{"id":222,"date":"2024-09-13T08:59:00","date_gmt":"2024-09-13T06:59:00","guid":{"rendered":"https:\/\/remeds.org\/?page_id=222"},"modified":"2025-07-02T15:06:51","modified_gmt":"2025-07-02T13:06:51","slug":"om-remeds","status":"publish","type":"page","link":"https:\/\/remeds.org\/da\/about-remeds\/","title":{"rendered":"Om REMEDS"},"content":{"rendered":"<div data-elementor-type=\"wp-page\" data-elementor-id=\"222\" class=\"elementor elementor-222\" data-elementor-post-type=\"page\">\n\t\t\t\t<div class=\"elementor-element elementor-element-49a3fe8 e-flex e-con-boxed e-con e-parent\" data-id=\"49a3fe8\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-cd5d78b e-con-full e-flex e-con e-child\" data-id=\"cd5d78b\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-6529737 elementor-widget elementor-widget-heading\" data-id=\"6529737\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h1 class=\"elementor-heading-title elementor-size-default\">Hvem er REMEDS?<\/h1>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-2517e79 elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"2517e79\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-b1d8a1f e-con-full e-flex e-con e-child\" data-id=\"b1d8a1f\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-b40b553 elementor-widget__width-initial elementor-widget elementor-widget-text-editor\" data-id=\"b40b553\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p>REMEDS er et initiativ fra DupMECP2 - Lasst uns MDS heilen, en europ\u00e6isk non-profit organisation, der er dedikeret til at st\u00f8tte det globale MECP2 Duplication Syndrome (MDS)-f\u00e6llesskab. Vores REMEDS-team best\u00e5r af en dedikeret l\u00e6ge, Dr. Gr\u00f6ppel, og andre MDS-eksperter, der er engageret i at fremme forskning og patientbehandling af MECP2-duplikationssyndromet.<\/p><p>Med REMEDS sigter vi mod at skabe en omfattende, interaktiv og flersproget platform, hvor data behandles med den h\u00f8jeste standard for sikkerhed og beskyttelse af patienters data, med GDPR-kompatibel opbevaring p\u00e5 en europ\u00e6isk server. \u00a0<\/p><p>Vores m\u00e5l er at optimere kommunikationen og udvekslingen af information for at \u00f8ge forst\u00e5elsen af sygdommen, st\u00f8tte forskning i behandling og yde afg\u00f8rende st\u00f8tte til familier, der er ber\u00f8rt af MDS. Ved at forene patienter, plejepersonale, sundhedsfirmaer og forskere p\u00e5 en enkelt platform opfordrer vi til et samarbejdsmilj\u00f8, der forbedrer forst\u00e5elsen og h\u00e5ndteringen af MDS.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-64626b1 elementor-widget-tablet__width-initial elementor-widget elementor-widget-image\" data-id=\"64626b1\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t\t\t\t\t\t\t\t\t<figure class=\"wp-caption\">\n\t\t\t\t\t\t\t\t\t\t<img fetchpriority=\"high\" decoding=\"async\" width=\"800\" height=\"534\" src=\"https:\/\/remeds.org\/wp-content\/uploads\/2025\/02\/REMEDS_Who-we-are-1024x683.jpg\" class=\"attachment-large size-large wp-image-1480\" alt=\"Caroline Covini David Covini og Dr. Gudrun Gr\u00f6ppel\" srcset=\"https:\/\/remeds.org\/wp-content\/uploads\/2025\/02\/REMEDS_Who-we-are-1024x683.jpg 1024w, https:\/\/remeds.org\/wp-content\/uploads\/2025\/02\/REMEDS_Who-we-are-300x200.jpg 300w, https:\/\/remeds.org\/wp-content\/uploads\/2025\/02\/REMEDS_Who-we-are-768x512.jpg 768w, https:\/\/remeds.org\/wp-content\/uploads\/2025\/02\/REMEDS_Who-we-are-1536x1024.jpg 1536w, https:\/\/remeds.org\/wp-content\/uploads\/2025\/02\/REMEDS_Who-we-are-2048x1365.jpg 2048w\" sizes=\"(max-width: 800px) 100vw, 800px\" \/>\t\t\t\t\t\t\t\t\t\t\t<figcaption class=\"widget-image-caption wp-caption-text\">Caroline Covini David Covini og Dr. Gudrun Gr\u00f6ppel<\/figcaption>\n\t\t\t\t\t\t\t\t\t\t<\/figure>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-9940913 elementor-fixed elementor-widget