7248\u7269\u306e\u305f\u3081\u3001\u304a\u3088\u3073\u7814\u7a76\u3078\u306e\u53c2\u52a0\u8005\u3092\u63d0\u6848\u3059\u308b\u305f\u3081\u306b\u3001\u500b\u4eba\u30c7\u30fc\u30bf\u3092\u53ce\u96c6\u304a\u3088\u3073\u51e6\u7406\u3057\u307e\u3059\u3002<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:list --><\/p>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul><!-- wp:list-item --><\/ul>\n<\/li>\n<\/ul>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul>\n<li>- MECP2\u91cd\u8907\u75c7\u5019\u7fa4\uff08MDS\uff09\u306e\u307f\u306e\u60a3\u8005\u30c7\u30fc\u30bf\u304c\u30c7\u30fc\u30bf\u30d9\u30fc\u30b9\u306b\u542b\u307e\u308c\u3066\u3044\u308b\u3053\u3068\u3092\u78ba\u8a8d\u3059\u308b\u305f\u3081\u00a0<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<p><!-- \/wp:list-item --><\/p>\n<p><!-- \/wp:list --><!-- wp:list --><\/p>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul><!-- wp:list-item --><\/ul>\n<\/li>\n<\/ul>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul>\n<li>MDS\u306e\u7406\u89e3\u3068\u6cbb\u7642\u3092\u6539\u5584\u3059\u308b\u305f\u3081\u00a0<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<p><!-- \/wp:list-item --><\/p>\n<p><!-- \/wp:list --><!-- wp:list --><\/p>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul><!-- wp:list-item --><\/ul>\n<\/li>\n<\/ul>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul>\n<li>MDS\u304a\u3088\u3073\u95a2\u9023\u75c7\u5019\u7fa4\u3068\u305d\u306e\u6cbb\u7642\u306b\u95a2\u3059\u308b\u3055\u3089\u306a\u308b\u7814\u7a76\u306e\u305f\u3081\u00a0<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<p><!-- \/wp:list-item --><\/p>\n<p><!-- \/wp:list --><!-- wp:paragraph --><\/p>\n<p>\u3053\u306e\u30c7\u30fc\u30bf\u306f\u3001\u3066\u3093\u304b\u3093\u306b\u9650\u3089\u305a\u3001\u7279\u5b9a\u306e\u75be\u60a3\uff08\u5fc3\u81d3\u75c5\u3001\u764c\u3001\u7cbe\u795e\u75be\u60a3\u306a\u3069\uff09\u306e\u539f\u56e0\u7a76\u660e\u3001\u65b0\u3057\u3044\u79d1\u5b66\u7684\u624b\u6cd5\u306e\u958b\u767a\u306a\u3069\u3001\u3042\u3089\u3086\u308b\u7814\u7a76\u8ab2\u984c\u306b\u5229\u7528\u53ef\u80fd\u3067\u3059\u3002\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p><strong>8.3.\u79c1\u305f\u3061\u304c\u30c7\u30fc\u30bf\u3092\u53ce\u96c6\u3059\u308b\u7528\u9014<\/strong>\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>\u79c1\u305f\u3061\u306f\u3001\u4ee5\u4e0b\u306e\u76ee\u7684\u3067\u500b\u4eba\u60c5\u5831\u3092\u53ce\u96c6\u3059\u308b\u3053\u3068\u304c\u3042\u308a\u307e\u3059\u3002\u00a0\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p><strong>A.REMEDS\u30d7\u30e9\u30c3\u30c8\u30d5\u30a9\u30fc\u30e0\u3067\u306e\u30a2\u30ab\u30a6\u30f3\u30c8\u306e\u4f5c\u6210<\/strong>\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:list --><\/p>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul><!-- wp:list-item --><\/ul>\n<\/li>\n<\/ul>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul>\n<li><strong>\u5229\u7528\u8005\uff08\u4ecb\u8b77\u8005\u3001\u6cd5\u5b9a\u4ee3\u7406\u4eba\uff09<\/strong>:E\u30e1\u30fc\u30eb\u30a2\u30c9\u30ec\u30b9\u3001\u30e6\u30fc\u30b6\u30fcID\u3001\u59d3\u3001\u540d\u3001\u751f\u5e74\u6708\u65e5\u00a0<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<p><!-- \/wp:list-item --><\/p>\n<p><!-- \/wp:list --><!-- wp:paragraph --><\/p>\n<p><strong>B.REMEDS\u30d7\u30e9\u30c3\u30c8\u30d5\u30a9\u30fc\u30e0\u3078\u306e\u767b\u9332<\/strong>\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:list --><\/p>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul><!-- wp:list-item --><\/ul>\n<\/li>\n<\/ul>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul>\n<li><strong>\u500b\u4eba\u60c5\u5831<\/strong>\u60a3\u8005\u306e\u540d\u524d\u3001\u751f\u5e74\u6708\u65e5\u3001\u56fd\u7c4d\u3001\u5c45\u4f4f\u56fd\u3001\u60a3\u8005\u306e\u751f\u5b58\u306e\u53ef\u5426\u3001\u30c7\u30fc\u30bf\u306e\u30a2\u30c3\u30d7\u30ed\u30fc\u30c9\u3092\u8a31\u53ef\u3059\u308b\u30e6\u30fc\u30b6\u30fc\u306e\u78ba\u8a8d\u00a0<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<p><!-- \/wp:list-item --><\/p>\n<p><!-- \/wp:list --><!-- wp:list --><\/p>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul><!-- wp:list-item --><\/ul>\n<\/li>\n<\/ul>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul>\n<li><strong>\u533b\u7642\u30c7\u30fc\u30bf<\/strong>:\u907a\u4f1d\u5b50\u306e\u5831\u544a\u3002\u00a0<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<p><!