Verein zur Unterstützung von Kindern mit MeCP2 Duplication Syndrom, kurz: Lasst uns MDS heilen, a not-for-profit association under Austrian law (DupMECP2 – Lasst uns MDS heilen), ZVR 1165516180 (Registration number with the Austrian central association registry)
Premreinergasse 13
1130 Wien
Austria
Email: office@remeds.org
Phone: 0043 678 121 5837
Website: www.remeds.org
David Covini, president
Dr. Caroline Covini, vice-president
This website serves as the official platform for the Register and medical survey platform for MECP2 Duplication Syndrome (REMEDS Platform). Its primary purpose is to collect, store, and analyze clinical and genetic data to enhance research, improve understanding of MECP2 Duplication Syndrome, and support scientific studies.
This website and all data processing activities are conducted in compliance with the General Data Protection Regulation (GDPR). Personal data is collected, stored, and processed only with explicit consent of the person involved.
All content provided on this website is for informational purposes only. DupMECP2 – Lasst uns MDS heilen assumes no responsibility for the accuracy, completeness, or timeliness of the information. The use of external links does not imply endorsement, and DupMECP2 – Lasst uns MDS heilen is not liable for third-party content.
The content, structure, and design of this website are protected by copyright laws. Any reproduction, modification, distribution, or commercial use of the website’s content requires prior written consent of DupMECP2 – Lasst uns MDS heilen.
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