elementor-widget-image\" data-id=\"9940913\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;_position&quot;:&quot;fixed&quot;}\" data-widget_type=\"image.default\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" width=\"800\" height=\"919\" src=\"https:\/\/remeds.org\/wp-content\/uploads\/2024\/10\/Element-1@4x-891x1024.png\" class=\"attachment-large size-large wp-image-484\" alt=\"\" srcset=\"https:\/\/remeds.org\/wp-content\/uploads\/2024\/10\/Element-1@4x-891x1024.png 891w, https:\/\/remeds.org\/wp-content\/uploads\/2024\/10\/Element-1@4x-261x300.png 261w, https:\/\/remeds.org\/wp-content\/uploads\/2024\/10\/Element-1@4x-768x883.png 768w, https:\/\/remeds.org\/wp-content\/uploads\/2024\/10\/Element-1@4x-1336x1536.png 1336w, https:\/\/remeds.org\/wp-content\/uploads\/2024\/10\/Element-1@4x-1781x2048.png 1781w\" sizes=\"(max-width: 800px) 100vw, 800px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-9148461 e-con-full e-flex e-con e-child\" data-id=\"9148461\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t<div class=\"elementor-element elementor-element-f1dc344 e-con-full e-flex e-con e-child\" data-id=\"f1dc344\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t<div class=\"elementor-element elementor-element-b726836 e-con-full e-flex e-con e-child\" data-id=\"b726836\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-e8740cd elementor-widget elementor-widget-image\" data-id=\"e8740cd\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" width=\"500\" height=\"500\" src=\"https:\/\/remeds.org\/wp-content\/uploads\/2025\/05\/3_What_is_Remeds.svg\" class=\"attachment-full size-full wp-image-2881\" alt=\"\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-e87d59f elementor-widget elementor-widget-heading\" data-id=\"e87d59f\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Hvad er REMEDS?<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-57a1b68 elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"57a1b68\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-f343b06 elementor-widget elementor-widget-text-editor\" data-id=\"f343b06\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p>REMEDS st\u00e5r for REgister and Medical Survey for MECP2 Duplication Syndrome.\nDet er et globalt register, der er designet til at indsamle og administrere data fra MDS-f\u00e6llesskabet.\nDenne innovative platform g\u00f8r det muligt at registrere og unders\u00f8ge patienter, der udelukkende er ramt af MECP2-duplikationssyndrom.\nVed at indsamle v\u00e6rdifuld information direkte fra plejepersonale gennem unders\u00f8gelser \u00f8nsker REMEDS at f\u00e5 en mere pr\u00e6cis forst\u00e5else af sygdommen, dens reelle forekomst og forl\u00f8b.\nDet muligg\u00f8r ogs\u00e5 direkte udveksling mellem patienter, plejepersonale og forskere, hvilket fremmer et st\u00f8ttende og informeret f\u00e6llesskab.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-0e75d6a e-con-full e-flex e-con e-child\" data-id=\"0e75d6a\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t<div class=\"elementor-element elementor-element-0b19773 e-con-full e-flex e-con e-child\" data-id=\"0b19773\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-7fa74ef elementor-widget elementor-widget-image\" data-id=\"7fa74ef\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"500\" height=\"500\" src=\"https:\/\/remeds.org\/wp-content\/uploads\/2025\/05\/2_Surveys_Remeds.svg\" class=\"attachment-full size-full wp-image-2880\" alt=\"\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-9c8b9c3 elementor-widget__width-initial elementor-widget elementor-widget-heading\" data-id=\"9c8b9c3\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default translation-block\">Hvad er unders\u00f8gelser og patientregistre?<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-7cecfdf elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"7cecfdf\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-5e75f4f elementor-widget elementor-widget-text-editor\" data-id=\"5e75f4f\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p>Unders\u00f8gelserne og patientregistret er kernekomponenter i REMEDS.