-- \/wp:list-item --><\/p>\n<p><!-- \/wp:list --><!-- wp:list --><\/p>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul><!-- wp:list-item --><\/ul>\n<\/li>\n<\/ul>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul>\n<li><strong>\u767b\u9332\u8005\uff08\u4ecb\u8b77\u8005\u3001\u6cd5\u5b9a\u5f8c\u898b\u4eba\uff09\u306e\u500b\u4eba\u60c5\u5831<\/strong>:E\u30e1\u30fc\u30eb\u30a2\u30c9\u30ec\u30b9\u3001\u30e6\u30fc\u30b6\u30fcID\u3001\u59d3\u3001\u540d\u3001\u751f\u5e74\u6708\u65e5\u00a0<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<p><!-- \/wp:list-item --><\/p>\n<p><!-- \/wp:list --><!-- wp:paragraph --><\/p>\n<p><strong>C.\u8abf\u67fb\u30fb\u7814\u7a76<\/strong>\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:list --><\/p>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul><!-- wp:list-item --><\/ul>\n<\/li>\n<\/ul>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul>\n<li>\u75c5\u6b74\u3001\u75c7\u72b6\u3001\u6cbb\u7642\u6cd5\u3001\u8a3a\u65ad\u306e\u65e5\u6642\u3068\u5834\u6240<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<p><!-- \/wp:list-item --><\/p>\n<p><!-- \/wp:list --><!-- wp:list --><\/p>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul><!-- wp:list-item --><\/ul>\n<\/li>\n<\/ul>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul>\n<li>\u81e8\u5e8a\u30c7\u30fc\u30bf\u00a0<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<p><!-- \/wp:list-item --><\/p>\n<p><!-- \/wp:list --><!-- wp:paragraph --><\/p>\n<p class=\"translation-block\"><strong>D.\u79d1\u5b66\u7814\u7a76\u3084\u51fa\u7248\u3001\u307e\u305f\u88ab\u9a13\u8005\u53c2\u52a0\u3092\u63d0\u6848\u3059\u308b\u305f\u3081<\/strong><\/p>\n<p><!-- \/wp:paragraph --><!-- wp:list --><\/p>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul><!-- wp:list-item --><\/ul>\n<\/li>\n<\/ul>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul>\n<li>\u75c5\u6b74\u3001\u75c7\u72b6\u3001\u6cbb\u7642\u6cd5\u3001\u8a3a\u65ad\u306e\u65e5\u6642\u3068\u5834\u6240\u00a0<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<p><!-- \/wp:list-item --><\/p>\n<p><!-- \/wp:list --><!-- wp:list --><\/p>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul><!-- wp:list-item --><\/ul>\n<\/li>\n<\/ul>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul>\n<li>\u81e8\u5e8a\u30c7\u30fc\u30bf\u00a0<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<p><!-- \/wp:list-item --><\/p>\n<p><!-- \/wp:list --><!-- wp:paragraph --><\/p>\n<p>\u4eee\u540d\u5316\u307e\u305f\u306f\u533f\u540d\u5316\u304c\u65e2\u306b\u3055\u308c\u3066\u3044\u306a\u3044\u30c7\u30fc\u30bf\u306f\u3001\u4eee\u540d\u5316\u307e\u305f\u306f\u533f\u540d\u5316\u3055\u308c\u307e\u3059\u3002\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>\u79c1\u305f\u3061\u306f\u3001REMEDS\u30d7\u30e9\u30c3\u30c8\u30d5\u30a9\u30fc\u30e0\u306e\u76ee\u7684\u306b\u5fc5\u8981\u306a\u500b\u4eba\u30c7\u30fc\u30bf\u306e\u307f\u3092\u53ce\u96c6\u3057\u307e\u3059\u3002\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p><strong>8.4.\u3042\u306a\u305f\u306e\u30c7\u30fc\u30bf\u306e\u51e6\u7406\u65b9\u6cd5<\/strong>\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:list --><\/p>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul><!-- wp:list-item --><\/ul>\n<\/li>\n<\/ul>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul>\n<li><strong>\u30c7\u30fc\u30bf\u6697\u53f7\u5316<\/strong>\uff1a\u500b\u4eba\u60c5\u5831\u306f\u6697\u53f7\u5316\u3055\u308c\u305f\u3046\u3048\u3067\u5b89\u5168\u306b\u4fdd\u7ba1\u3055\u308c\u307e\u3059\u3002\u00a0<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<p><!-- \/wp:list-item --><\/p>\n<p><!-- \/wp:list --><!-- wp:list --><\/p>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul><!-- wp:list-item --><\/ul>\n<\/li>\n<\/ul>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul>\n<li><strong>\u4eee\u540d\u5316\uff0f\u533f\u540d\u5316<\/strong>\u8b58\u5225\u53ef\u80fd\u306a\u30c7\u30fc\u30bf\u306f\u3001\u7814\u7a76\u5229\u7528\u306e\u524d\u306b\u30b3\u30fc\u30c9\u306b\u7f6e\u304d\u63db\u3048\u3089\u308c\u307e\u3059\u3002\u3053\u306e\u30b3\u30fc\u30c9\u306fKepler\u5927\u5b66\u75c5\u9662\u306eREMEDS\u533b\u5e2b\u306e\u5143\u3067\u4fdd\u7ba1\u3055\u308c\u307e\u3059\u3002\u533f\u540d\u5316\u304c\u76ee\u7684\u9054\u6210\u306b\u5fc5\u8981\u306a\u5834\u5408\u3001\u8b58\u5225\u53ef\u80fd\u306a\u30c7\u30fc\u30bf\u3092\u533f\u540d\u5316\u3057\u307e\u3059\u3002\u00a0<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<p><!