<\/p><p>Patientregistret er en sikker database, hvor patienter med en bestemt sygdom kan registrere sig og dele detaljerede oplysninger s\u00e5som patientdemografi, genetiske oplysninger og sygehistorie. Dette register hj\u00e6lper med at spore forekomsten og udviklingen af MECP2 Duplication Syndrome globalt og giver dermed en bedre forst\u00e5else af sygdommen.<\/p><p>Unders\u00f8gelserne er designet til at indsamle detaljerede oplysninger fra patienter, p\u00e5r\u00f8rende og sundhedspersonale om deres erfaringer med MECP2-duplikationssyndromet. Unders\u00f8gelserne hj\u00e6lper med at holde registret opdateret, samtidig med at de giver forskere og sundhedsfirmaer et overblik over sygdommen, hvilket i sidste ende f\u00f8rer til forbedrede behandlinger og plejestrategier.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-17762e0 e-con-full e-flex e-con e-child\" data-id=\"17762e0\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t<div class=\"elementor-element elementor-element-542e4ba e-con-full e-flex e-con e-child\" data-id=\"542e4ba\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-22599ac elementor-widget elementor-widget-image\" data-id=\"22599ac\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"500\" height=\"500\" src=\"https:\/\/remeds.org\/wp-content\/uploads\/2025\/05\/1_Why-joining_Remeds.svg\" class=\"attachment-full size-full wp-image-2879\" alt=\"\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-a7e9899 elementor-widget__width-initial elementor-widget elementor-widget-heading\" data-id=\"a7e9899\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Hvorfor blive medlem af REMEDS?<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-07aedfe elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"07aedfe\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-5b044a2 elementor-widget elementor-widget-text-editor\" data-id=\"5b044a2\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p class=\"translation-block\">Ved at deltage, bidrager du til at forbedre forst\u00e5elsen og behandlingen af MECP2-duplikationssyndrom. Dit engagement hj\u00e6lper med at fremskynde udviklingen af nye behandlingsformer og forbedrer kvaliteten af behandlingen for alle ber\u00f8rte b\u00f8rn. Derudover f\u00e5r du adgang til et st\u00f8ttende f\u00e6llesskab og holder dig orienteret om de seneste videnskabelige fremskridt og forskningsresultater. Ved at dele dine erfaringer og data, spiller du en afg\u00f8rende rolle i udformningen af fremtidens medicinske forskning og patientbehandling af MECP2-duplikationssyndrom.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-e1eae78 e-flex e-con-boxed e-con e-parent\" data-id=\"e1eae78\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-ad48623 e-flex e-con-boxed e-con e-child\" data-id=\"ad48623\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-ec56c6e elementor-widget elementor-widget-heading\" data-id=\"ec56c6e\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Hvordan virker REMEDS?<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-40191e4 elementor-widget elementor-widget-text-editor\" data-id=\"40191e4\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p>Hver registrering gennemg\u00e5s og valideres af en dedikeret REMEDS-l\u00e6ge, der sikrer, at alle patienter har MECP2 Duplication Syndrome. N\u00e5r en diagnose er bekr\u00e6ftet af vores l\u00e6ge, modtager plejepersonalet meddelelser om videnskabelige nyheder og inviteres til at deltage i unders\u00f8gelser, der er designet af medicinalvirksomheder, forskere og sundhedspersonale.