-- \/wp:list-item --><\/p>\n<p><!-- \/wp:list --><!-- wp:list --><\/p>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul><!-- wp:list-item --><\/ul>\n<\/li>\n<\/ul>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul>\n<li><strong>\u7ba1\u7406\u3055\u308c\u305f\u30a2\u30af\u30bb\u30b9<\/strong>: \u30a2\u30af\u30bb\u30b9\u306f\u53b3\u91cd\u306b\u5fc5\u8981\u306a\u7bc4\u56f2\u3067\u884c\u308f\u308c\u307e\u3059\u3002\u00a0<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<p><!-- \/wp:list-item --><\/p>\n<p><!-- \/wp:list --><!-- wp:list --><\/p>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul><!-- wp:list-item --><\/ul>\n<\/li>\n<\/ul>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul>\n<li><strong>\u5546\u7528\u5229\u7528\u4e0d\u53ef<\/strong>\uff1a\u55b6\u5229\u76ee\u7684\u3067\u30c7\u30fc\u30bf\u3092\u8ca9\u58f2\u3001\u5171\u6709\u3059\u308b\u3053\u3068\u306f\u3042\u308a\u307e\u305b\u3093\u3002REMEDS\u30d7\u30e9\u30c3\u30c8\u30d5\u30a9\u30fc\u30e0\u306b\u95a2\u3059\u308b\u8cbb\u7528\u306b\u3064\u3044\u3066\u306f\u3001\u6255\u3044\u623b\u3057\u3092\u304a\u9858\u3044\u3059\u308b\u5834\u5408\u304c\u3042\u308a\u307e\u3059\u3002\u3002\u00a0<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<p><!-- \/wp:list-item --><\/p>\n<p><!-- \/wp:list --><!-- wp:list --><\/p>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul><!-- wp:list-item --><\/ul>\n<\/li>\n<\/ul>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul>\n<li><strong>\u540c\u610f<\/strong>:\u500b\u4eba\u60c5\u5831\u306f\u3001\u4e8b\u524d\u306e\u660e\u793a\u7684\u306a\uff08\u4e8b\u524d\u306e\u8aac\u660e\u3068\uff09\u540c\u610f\u306a\u3057\u306b\u5171\u6709\u3055\u308c\u308b\u3053\u3068\u306f\u3042\u308a\u307e\u305b\u3093\u3002\u00a0<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<p><!-- \/wp:list-item --><\/p>\n<p><!-- \/wp:list --><!-- wp:paragraph --><\/p>\n<p><strong>8.5.\u30c7\u30fc\u30bf\u51e6\u7406\u306b\u95a2\u3059\u308b\u6cd5\u7684\u6839\u62e0<\/strong>\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>\u5f53\u793e\u306f\u30018.3.\u306b\u8a18\u8f09\u3055\u308c\u3066\u3044\u308b\u3059\u3079\u3066\u306e\u76ee\u7684\u306e\u305f\u3081\u306b\u3001\u4ee5\u4e0b\u306b\u57fa\u3065\u3044\u3066\u30c7\u30fc\u30bf\u3092\u51e6\u7406\u3057\u307e\u3059\uff1a\u00a0<br \/><strong>\u660e\u793a\u7684\u306a\u540c\u610f<\/strong> (GDPR\u7b2c6\u6761(1)(a)\u304a\u3088\u3073\u7b2c9\u6761(2)(a)\uff09\u307e\u305f\u306f <strong>\u5951\u7d04\u306e\u5c65\u884c<\/strong> (GDPR\u7b2c6\u6761(1)(b))\u307e\u305f\u306f <strong>\u6cd5\u7684\u7fa9\u52d9<\/strong> (GDPR\u7b2c6\u67611\u9805c\uff09\u307e\u305f\u306f <strong>\u6b63\u5f53\u306a\u5229\u76ca<\/strong> (\u6cd5\u5f8b\u307e\u305f\u306f\u502b\u7406\u59d4\u54e1\u4f1a\u306b\u3088\u3063\u3066\u8981\u6c42\u3055\u308c\u305f\u5834\u5408\uff08GDPR\u7b2c6\u6761(1)(f)\uff09\u3002\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>\u5b8c\u5168\u306b\u533f\u540d\u5316\u3055\u308c\u305f\u30c7\u30fc\u30bf\u304c\u63d0\u4f9b\u3055\u308c\u305f\u5834\u5408\u3001\u305d\u306e\u30c7\u30fc\u30bf\u51e6\u7406\u306b\u95a2\u3059\u308b\u540c\u610f\u306f\u5fc5\u8981\u3042\u308a\u307e\u305b\u3093\u3002\u00a0\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p><strong>8.6.\u8ab0\u304c\u3042\u306a\u305f\u306e\u30c7\u30fc\u30bf\u306b\u30a2\u30af\u30bb\u30b9\u3067\u304d\u307e\u3059\u304b\uff1f<\/strong>\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p class=\"translation-block\">\u3042\u306a\u305f\u306e\u500b\u4eba\u30c7\u30fc\u30bf\u306b\u306f\u3001\u4ee5\u4e0b\u306e\u8005\u306e\u307f\u304c\u30a2\u30af\u30bb\u30b9\u3067\u304d\u307e\u3059\u3002<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:list --><\/p>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul><!-- wp:list-item --><\/ul>\n<\/li>\n<\/ul>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul>\n<li class=\"translation-block\"><strong>Kepler<\/strong>\u5927\u5b66\u75c5\u9662\u306e\u516c\u8a8d\u3055\u308c\u305f\u533b\u7642\u95a2\u4fc2\u8005\u304c\u3001\u8a3a\u65ad\u78ba\u8a8d\u3092\u76ee\u7684\u3068\u3057  <strong>B) \u60a3\u8005\u3092\u627f\u8a8d\u3059\u308b\u305f\u3081\u306bREMEDS\u30d7\u30e9\u30c3\u30c8\u30d5\u30a9\u30fc<\/strong>\u30e0\u306b\u767b\u9332\u3059\u308b\u5834\u5408  <strong>D) \u7814\u7a76\u3078\u306e\u88ab\u9a13\u8005\u3068\u3057\u3066\u53c2\u52a0\u3092\u63d0\u6848\u3059\u308b\u305f\u3081\u3002<\/strong><\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<p><!-- \/wp:list-item --><\/p>\n<p><!-- \/wp:list --><!-- wp:list --><\/p>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul><!-- wp:list-item --><\/ul>\n<\/li>\n<\/ul>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul>\n<li class=\"translation-block\"><strong>REMEDS \u30d7\u30e9\u30c3\u30c8\u30d5\u30a9\u30fc\u30e0\u7ba1\u7406\u8005 <\/strong>\u30d7\u30e9\u30c3\u30c8\u30d5\u30a9\u30fc\u30e0\u904b\u7528\u306e\u305f\u3081\uff08\u3059\u3079\u3066\u306e\u30c7\u30fc\u30bf\u306b\u30a2\u30af\u30bb\u30b9\u3057\u307e\u3059\u304c\u3001\u4eee\u540d\u5316\/\u533f\u540d\u5316\u3055\u308c\u305f\u30c7\u30fc\u30bf\u306e\u307f\u304c\u5bfe\u8c61\uff09\u3001\u304a\u3088\u3073\u6b21\u306e\u76ee\u7684\u306e\u305f\u3081 <strong>A) 8.3.A\u306b\u57fa\u3065\u304fREMEDS<\/strong>\u30d7\u30e9\u30c3\u30c8\u30d5\u30a9\u30fc\u30e0\u3067\u30a2\u30ab\u30a6\u30f3\u30c8\u3092\u4f5c\u6210\u3059\u308b\u5834\u5408\u3000<strong>B) 8.3.B\u306b\u57fa\u3065\u304fREMEDS<\/strong>\u30d7\u30e9\u30c3\u30c8\u30d5\u30a9\u30fc\u30e0\u767b\u9332\u7528\u306e\u305f\u3081\u3000\uff08REMED\u306eIT\u95a2\u9023\u62c5\u5f53\u8005\u306e\u307f\u306b\u9650\u5b9a\u3055\u308c\u307e\u3059\uff09<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<p><!-- \/wp:list-item --><\/p>\n<p><!-- \/wp:list --><!-- wp:list --><\/p>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul><!-- wp:list-item --><\/ul>\n<\/li>\n<\/ul>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul>\n<li class=\"translation-block\"><strong>\u627f\u8a8d\u3055\u308c\u305f\u79d1\u5b66\u7814\u7a76\u8005 <\/strong>(\u4eee\u540d\u5316\/\u533f\u540d\u5316\u3055\u308c\u305f\u30c7\u30fc\u30bf\u306b\u9650\u308b) \u306b\u3088\u308b\u6b21\u306e\u76ee\u7684\u306e\u305f\u3081\u3000<strong>C) \u8abf\u67fb\u3084\u7814\u7a76\u306e\u898b\u76f4<\/strong>\u3057\u306e\u305f\u3081\u3000<strong>D) \u79d1\u5b66\u7814\u7a76<\/strong>\u3068\u51fa\u7248\u306e\u305f\u3081\u3002<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<p><!-- \/wp:list-item --><\/p>\n<p><!-- \/wp:list --><!-- wp:list --><\/p>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul><!-- wp:list-item --><\/ul>\n<\/li>\n<\/ul>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul>\n<li>\u898f\u5236\u5f53\u5c40\u3001\u502b\u7406\u59d4\u54e1\u4f1a\uff08\u6cd5\u7684\u306b\u5fc5\u8981\u306a\u5834\u5408\uff09\u3002\u00a0<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<p><!-- \/wp:list-item --><\/p>\n<p><!-- \/wp:list --><!-- wp:list --><\/p>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul><!-- wp:list-item --><\/ul>\n<\/li>\n<\/ul>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul>\n<li class=\"translation-block\">REMEDS\u30d7\u30e9\u30c3\u30c8\u30d5\u30a9\u30fc\u30e0\u8aee\u554f\u59d4\u54e1\u4f1a\u304b\u3089\u627f\u8a8d\u3055\u308c\u305f\u79d1\u5b66\u7814\u7a76\u76ee\u7684\u306e\u6c11\u9593\u4f01\u696d\uff08\u4eee\u540d\u5316\/\u533f\u540d\u5316\u3055\u308c\u305f\u30c7\u30fc\u30bf\u306b\u9650\u308b) C) \u8abf\u67fb\u3084\u7814\u7a76\u306e\u898b\u76f4\u3057\u306e\u305f\u3081\u3000D) \u79d1\u5b66\u7814\u7a76\u3068\u51fa\u7248\u306e\u305f\u3081\u3002<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<p><!-- \/wp:list-item --><\/p>\n<p><!-- \/wp:list --><!-- wp:list --><\/p>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul><!-- wp:list-item --><\/ul>\n<\/li>\n<\/ul>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul>\n<li class=\"translation-block\"><strong>MDS\u306b\u95a2\u308f\u308b<\/strong>\u3001MDS\u60a3\u8005\u3001\u4e21\u89aa\u3001\u6cd5\u5b9a\u5f8c\u898b\u4eba\u306e\u3088\u3046\u306a\u65b9\u3005\uff08\u533f\u540d\u5316\u3055\u308c\u305f\u30c7\u30fc\u30bf\u306e\u307f\uff09\u306b\u3088\u308b<strong>C) MDS<\/strong>\u306b\u95a2\u3059\u308b\u898b\u76f4\u3057\u3084\u3001\u3055\u3089\u306a\u308b\u5b66\u7fd2\u3068\u3044\u3063\u305f\u8abf\u67fb\u3084\u7814\u7a76\u306e\u305f\u3081\u3002<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<p><!-- \/wp:list-item --><\/p>\n<p><!-- \/wp:list --><!-- wp:paragraph --><\/p>\n<p><strong>8.7.