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-b45c0f4 e-con-full e-flex e-con e-child\" data-id=\"b45c0f4\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t<div class=\"elementor-element elementor-element-4f3bffa e-con-full e-grid e-con e-child\" data-id=\"4f3bffa\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t<div class=\"elementor-element elementor-element-dff8bb7 e-con-full e-flex e-con e-child\" data-id=\"dff8bb7\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-8d6e723 elementor-widget elementor-widget-heading\" data-id=\"8d6e723\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<p class=\"elementor-heading-title elementor-size-default\">01<\/p>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-4e0b603 elementor-widget elementor-widget-heading\" data-id=\"4e0b603\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">Opret en konto<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-2aed89d elementor-widget elementor-widget-text-editor\" data-id=\"2aed89d\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p>Log ind p\u00e5 et privat omr\u00e5de ved hj\u00e6lp af multifaktor-autentificeringsv\u00e6rkt\u00f8jer.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-7a5ab43 e-con-full e-flex e-con e-child\" data-id=\"7a5ab43\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-4717bc2 elementor-widget elementor-widget-heading\" data-id=\"4717bc2\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<p class=\"elementor-heading-title elementor-size-default\">02<\/p>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-16bcce5 elementor-widget elementor-widget-heading\" data-id=\"16bcce5\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">Registrer en patient\n<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-4fc5d83 elementor-widget elementor-widget-text-editor\" data-id=\"4fc5d83\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<div id=\"brxe-uymlbq\" class=\"brxe-block\">\n<p>Giv detaljerede patientoplysninger og vedl\u00e6g bevis for diagnosen, s\u00e5 REMEDS-l\u00e6gen kan validere den.<\/p>\n<\/div>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-01bd2ab e-con-full e-flex e-con e-child\" data-id=\"01bd2ab\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-670d4e5 elementor-widget elementor-widget-heading\" data-id=\"670d4e5\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<p class=\"elementor-heading-title elementor-size-default\">03<\/p>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-c8991d5 elementor-widget elementor-widget-heading\" data-id=\"c8991d5\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">Registrering gennemf\u00f8rt \u00a0<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-5c1d4be elementor-widget elementor-widget-text-editor\" data-id=\"5c1d4be\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<div id=\"brxe-pumhlk\" class=\"brxe-block\"><p>N\u00e5r valideringen er fuldf\u00f8rt, f\u00e5r du adgang til platformen og kan administrere dine patientoplysninger.<\/p><\/div>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-635f4be e-con-full e-flex e-con e-child\" data-id=\"635f4be\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-7eb8428 elementor-widget elementor-widget-heading\" data-id=\"7eb8428\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<p class=\"elementor-heading-title elementor-size-default\">04<\/p>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-e1aca5f elementor-widget elementor-widget-heading\" data-id=\"e1aca5f\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">Kom i gang <\/h3>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-2a9df16 elementor-widget elementor-widget-text-editor\" data-id=\"2a9df16\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<section id=\"brxe-ixcyed\" class=\"brxe-section\"><div id=\"brxe-tcderi\" class=\"brxe-container brx-grid\"><div id=\"brxe-sypfqn\" class=\"brxe-block\"><p>F\u00e5 adgang til og deltag i \u00e5bne sp\u00f8rgeunders\u00f8gelser, se handlingshistorik og bidrag til igangv\u00e6rende forskningsindsats.