\u30c7\u30fc\u30bf\u306e\u4fdd\u6301\u3068\u524a\u9664<\/strong>\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>\u79c1\u305f\u3061\u306f\u3001REMEDS\u30d7\u30e9\u30c3\u30c8\u30d5\u30a9\u30fc\u30e0\u306e\u6709\u52b9\u671f\u9593\u4e2d\u3001\u6cd5\u5f8b\u3067\u7fa9\u52d9\u4ed8\u3051\u3089\u308c\u3066\u3044\u308b\u671f\u9593\u4e2d\u3001\u307e\u305f\u306f\u3042\u306a\u305f\u304c\u540c\u610f\u3092\u53d6\u308a\u6d88\u3059\u307e\u3067\u306e\u9593\u3001\u3044\u305a\u308c\u304b\u65e9\u3044\u65b9\u306e\u671f\u9593\u3001\u30c7\u30fc\u30bf\u3092\u4fdd\u6301\u3057\u307e\u3059\u3002\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:list --><\/p>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul><!-- wp:list-item --><\/ul>\n<\/li>\n<\/ul>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul>\n<li><strong>\u8b58\u5225\u53ef\u80fd\u306a\u30c7\u30fc\u30bf<\/strong> \u306f\u3001\u7d99\u7d9a\u7684\u306a\u79d1\u5b66\u7814\u7a76\u306e\u305f\u3081\u306b\u4fdd\u6301\u3055\u308c\u308b\u5834\u5408\u304c\u3042\u308a\u307e\u3059\u3002\u00a0<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<p><!-- \/wp:list-item --><\/p>\n<p><!-- \/wp:list --><!-- wp:list --><\/p>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul><!-- wp:list-item --><\/ul>\n<\/li>\n<\/ul>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul>\n<li><strong>\u533f\u540d\u5316\u3055\u308c\u305f\u30c7\u30fc\u30bf<\/strong> \u306f\u3001\u79d1\u5b66\u7684\u76ee\u7684\u306e\u305f\u3081\u306b\u7121\u671f\u9650\u306b\u4fdd\u6301\u3055\u308c\u307e\u3059\u3002\u00a0<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<p><!-- \/wp:list-item --><\/p>\n<p><!-- \/wp:list --><!-- wp:list --><\/p>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul><!-- wp:list-item --><\/ul>\n<\/li>\n<\/ul>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul>\n<li><strong>\u533f\u540d\u5316\u3055\u308c\u305f\u30c7\u30fc\u30bf<\/strong> \u306f\u79d1\u5b66\u7684\u76ee\u7684\u306e\u305f\u3081\u306b\u7121\u671f\u9650\u306b\u4fdd\u6301\u3055\u308c\u308b\u3002\u00a0<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<p><!-- \/wp:list-item --><\/p>\n<p><!-- \/wp:list --><!-- wp:paragraph --><\/p>\n<p class=\"translation-block\"><\/strong>\u304a\u5b50\u69d8\u306e\u500b\u4eba\u60c5\u5831\u306f\u3001<\/strong>\u3044\u3064\u3067\u3082\u524a\u9664\u8981\u6c42\u3059\u308b\u3053\u3068\u304c\u3067\u304d\u307e\u3059\u3002\u524a\u9664\u8981\u6c42\u304c\u3042\u3063\u305f\u5834\u5408\u3001\u4eca\u5f8c\u500b\u4eba\u30c7\u30fc\u30bf\u304c\u53ce\u96c6\u3055\u308c\u308b\u3053\u3068\u306f\u3042\u308a\u307e\u305b\u3093\u3002\u305f\u3060\u3057\u3001\u65e2\u306b\u53ce\u96c6\u3055\u308c\u305f\u4eee\u540d\u5316\u307e\u305f\u306f\u533f\u540d\u5316\u3055\u308c\u305f\u30c7\u30fc\u30bf\u306f\u3001\u5f15\u304d\u7d9a\u304d\u4fdd\u7ba1\u3055\u308c\u3001REMEDS\u30d7\u30e9\u30c3\u30c8\u30d5\u30a9\u30fc\u30e0\u306e\u76ee\u7684\u306e\u305f\u3081\u306b\u4f7f\u7528\u3055\u308c\u308b\u5834\u5408\u304c\u3042\u308a\u307e\u3059\u3002<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p><strong>8.8.EU\u4e00\u822c\u30c7\u30fc\u30bf\u4fdd\u8b77\u898f\u5247\u306b\u57fa\u3065\u304f\u3042\u306a\u305f\u306e\u6a29\u5229<\/strong>\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>\u3042\u306a\u305f\u306f\u3001\u3054\u81ea\u8eab\u306e\u30c7\u30fc\u30bf\u306b\u95a2\u3057\u3066\u4ee5\u4e0b\u306e\u6a29\u5229\u3092\u6709\u3057\u307e\u3059\uff1a\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:list --><\/p>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul><!-- wp:list-item --><\/ul>\n<\/li>\n<\/ul>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul>\n<li>\u4fdd\u7ba1\u3055\u308c\u3066\u3044\u308b\u30c7\u30fc\u30bf\u306e\u30b3\u30d4\u30fc\u3092\u8acb\u6c42\u3059\u308b\u3053\u3068\u304c\u3067\u304d\u307e\u3059\u3002\u00a0<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<p><!-- \/wp:list-item --><\/p>\n<p><!-- \/wp:list --><!-- wp:list --><\/p>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul><!-- wp:list-item --><\/ul>\n<\/li>\n<\/ul>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul>\n<li>\u4e0d\u6b63\u78ba\u306a\u30c7\u30fc\u30bf\u306e\u8a02\u6b63\u3092\u8981\u6c42\u3059\u308b\u3053\u3068\u304c\u3067\u304d\u307e\u3059\u3002\u00a0<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<p><!-- \/wp:list-item --><\/p>\n<p><!-- \/wp:list --><!-- wp:list --><\/p>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul><!