<\/p><\/div><\/div><\/section>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-212fa9e e-con-full e-flex e-con e-parent\" data-id=\"212fa9e\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t<div class=\"elementor-element elementor-element-1400ab0 e-con-full e-flex e-con e-child\" data-id=\"1400ab0\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-2fffc6a elementor-widget elementor-widget-heading\" data-id=\"2fffc6a\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Har du en diagnose p\u00e5 MECP2-duplikationssyndrom?<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-6b0412a elementor-widget elementor-widget-jet-engine-component-400\" data-id=\"6b0412a\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"jet-engine-component-400.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<style>.elementor-400 .elementor-element.elementor-element-6b9166f{--display:flex;--flex-direction:row;--container-widget-width:calc( ( 1 - var( --container-widget-flex-grow ) ) * 100% );--container-widget-height:100%;--container-widget-flex-grow:1;--container-widget-align-self:stretch;--flex-wrap-mobile:wrap;--justify-content:flex-start;--align-items:center;--border-radius:36px 36px 36px 36px;--margin-top:0px;--margin-bottom:0px;--margin-left:0px;--margin-right:0px;--padding-top:10px;--padding-bottom:12px;--padding-left:13px;--padding-right:13px;}.elementor-400 .elementor-element.elementor-element-6b9166f:not(.elementor-motion-effects-element-type-background), .elementor-400 .elementor-element.elementor-element-6b9166f > .elementor-motion-effects-container > .elementor-motion-effects-layer{background-color:var( --e-global-color-9b83194 );}.elementor-400 .elementor-element.elementor-element-6b9166f.e-con{--align-self:flex-start;--order:-99999 \/* order start hack *\/;}.elementor-widget-heading .elementor-heading-title{font-family:var( --e-global-typography-primary-font-family ), Sans-serif;font-weight:var( --e-global-typography-primary-font-weight );color:var( --e-global-color-primary );}.elementor-400 .elementor-element.elementor-element-c258b9a .elementor-heading-title{font-family:\"Mulish\", Sans-serif;font-size:1.2rem;font-weight:600;color:var( --e-global-color-primary );}.elementor-400 .elementor-element.elementor-element-c0331a6{--display:flex;--flex-direction:row;--container-widget-width:initial;--container-widget-height:100%;--container-widget-flex-grow:1;--container-widget-align-self:stretch;--flex-wrap-mobile:wrap;--margin-top:-4px;--margin-bottom:0px;--margin-left:0px;--margin-right:0px;}.elementor-widget-icon.elementor-view-stacked .elementor-icon{background-color:var( --e-global-color-primary );}.elementor-widget-icon.elementor-view-framed .elementor-icon, .elementor-widget-icon.elementor-view-default .elementor-icon{color:var( --e-global-color-primary );border-color:var( --e-global-color-primary );}.elementor-widget-icon.elementor-view-framed .elementor-icon, .elementor-widget-icon.elementor-view-default .elementor-icon svg{fill:var( --e-global-color-primary );}.elementor-400 .elementor-element.elementor-element-150af24 .elementor-icon-wrapper{text-align:center;}.elementor-400 .elementor-element.elementor-element-150af24.elementor-view-stacked .elementor-icon{background-color:var( --e-global-color-primary );}.elementor-400 .elementor-element.elementor-element-150af24.elementor-view-framed .elementor-icon, .elementor-400 .elementor-element.elementor-element-150af24.elementor-view-default .elementor-icon{color:var( --e-global-color-primary );border-color:var( --e-global-color-primary );}.elementor-400 .elementor-element.elementor-element-150af24.elementor-view-framed .elementor-icon, .elementor-400 .elementor-element.elementor-element-150af24.elementor-view-default .elementor-icon svg{fill:var( --e-global-color-primary );}.elementor-400 .elementor-element.elementor-element-150af24 .elementor-icon{font-size:30px;}.elementor-400 .elementor-element.elementor-element-150af24 .elementor-icon svg{height:30px;}.elementor-400 .elementor-element.elementor-element-150af24{margin:0px 0px calc(var(--kit-widget-spacing, 