-- wp:list-item --><\/ul>\n<\/li>\n<\/ul>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul>\n<li>\u6cd5\u5f8b\u3067\u4fdd\u7ba1\u304c\u7fa9\u52d9\u4ed8\u3051\u3089\u308c\u3066\u3044\u308b\u5834\u5408\u3092\u9664\u304d\u3001\u500b\u4eba\u3092\u7279\u5b9a\u3067\u304d\u308b\u30c7\u30fc\u30bf\u306e\u524a\u9664\u3092\u8981\u6c42\u3059\u308b\u3053\u3068\u304c\u3067\u304d\u307e\u3059\u3002\u00a0<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<p><!-- \/wp:list-item --><\/p>\n<p><!-- \/wp:list --><!-- wp:list --><\/p>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul><!-- wp:list-item --><\/ul>\n<\/li>\n<\/ul>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul>\n<li>\u304a\u306a\u305f\u306f\u3001\u3054\u81ea\u8eab\u306e\u30c7\u30fc\u30bf\u306e\u51e6\u7406\u65b9\u6cd5\u3092\u5236\u9650\u3059\u308b\u3053\u3068\u304c\u3067\u304d\u307e\u3059\u3002\u00a0<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<p><!-- \/wp:list-item --><\/p>\n<p><!-- \/wp:list --><!-- wp:list --><\/p>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul><!-- wp:list-item --><\/ul>\n<\/li>\n<\/ul>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul>\n<li>\u3042\u306a\u305f\u306f\u3044\u3064\u3067\u3082\u8131\u9000\u3059\u308b\u3053\u3068\u304c\u3067\u304d\u3001\u305d\u308c\u4ee5\u964d\u30c7\u30fc\u30bf\u304c\u53ce\u96c6\u3055\u308c\u308b\u3053\u3068\u306f\u3042\u308a\u307e\u305b\u3093\u3002\u00a0<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<p><!-- \/wp:list-item --><\/p>\n<p><!-- \/wp:list --><!-- wp:list --><\/p>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul><!-- wp:list-item --><\/ul>\n<\/li>\n<\/ul>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul>\n<li>\u69cb\u9020\u5316\u3055\u308c\u305f\u5f62\u5f0f\u3067\u30c7\u30fc\u30bf\u3092\u8981\u6c42\u3059\u308b\u3053\u3068\u304c\u3067\u304d\u307e\u3059\u3002\u00a0<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<p><!-- \/wp:list-item --><\/p>\n<p><!-- \/wp:list --><!-- wp:paragraph --><\/p>\n<p>\u3053\u308c\u3089\u306e\u6a29\u5229\u3092\u884c\u4f7f\u3059\u308b\u306b\u306f\u3001\u3053\u3061\u3089\u306b\u3054\u9023\u7d61\u304f\u3060\u3055\u3044\uff1a <strong>office@remeds.org \u3067\u3054\u9023\u7d61\u304f\u3060\u3055\u3044\u3002<\/strong>\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p class=\"translation-block\">\u3053\u308c\u3089\u306e\u6a29\u5229\u3092\u884c\u4f7f\u3059\u308b\u306b\u306f\u3001\u3053\u3061\u3089\u306b\u3054\u9023\u7d61\u304f\u3060\u3055\u3044\uff1a<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:list --><\/p>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul><!-- wp:list-item --><\/ul>\n<\/li>\n<\/ul>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul>\n<li><strong>\u30a6\u30a7\u30d6\u30b5\u30a4\u30c8<\/strong>: <a href=\"https:\/\/www.dsb.gv.at\/\" target=\"_blank\" rel=\"noreferrer noopener\">www.dsb.gv.at<\/a>\u00a0<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<p><!-- \/wp:list-item --><\/p>\n<p><!-- \/wp:list --><!-- wp:list --><\/p>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul><!-- wp:list-item --><\/ul>\n<\/li>\n<\/ul>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul>\n<li><strong>E\u30e1\u30fc\u30eb<\/strong>dsb@dsb.gv.at\u00a0<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<p><!-- \/wp:list-item --><\/p>\n<p><!-- \/wp:list --><!-- wp:paragraph --><\/p>\n<p><strong>8.9.\u30c7\u30fc\u30bf\u30bb\u30ad\u30e5\u30ea\u30c6\u30a3\u5bfe\u7b56<\/strong>\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p class=\"translation-block\">\u79c1\u305f\u3061\u306f\u3001\u3042\u306a\u305f\u306e\u30c7\u30fc\u30bf\u3092\u4fdd\u8b77\u3059\u308b\u305f\u3081\u306b\u3001<strong>\u696d\u754c\u6a19\u6e96\u306e\u30bb\u30ad\u30e5\u30ea\u30c6\u30a3\u3092<\/strong>\u9069\u7528\u3057\u3066\u3044\u307e\u3059\u3002 \u5177\u4f53\u7684\u306b\u306f\uff1a<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:list --><\/p>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul><!-- wp:list-item --><\/ul>\n<\/li>\n<\/ul>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul>\n<li><strong>\u6697\u53f7\u5316\u3068\u5b89\u5168\u306a\u4fdd\u7ba1<\/strong>:\u30c7\u30fc\u30bf\u306f\u3001\u6b27\u5dde\u9023\u5408\uff08\u30aa\u30fc\u30b9\u30c8\u30ea\u30a2\uff09\u5185\u306eREMEDS\u30d7\u30e9\u30c3\u30c8\u30d5\u30a9\u30fc\u30e0\u30fb\u30b5\u30fc\u30d0\u30fc\u306b\u3001\u9ad8\u5ea6\u306a\u6697\u53f7\u5316\u3092\u65bd\u3057\u3066\u4fdd\u7ba1\u3055\u308c\u307e\u3059\u3002\u00a0<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<p><!-- \/wp:list-item --><\/p>\n<p><!-- \/wp:list --><!