0px) + -5px) -5px;top:-1px;}body:not(.rtl) .elementor-400 .elementor-element.elementor-element-150af24{left:0px;}body.rtl .elementor-400 .elementor-element.elementor-element-150af24{right:0px;}.elementor-400 .elementor-element.elementor-element-fd98fa4 .elementor-icon-wrapper{text-align:center;}.elementor-400 .elementor-element.elementor-element-fd98fa4 .elementor-icon{font-size:14px;}.elementor-400 .elementor-element.elementor-element-fd98fa4 .elementor-icon svg{height:14px;}.elementor-400 .elementor-element.elementor-element-fd98fa4{margin:0px 0px calc(var(--kit-widget-spacing, 0px) + 0px) -4px;top:4px;}body:not(.rtl) .elementor-400 .elementor-element.elementor-element-fd98fa4{left:8px;}body.rtl .elementor-400 .elementor-element.elementor-element-fd98fa4{right:8px;}@media(min-width:768px){.elementor-400 .elementor-element.elementor-element-c0331a6{--width:auto;}}@media(max-width:767px){.elementor-400 .elementor-element.elementor-element-6b9166f{--width:auto;--align-items:flex-start;--container-widget-width:calc( ( 1 - var( --container-widget-flex-grow ) ) * 100% );--flex-wrap:nowrap;}.elementor-400 .elementor-element.elementor-element-c258b9a{width:var( --container-widget-width, 439px );max-width:439px;--container-widget-width:439px;--container-widget-flex-grow:0;}.elementor-400 .elementor-element.elementor-element-c0331a6{--width:20px;}}\/* Start custom CSS for container, class: .elementor-element-6b9166f *\/.button-main{rn  rn  transition: transform 0.3s ease;rn  rn}rnrn.button-main:hover .icon-btn-bg {rn        transform: translate( -1px , 0 ) rotate(180deg);rn        transform-origin: center;rn   ttttransition: transform 0.4s ease;rn    }rnrn.button-main:hover .button-main-text{rn  text-decoration: underline #ffffff65;rn  rn}rn.icon-btn-bg {rn  rn  transition: transform 0.6s ease;rn  rn}\/* End custom CSS *\/\n\/* Start Custom Fonts CSS *\/@font-face {\n\tfont-family: 'Mulish';\n\tfont-style: normal;\n\tfont-weight: normal;\n\tfont-display: auto;\n\tsrc: url('https:\/\/remeds.org\/wp-content\/uploads\/2024\/08\/mulish-v13-latin-regular.woff2') format('woff2');\n}\n@font-face {\n\tfont-family: 'Mulish';\n\tfont-style: italic;\n\tfont-weight: normal;\n\tfont-display: auto;\n\tsrc: url('https:\/\/remeds.org\/wp-content\/uploads\/2024\/08\/mulish-v13-latin-italic.woff2') format('woff2');\n}\n@font-face {\n\tfont-family: 'Mulish';\n\tfont-style: normal;\n\tfont-weight: 600;\n\tfont-display: auto;\n\tsrc: url('https:\/\/remeds.org\/wp-content\/uploads\/2024\/08\/mulish-v13-latin-600.woff2') format('woff2');\n}\n@font-face {\n\tfont-family: 'Mulish';\n\tfont-style: italic;\n\tfont-weight: 600;\n\tfont-display: auto;\n\tsrc: url('https:\/\/remeds.org\/wp-content\/uploads\/2024\/08\/mulish-v13-latin-600italic.woff2') format('woff2');\n}\n@font-face {\n\tfont-family: 'Mulish';\n\tfont-style: normal;\n\tfont-weight: 700;\n\tfont-display: auto;\n\tsrc: url('https:\/\/remeds.org\/wp-content\/uploads\/2024\/08\/mulish-v13-latin-700.woff2') format('woff2');\n}\n@font-face {\n\tfont-family: 'Mulish';\n\tfont-style: normal;\n\tfont-weight: 500;\n\tfont-display: auto;\n\tsrc: url('https:\/\/remeds.org\/wp-content\/uploads\/2024\/08\/mulish-v13-latin-500.woff2') format('woff2');\n}\n@font-face {\n\tfont-family: 'Mulish';\n\tfont-style: italic;\n\tfont-weight: 700;\n\tfont-display: auto;\n\tsrc: url('https:\/\/remeds.org\/wp-content\/uploads\/2024\/08\/mulish-v13-latin-700italic.woff2') format('woff2');\n}\n\/* End Custom Fonts CSS *\/<\/style>\t\t<div data-elementor-type=\"jet-engine-component\" data-elementor-id=\"400\" class=\"elementor elementor-400 jet-listing-grid--400 jet-component-instance-1465\" data-elementor-post-type=\"jet-engine\" style=\"\">\n\t\t\t\t<a class=\"elementor-element elementor-element-6b9166f e-con-full button-main e-flex e-con e-child\" data-id=\"6b9166f\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\" href=\"https:\/\/remeds.org\/da\/account\/patients\/\">\n\t\t\t\t<div class=\"elementor-element elementor-element-c258b9a elementor-widget-mobile__width-initial elementor-widget elementor-widget-heading\" data-id=\"c258b9a\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Registrer en patient<\/h2>\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-c0331a6 e-con-full e-flex e-con e-child\" data-id=\"c0331a6\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-150af24 elementor-absolute icon-btn-bg elementor-view-default elementor-widget elementor-widget-icon\" data-id=\"150af24\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;_position&quot;:&quot;absolute&quot;}\" data-widget_type=\"icon.default\">\n\t\t\t\t\t\t\t<div class=\"elementor-icon-wrapper\">\n\t\t\t<div class=\"elementor-icon\">\n\t\t\t<svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" xmlns:xlink=\"http:\/\/www.w3.org\/1999\/xlink\" xmlns:serif=\"http:\/\/www.serif.com\/\" width=\"100%\" height=\"100%\" viewbox=\"0 0 29 28\" xml:space=\"preserve\" style=\"fill-rule:evenodd;clip-rule:evenodd;stroke-linejoin:round;stroke-miterlimit:2;\"> <g transform=\"matrix(1,0,0,1,-946,-526.35)\"> <g transform=\"matrix(1,0,0,1,946,526)\"> <path d=\"M27.756,12.484C28.491,15.695 27.556,19.032 25.053,21.876C22.588,24.691 18.556,27.014 14,27.534C9.444,28.085 5.412,26.631 2.947,23.902C0.444,21.191 -0.491,17.205 0.244,13.092C0.981,8.957 3.094,5.509 5.562,3.293C8.067,1.061 10.926,0.059 14,0.423C17.074,0.793 19.933,2.361 22.438,4.461C24.906,6.59 27.018,9.252 27.756,12.484L27.756,12.484Z\" style=\"fill:white;fill-rule:nonzero;\"><\/path> <\/g> <\/g> <\/svg>\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-fd98fa4 elementor-absolute elementor-view-default elementor-widget elementor-widget-icon\" data-id=\"fd98fa4\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;_position&quot;:&quot;absolute&quot;}\" data-widget_type=\"icon.default\">\n\t\t\t\t\t\t\t<div class=\"elementor-icon-wrapper\">\n\t\t\t<div class=\"elementor-icon\">\n\t\t\t<svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" xmlns:xlink=\"http:\/\/www.w3.org\/1999\/xlink\" xmlns:serif=\"http:\/\/www.serif.com\/\" width=\"100%\" height=\"100%\" viewbox=\"0 0 5 8\" xml:space=\"preserve\" style=\"fill-rule:evenodd;clip-rule:evenodd;stroke-linecap:round;stroke-linejoin:round;\"> <g transform=\"matrix(1,0,0,1,-958.3,-535.85)\"> <g transform=\"matrix(1,0,0,1,946,526)\"> <path d=\"M13.3,10.85L16.1,13.65L13.3,16.45\" style=\"fill:none;fill-rule:nonzero;stroke:rgb(24,37,52);stroke-width:2px;\"><\/path> <\/g> <\/g> <\/svg>\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>","protected":false},"excerpt":{"rendered":"<p>Who is REMEDS? REMEDS is an initiative by DupMECP2 \u2013 Lasst uns MDS heilen, a European based non-profit organization, dedicated to supporting the global MECP2 Duplication Syndrome (MDS) community. Our REMEDS team includes a dedicated medical doctor, Dr. Gr\u00f6ppel, and other MDS experts committed to advancing research and patient care for MECP2 duplication syndrome. With [&hellip;]<\/p>\n","protected":false},"author":73,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_jf_save_progress":"","footnotes":""},"class_list":["post-222","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/remeds.org\/da\/wp-json\/wp\/v2\/pages\/222","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/remeds.org\/da\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/remeds.org\/da\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/remeds.org\/da\/wp-json\/wp\/v2\/users\/73"}],"replies":[{"embeddable":true,"href":"https:\/\/remeds.org\/da\/wp-json\/wp\/v2\/comments?post=222"}],"version-history":[{"count":10,"href":"https:\/\/remeds.org\/da\/wp-json\/wp\/v2\/pages\/222\/revisions"}],"predecessor-version":[{"id":3364,"href":"https:\/\/remeds.org\/da\/wp-json\/wp\/v2\/pages\/222\/revisions\/3364"}],"wp:attachment":[{"href":"https:\/\/remeds.org\/da\/wp-json\/wp\/v2\/media?parent=222"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}