-- wp:list --><\/p>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul><!-- wp:list-item --><\/ul>\n<\/li>\n<\/ul>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul>\n<li><strong>\u30a2\u30af\u30bb\u30b9\u5236\u9650<\/strong>\uff1a\u6a29\u9650\u306e\u3042\u308b\u62c5\u5f53\u8005\u306e\u307f\u304c\u3001\u77e5\u308b\u5fc5\u8981\u304c\u751f\u3058\u305f\u5834\u5408\u306b\u9650\u308a\u3001\u500b\u4eba\u3092\u7279\u5b9a\u3067\u304d\u308b\u30c7\u30fc\u30bf\u3092\u95b2\u89a7\u3059\u308b\u3053\u3068\u304c\u3067\u304d\u307e\u3059\u3002REMEDS\u30d7\u30e9\u30c3\u30c8\u30d5\u30a9\u30fc\u30e0\u3078\u306e\u30a2\u30af\u30bb\u30b9\u3092\u8a31\u53ef\u3055\u308c\u305f\u8005\u306f\u3001\u500b\u4eba\u3092\u7279\u5b9a\u3057\u3088\u3046\u3068\u8a66\u307f\u3066\u306f\u306a\u3089\u306a\u3044\u7fa9\u52d9\u3092\u8ca0\u3063\u3066\u3044\u307e\u3059\u3002\u00a0<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<p><!-- \/wp:list-item --><\/p>\n<p><!-- \/wp:list --><!-- wp:list --><\/p>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul><!-- wp:list-item --><\/ul>\n<\/li>\n<\/ul>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul>\n<li><strong>\u30c7\u30fc\u30bf\u6f0f\u6d29\u30d7\u30ed\u30c8\u30b3\u30eb<\/strong>: \u60c5\u5831\u6f0f\u3048\u3044\u304c\u767a\u751f\u3057\u305f\u5834\u5408\u3001EU\u4e00\u822c\u30c7\u30fc\u30bf\u4fdd\u8b77\u898f\u5247\u306e\u8981\u6c42\u306b\u5f93\u3044\u3001\u5f53\u5c40\u304a\u3088\u3073\u5f71\u97ff\u3092\u53d7\u3051\u305f\u53c2\u52a0\u8005\u306b\u901a\u77e5\u3055\u308c\u307e\u3059\u3002\u00a0<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<p><!-- \/wp:list-item --><\/p>\n<p><!-- \/wp:list --><!-- wp:list --><\/p>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul><!-- wp:list-item --><\/ul>\n<\/li>\n<\/ul>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul>\n<li><strong>\u4eee\u540d\u5316<\/strong>\uff1a\u4eee\u540d\u5316\u3068\u306f\u3001\u3042\u306a\u305f\u306e\u500b\u4eba\u60c5\u5831\u306b\u30b3\u30fc\u30c9\u3092\u4ed8\u4e0e\u3057\u3001IT\u95a2\u9023\u95a2\u9023\u3092\u62c5\u5f53\u3059\u308bKepler\u5927\u5b66\u75c5\u9662\u3068REMEDS\u30d7\u30e9\u30c3\u30c8\u30d5\u30a9\u30fc\u30e0\u7ba1\u7406\u8005\u306e\u307f\u304c\u4fdd\u6709\u3059\u308b\u30b3\u30fc\u30c9\u3067\u3001\u3042\u306a\u305f\u306e\u8eab\u5143\u7279\u5b9a\u3092\u53ef\u80fd\u306b\u3059\u308b\u3053\u3068\u3067\u3059\u3002 \u307e\u305f\u3001\u30c7\u30fc\u30bf\u306f\u3001\u4eee\u540d\u5316\u307e\u305f\u306f\u533f\u540d\u5316\u3055\u308c\u305f\u5f62\u5f0f\u3067\u306e\u307f\u3067\u5171\u6709\u3055\u308c\u307e\u3059\u3002\u51fa\u7248\u7269\u3082\u307e\u305f\u3001\u4eee\u540d\u5316\u307e\u305f\u306f\u533f\u540d\u5316\u3055\u308c\u305f\u30c7\u30fc\u30bf\u306e\u307f\u3092\u4f7f\u7528\u3057\u307e\u3059\u3002\u00a0<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<p><!-- \/wp:list-item --><\/p>\n<p><!-- \/wp:list --><!-- wp:paragraph --><\/p>\n<p><strong>8.10.\u30af\u30c3\u30ad\u30fc\u3068\u30c8\u30e9\u30c3\u30ad\u30f3\u30b0\u6280\u8853<\/strong>\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p class=\"translation-block\">REMEDS\u30d7\u30e9\u30c3\u30c8\u30d5\u30a9\u30fc\u30e0\u306f\u3001\u500b\u4eba\u30c7\u30fc\u30bf\u53ce\u96c6\u306e\u305f\u3081\u306b<strong>\u30c8\u30e9\u30c3\u30ad\u30f3\u30b0\u30af\u30c3\u30ad\u30fc\u306f\u4f7f\u7528\u3057\u307e\u305b\u3093<\/strong>\u3002\u30d7\u30e9\u30c3\u30c8\u30d5\u30a9\u30fc\u30e0\u6a5f\u80fd\u306e\u305f\u3081\u3060\u3051\u306b\u3001\u5fc5\u9808\u306a\u30af\u30c3\u30ad\u30fc\u304c\u4f7f\u7528\u3055\u308c\u307e\u3059\u3002<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p><strong>8.11.EU\uff08\u6b27\u5dde\u9023\u5408\uff09\u57df\u5916\u3078\u306e\u30c7\u30fc\u30bf\u79fb\u8ee2<\/strong>\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>REMEDS\u30d7\u30e9\u30c3\u30c8\u30d5\u30a9\u30fc\u30e0\u306e\u6587\u8108\u306b\u304a\u3044\u3066\u3001\u4eee\u540d\u5316\u307e\u305f\u306f\u533f\u540d\u5316\u3055\u308c\u305f\u30c7\u30fc\u30bf\u306eEU\u57df\u5916\u306e\u56fd\u3005\uff08EU\u4e00\u822c\u30c7\u30fc\u30bf\u4fdd\u8b77\u898f\u5247\u3068\u540c\u7b49\u306e\u4fdd\u8b77\u30ec\u30d9\u30eb\u3092\u8a8d\u3081\u3066\u3044\u306a\u3044\u7b2c\u4e09\u56fd\uff09\u3078\u306e\u8ee2\u9001\u304c\u884c\u308f\u308c\u308b\u5834\u5408\u304c\u3042\u308a\u307e\u3059\u3002\u304a\u5b50\u69d8\u306e\u30c7\u30fc\u30bf\u304cEU\u4e00\u822c\u30c7\u30fc\u30bf\u4fdd\u8b77\u898f\u5247\u306b\u5f93\u3063\u3066\u4fdd\u8b77\u3055\u308c\u308b\u3088\u3046\u3001\u9069\u5207\u306a\u4fdd\u8b77\u63aa\u7f6e\u304c\u8b1b\u3058\u3089\u308c\u307e\u3059\u3002\u3053\u308c\u3089\u306e\u4fdd\u8b77\u63aa\u7f6e\u306b\u306f\u3001\u6a19\u6e96\u7684\u306a\u5951\u7d04\u6761\u9805\u306e\u4f7f\u7528\u3084\u3001\u7b2c\u4e09\u56fd\u306b\u8ee2\u9001\u3055\u308c\u308b\u969b\u306b\u30c7\u30fc\u30bf\u4fdd\u8b77\u57fa\u6e96\u304c\u7dad\u6301\u3055\u308c\u308b\u3088\u3046\u306b\u8a2d\u8a08\u3055\u308c\u305f\u305d\u306e\u4ed6\u306e\u4ed5\u7d44\u307f\u304c\u542b\u307e\u308c\u308b\u5834\u5408\u304c\u3042\u308a\u307e\u3059\u3002\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p><strong>8.12.\u672c\u30d7\u30e9\u30a4\u30d0\u30b7\u30fc\u60c5\u5831\u306e\u5909\u66f4<\/strong>\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>\u79c1\u305f\u3061\u306f\u3001\u672c\u30d7\u30e9\u30a4\u30d0\u30b7\u30fc\u60c5\u5831\u3092\u5b9a\u671f\u7684\u306b\u66f4\u65b0\u3059\u308b\u3053\u3068\u304c\u3042\u308a\u307e\u3059\u3002\u5909\u66f4\u306f\u3001REMEDS\u30d7\u30e9\u30c3\u30c8\u30d5\u30a9\u30fc\u30e0\u306e\u30a6\u30a7\u30d6\u30b5\u30a4\u30c8\u304a\u3088\u3073\u96fb\u5b50\u30e1\u30fc\u30eb\u3092\u901a\u3057\u3066\u901a\u77e5\u3055\u308c\u307e\u3059\u3002\u00a0\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p><strong>8.13.\u9023\u7d61\u5148<\/strong>\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p>\u30c7\u30fc\u30bf\u4fdd\u8b77\u306b\u95a2\u3059\u308b\u304a\u554f\u3044\u5408\u308f\u305b\u306f\u3001\u4e0b\u8a18\u307e\u3067\u3054\u9023\u7d61\u304f\u3060\u3055\u3044\uff1a\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p><strong>E\u30e1\u30fc\u30eb<\/strong>: <a href=\"mailto:office@remeds.org\" target=\"_blank\" rel=\"noreferrer noopener\">office@remeds.org \u3067\u3054\u9023\u7d61\u304f\u3060\u3055\u3044\u3002<\/a>\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p><strong>\u96fb\u5b50\u30e1\u30fc\u30eb<\/strong>:\u30d7\u30ec\u30e0\u30e9\u30a4\u30ca\u30fc\u30ac\u30c3\u30bb13\u30011130\u30a6\u30a3\u30fc\u30f3\u3001\u30aa\u30fc\u30b9\u30c8\u30ea\u30a2\u00a0<\/p>\n<p><!-- \/wp:paragraph --><!-- wp:paragraph --><\/p>\n<p><strong>\u96fb\u8a71<\/strong>: +43 678 1215837\u00a0<\/p>\n<p><strong>8.14 \u30b5\u30fc\u30d3\u30b9\u30d7\u30ed\u30d0\u30a4\u30c0\u30fc<\/strong><\/p>\n<p>REMEDS\u30d7\u30e9\u30c3\u30c8\u30d5\u30a9\u30fc\u30e0\u306f\u3001\u30b5\u30fc\u30d3\u30b9\u30d7\u30ed\u30d0\u30a4\u30c0\u30fc\u3068\u3057\u3066Jotform\u3092\u4f7f\u7528\u3057\u3066\u3044\u307e\u3059\u3002<\/p>\n<p><!-- \/wp:paragraph --><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>","protected":false},"excerpt":{"rendered":"<p>Privacy Policy Information for Parents and Legal Guardians of MDS Patients on the MECP2 Duplication Syndrome Patient Registry and Survey Platform (REMEDS Platform)\u00a0and Privacy NoticeEffective Date: 30.04.2025\u00a0 Dear Parents and Legal Guardians and MDS Patients,\u00a0 Your child or ward (in the following &#8220;child&#8221;) has been diagnosed with MECP2 Duplication Syndrome (MDS). MDS is very rare and can present with different clinical symptoms that may vary from patient to patient. The reason for this variability is unclear and subject to further research primarily on differences in genetic findings.\u00a0 To better map the clinical presentation to the genetic variations and to expand knowledge about MDS it is important for rare diseases to [&hellip;]<\/p>\n","protected":false},"author":73,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"open","template":"","meta":{"_jf_save_progress":"","footnotes":""},"class_list":["post-3","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/remeds.org\/ja\/wp-json\/wp\/v2\/pages\/3","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/remeds.org\/ja\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/remeds.org\/ja\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/remeds.org\/ja\/wp-json\/wp\/v2\/users\/73"}],"replies":[{"embeddable":true,"href":"https:\/\/remeds.org\/ja\/wp-json\/wp\/v2\/comments?post=3"}],"version-history":[{"count":10,"href":"https:\/\/remeds.org\/ja\/wp-json\/wp\/v2\/pages\/3\/revisions"}],"predecessor-version":[{"id":3417,"href":"https:\/\/remeds.org\/ja\/wp-json\/wp\/v2\/pages\/3\/revisions\/3417"}],"wp:attachment":[{"href":"https:\/\/remeds.org\/ja\/wp-json\/wp\/v2\/media?parent=3"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}